Mia 😷😷 · @Mia67
51 followers · 343 posts · Server mastodon.ie

@kijekijikokwe If it was me Charlotte I’d go. Ye don’t know what Dr Harvey’s gonna do,and apart from the(Health) effort it’ll cost Ye. I’m Sure it Will be worth it.
I’ve Many and though appointments take it outta me, I Make myself go. Most times it’s Worth it! Good Luck!

#chronicilless

Last updated 2 years ago

This flare is including muscle spasms and tremors and huge fatigue and pain, and general confusion. I'm not having a good time

#chronicilless #LongCovid #permanentlysick #notfun

Last updated 2 years ago

Vereesh · @temporal_spider
24 followers · 84 posts · Server masto.ai

I got so many things done yesterday, so of course I'm crashed today. Achy and sleepy. Maybe this one won't last too long. I'm resting and sipping my calendula tincture, my sovereign remedy for crashes.

#mecfs #chronicilless

Last updated 2 years ago

Larissa · @Larissacomments1
313 followers · 348 posts · Server mastodon.nz

Hi, I have a chronic illness which means I can only work part time. I also have some mental health conditions and also currently a long covid lung issue. This made my Twitter community all the more important to me because I am often home alone and there were many others there in similar situations and it was good for company and support. If you are home a lot for similar reasons (or different ones) please say hi!

#chronicilless #fibromyalgia #LongCovid #anxiety #ptsd

Last updated 2 years ago

donkey jess · @adonkumentary
242 followers · 324 posts · Server ohai.social

I asked them what I should do & they told me I could come back tomorrow (today) to do an intake. I inspected her for fleas or any other noticable neglegencies but saw none, thankfully. So I brought her home until I could decide what to do. Her & my own hit it off quickly.

She did great overnight but sadly, I am not in a position to have 2 dogs. In fact, I'm in the process of getting my dog to be trained as a because of my & other . (More below)

#dog #servicedog #heartdisease #chronicilless

Last updated 2 years ago

Gigi diGranat · @gigidigranat
23 followers · 182 posts · Server home.social

Happy 420 kids! I’m celebrating because I got a new formula edible and now I’m waking up (slowly) and actually able to DO STUFF!! This is a huge win for me so I’ll celebrate again before I go to bed so I can be productive tomorrow. šŸŽ‰šŸŽ‰šŸŽ‰ #420

#marijuana #chronicpain #chronicilless #fibromyagia

Last updated 2 years ago

Alex Nicole · @alexnicole
22 followers · 53 posts · Server ohai.social

Sawyer has been accepted for service dog training. I'm training him to assist with my epilepsy & autism. The cost of training is high, and I'd greatly any appreciate help defraying those costs. Please help if you can & share. gofund.me/06abf604

#disabled #disability #servicedog #crowdfund #chronicilless #spoonie #autism #asd #epilepsy

Last updated 3 years ago

donkey jess · @adonkumentary
55 followers · 139 posts · Server ohai.social

I just put up a new post about the complexities of especially when it's compounded with .

I wrote it & posted it for you: you or maybe perfectly healthy individual who just feels stuck & shitty right now. I don't have answers, I just have hands to extend to you, hoping that helps you feel seen. You're not alone.

Read it here:
adonkumentary.com/2023/01/20/s

#blog #healing #medicaltrauma #spoonie #chronicilless #chronicallyill #ptsd #writerscommunity

Last updated 3 years ago

Ashenwave · @ashenwave
957 followers · 335 posts · Server mastodon.art

Being a chronic migraine sufferer has marked my life and limited my art time. Imagine getting one for every illustration you make. That’s a price some people have to pay to do what they love :/

Anyway, here’s another migraine-inspired illustration✨
It has no title yet so I’m open to suggestions :)

#surreal #chronicilless #AshenwaveArt #MastoArt

Last updated 3 years ago

the ptsd, mental illnesses, a personality disorder, and being doubly neurodivergent (triple! Counting ptsd) not to mention now I’m disabled and chronically ill… laughs at what I felt was rough then. I mean it wasn’t easy most people didn’t have to deal with what I did by the time I was 18 in 2011. But now I can honestly say there’s no way I could have possibly even begun to imagine how the last decade has went.

#cptsd #ptsd #MentalIllness #mentalhealth #neurodivergent #adhd #pots #chronicilless

Last updated 3 years ago

Kōtare · @jdmcg
114 followers · 209 posts · Server mastodon.nz

I've always been someone who likes to get stuck in. A year ago I was still volunteering across 4 different non-profits, and providing services pro bono to several others. Chronic illness has meant I have to take a step back. I just don't have the energy - but I still have the ambition. I need help re-routing my efforts into low energy, but high impact activity. Any thoughts? I favor environmental and social justice causes, particularly around healthcare.

#volunteering #chronicilless #wokerati

Last updated 3 years ago

beta · @beta
2 followers · 17 posts · Server fedisabled.social

When you honestly answer the question about how your weekend was and just get a weird look.
I'm sorry I don't have anything *great* to tell you.

Wenn du die Frage, wie dein Wochenende war ehrlich beantwortest und dafür nur einen komischen Blick erntest.
Sorry habe ich die nichts *tolles* zu erzƤhlen.

#mecfs #chronicilless #chronischKrank

Last updated 3 years ago

donkey jess · @adonkumentary
50 followers · 116 posts · Server ohai.social

"...Worst, is when the emergent part of the whole ordeal seems to have passed & now you're sitting in a pile of trickling down dust settling around you. They talk about the calm before the storm, but they don't talk much about the quiet after it..."

^^from a longer post on my IG acct abt from 2 major surgeries. I wrote it bc especially as women, so much is expected of us when really, we must rest.

The rest here ā¬‡ļø
instagram.com/p/CnFBmSCrf6U/?i

#healing #chronicilless #spoonie #medicaltrauma #cat

Last updated 3 years ago

Elric Wolfsbruder · @wolfsbruder
33 followers · 51 posts · Server babka.social

This is for anyone who needs to hear it.

#disabed #neisvoid #chronicilless

Last updated 3 years ago

I have a G-J tube and have been venting blood from the G tube for over a week. Second holiday weekend in a row that I have been sent to the ER for the same stomach bleed. First time they released me after the blood flow stopped and told me to follow up with my GI. He is on vacation and I don't see him until 1/17. Meanwhile, I sit in a crowded ER when what I really need is a fix, not a series of band aids.

#gastroparesis #NEISvoid #chronicilless

Last updated 3 years ago

donkey jess · @adonkumentary
41 followers · 102 posts · Server ohai.social

@TrisResists oh my gosh I'm so happy for you! I hope this leads to relief as you heal ā¤ļøā¤ļø I have too and can understand very long battles. Celebrate your wins and thank you for sharing with all of us! Much love to you ā¤ļøšŸ«€

#chronicilless

Last updated 3 years ago

Ruthanne · @ruthannereid
93 followers · 50 posts · Server creativewriting.social

I am vaccinated. I have been careful.

It still got me. Again.

Le sigh.

#covid19 #immunocompromised #chronicilless

Last updated 3 years ago

Hello

We are just setting up but we are a mask mutual aid group that aims to ensure everyone who wants masks but can't afford them, gets them.

Everyone and anyone should be aiming to mask with or without mandates because is getting more deadly as it continues to mutate unmitigated, not just for their own health but the health of their family, friends, flatmates etc.

We will be taking donations for both masks and air purifiers in order to redistribute them to people who can't afford them.

We will be taking physical donations as well as monetary donations once we have that end set up. We are located in wellington but please feel free to start a chapter in your location too if you are elsewhere.

We aim to bring clean air and good quality masks to everyone who needs or wants them.

Email maskmutualaidnz@gmail.com to donate physical masks and purifiers.
Email the same address to request a box of masks or purifier (not open for requests yet until donations begin coming in)

Monetary donations currently unavailable but we will accept prezzy cards or order requests direct.

Please for further reach.
(Available in Aotearoa NZ only, but please boost if you have friends from here)

#NZTwit #NZTwitter #nztwitts #nztwips #Aoteaora #ongoingpandemic #pandemicnz #COVID19nz #longcovidnz #LongCovid #nznorthisland #nzsouthisland #N95mask #nz95maskorbetter #chronicilless #CovidIsDisabling #covid #boost

Last updated 3 years ago

Kirstie Sivapalan · @kirsties
229 followers · 214 posts · Server mastodon.world

I have a friend who is sick and on her own in a London flat. She also has a chronic illness.
It got me thinking about 3 c's

Care
Compassion
Companionship

We all need this and especially when we are sick. There were so many mutual aid groups set up to help each other early in pandemic but what about now? People are still getting sick and if living on their own increasingly isolated. What help is there to provide those 3 C's?

#pwme #mutualaid #compassion #CARE #companionship #chronicilless

Last updated 3 years ago

Kirstie Sivapalan · @kirsties
233 followers · 260 posts · Server mastodon.world

I have a friend who is sick and on her own in a London flat. She also has a chronic illness.
It got me thinking about 3 c's

Care
Compassion
Companionship

We all need this and especially when we are sick. There were so many mutual aid groups set up to help each other early in pandemic but what about now? People are still getting sick and if living on their own increasingly isolated. What help is there to provide those 3 C's?

#pwme #mutualaid #compassion #CARE #companionship #chronicilless

Last updated 3 years ago