VerukaSalt · @VerukaSalt
14 followers · 105 posts · Server stranger.social
Hiisikoloart · @hiisikoloart
16 followers · 128 posts · Server writing.exchange

My naps are getting worse and worse due to the heat which is really detiriorating my health. I feel horrible.
There is no existance without a constant fan blowing to my face and drying my eyeballs, and a rag clinging to my hair that is getting brittle fron the constant wet-dry-wet-dry treatment. I smell of damp and misery.

AC's should be a human right at this point.
Every rent aparment should have one.

#disabledlife #finland #heatwave #climatechange

Last updated 1 year ago

Rachel Handley · @_RachelHandley
2064 followers · 1093 posts · Server eldritch.cafe

I've been awake for a few hours now, and I think that's quite enough*. I'm going back to sleep.**

*I have no choice. Fatigue is in charge of me today.

**Hopefully, I will wake up feeling able to write.

#disability #disabledlife #disabled

Last updated 1 year ago

Gwenfar :plantmage6: · @GwenfarsGarden
447 followers · 14361 posts · Server rage.love

Being disabled is like: hey, it looks like life is a bit hard for you, how about we make it worse!

#disabledlife #disabled

Last updated 1 year ago

Luke Bonaccorsi · @codefoodpixels
152 followers · 172 posts · Server indieweb.social

I've been pretty quiet about it over the weekend but we're now £465 away from our target on the to get @QueenOfNaps a more suitable wheelchair!

We massively appreciate everyone who has donated and shared so far. We're hopeful that with the target amount and our savings, we can get Donna a suitable chair with the customisations that she needs.

If I could ask folks to keep sharing, I would be extremely thankful!

gofund.me/72caabd2

#disabledlife #accessibility #wheelchair #disability #gofundme

Last updated 1 year ago

Luke Bonaccorsi · @codefoodpixels
153 followers · 169 posts · Server indieweb.social

We are £505 away from our target on the to get @QueenOfNaps a more suitable wheelchair!

Donna and I are honestly astounded by the response, thank you so much to everyone who has donated and shared so far.

We're so close now, any donations or shares would be massively appreciated!

gofund.me/72caabd2

#disabledlife #accessibility #wheelchair #disability #gofundme

Last updated 1 year ago

Dermot Devlin · @castledd
165 followers · 99 posts · Server mastodon.ie

Here we are, everybody, at the end of 2022. Tomorrow is a new day, a new month, and a new year full of new challenges and new things to work up towards.

Happy New Year and a prosperous 2023.

youtu.be/_Jpt1QCDi9g

#mywayaccess #disabled #disabilityawareness #disabledpride #disabledlife #DisabledRights #newyearseve

Last updated 2 years ago

Miss Fidget · @missfidget
57 followers · 124 posts · Server toot.community

folks i trust often call me brave. i aspire to be a marshmallow, soft shell crab, fumble finger, useless shrug n smiler. To be good enough w people to not scare them away before i can ask for help…

night n day w food poisoning bailing water from the tub to tank cuz i turned water main off after saw 1/2 bath feed line valve failing leaking when checking vulnerable plumbing before cold snap which means water wont be flowing thru most likely to freeze pipe 🤞🍀

#nextadventure #disabledlife #exhale

Last updated 2 years ago

Orion (they/he) · @OfFigsAndFerns
32 followers · 128 posts · Server disabled.social

Oh btw for fellow spoonies in the U.S. - these pouch meals (and others like them) are fantastic for the days where you have no energy to prepare a meal and don't even want to get a pot/pan dirty. You microwave them in the pouch so you don't even need a bowl! These ones are all under $3, EBT-eligible, and available on Walmart's website if you need to avoid risking covid

#spoonie #spoonies #spoonielife #spoonietips #disability #disabilities #disabled #disabledlife #disabilitylife #chronicillness

Last updated 2 years ago

Dermot Devlin · @castledd
137 followers · 71 posts · Server mastodon.ie

What a lovely end to the celebrations.

Thank you Big Telly NI, Nuala Toman & Disability Action for the stage.

My beautiful bride Joanne Sansome was wonderful.

Big shout outs to Christinr McClements, Paula McIntyre, Shaun Blaney, Tony O'Reilly, Greta Gurk and all our guests.

#IDPWD #disabled #disability #disabledinclusion #disabledlife

Last updated 2 years ago

Marloes · @peanutcheese
136 followers · 175 posts · Server neurodifferent.me

One of the biggest sads for me in this is not being able to see my people as much and as spontaneous as I'd like to. I haven't seen my casual date since April this year. I can only see my non-nesting partner every few weeks or months due to the burden of crossing the distance being on them. I barely see my parents or most of my friends. I miss my people. I miss their easy and loving company. I wish I had more spoons.

#disabledlife

Last updated 2 years ago

Dermot Devlin · @castledd
117 followers · 57 posts · Server mastodon.ie

Four long Zoom meetings today, and I'm laying in bed tonight with terrible back pain.

#DisabilityTwitter #chronicpain #disabledlife

Last updated 2 years ago

Mari · @Lark
38 followers · 95 posts · Server mastodon.lol

I need every person who doesn’t mask to understand that you’re dangerous. You are literally putting my life and countless other lives- including your own- at risk. You are literally contributing to and by spreading . Obv someone who’s forced to work without a mask isn’t the same as someone who blithely goes everywhere without a mask or only masks on public transit. But the end results are the same. Disabled people can’t live full lives.

#death #disability #COVID19 #DisabledMastodon #disabledlife

Last updated 2 years ago

Dermot Devlin · @castledd
73 followers · 37 posts · Server mastodon.ie
Dermot Devlin · @castledd
73 followers · 37 posts · Server mastodon.ie

Visualisation representation of my chronic pain flares this weekend. A lot of disabled people live their lives in constant pain. We accept that, with live with that and get on with life.

When we say we are in pain, just know it means we are in A LOT of pain.

#chronicpain #disabled #disabledlife #disabilityawareness

Last updated 2 years ago

Thanks to some good luck and loving friends, I have a Dolce Gusto coffee machine arriving today! (Its the cute little Piccolo model).

I have an old Tassimo, but the pods are so expensive. DG compatible pods are less than half the price of Tassimo pods. (You can only get official Tassimo pods, there aren't any compatible pods, whereas you can find supermarket own brand Dolce Gusto compatible pods)

All of this means I can afford to have tasty coffee again, and all without having to go up and down the stairs every time!

Seriously if you struggle with stairs, and you can afford it, I absolutely recommend getting a little coffee machine for the bedroom. It's a total game changer.

#disabledlife

Last updated 2 years ago

Bex · @Faeribex
12 followers · 35 posts · Server mastodon.ie

I may have grown up in the late ‘90s and early 2Ks but I’m glad I’m glad I didn’t grow up in this teeny square handbag version of the 90s/2Ks that seems to be everywhere

#twobagbex #disabledlife #tracheostomy

Last updated 2 years ago

Today I have washed some dishes, ironed some shirts, *and* brushed my hair. I am on fire!

#disabledlife

Last updated 2 years ago

Zee · @zyz
15 followers · 382 posts · Server mas.to
Professor Pius :verified: · @piusbird
91 followers · 905 posts · Server tilde.zone

I am starting a new hashtag well it has 1 post from six months ago. So yeah newish. Anyway with all the new people around I wanna invite oldtimers to share what this community has meant to them over the years

I'll start the Fedi made me realize that my disability was not my vocation, that I could have a life apart from the pain and the daily fights with bureaucracy. That i actually got to have a sense of self, dignity, personal autonomy . In short that there was more to life than the struggle for my daily bread. or to put it in hashtag terms

Could be

#ThanksFedi #disabledlife #bestlife

Last updated 2 years ago