I'm at the AGM for the #Lymphoedema Support Network today and have just found out there's apparently a lymphatic system around the brain which could have all kinds of implications for understanding Alzheimer's and those with lymphoedema - fascinating!
#science #brains #lymphatic #lymphoedema
For anyone interested, you can find out about and sign up to the research project here:
https://ourfuturehealth.org.uk/
People with #lymphoedema are accepted so long as you're happy to have your blood pressure / blood taken!
I visited the vampires today to contribute to a massive health research project and absolutely floored the tester when I answered 'yes' to one of the routine opening questions. At least he knew enough to know that #lymphoedema is *not* the same as lymphoma which is my usual issue!
We had a lovely chat about 'stevie the squeezie sleevie' and how my body is a sponge not a balloon. Though it's hard to say if any of the metaphors worked!
RT @CebolaLab
π’π’ Calling all students interested in human disease #Genetics & epigenomics! MRes-PhD studentship to study genetic causes of primary #lymphoedema at @birdseylab @CebolaLab @imperialcollege. Applications accepted until Feb 20. Informal queries welcome. https://www.findaphd.com/phds/project/the-contribution-of-erg-noncoding-variants-to-primary-lymphoedema/?p154562
My wife and I attended her #Lymphoedema #clinic this morning.
Delighted to find that my efforts at #massage & #lymphdrainage have brought her back to #green
Sometimes?
It's the #SmallWins that matterπ
#CancerSucks so take any #victory you can
Thanks to the #Limerick #PhysioTeam
#physioteam #limerick #victory #cancersucks #smallwins #green #lymphdrainage #massage #clinic #lymphoedema
Think I have now safely landed here as #twitterrefugee. To celebrate, here is a recording made by The #Lymphoedema choir that I sing with: https://www.youtube.com/watch?v=7kT7EynjP5o
RT @loose_facts@twitter.com
Don't judge people with invisible pain. be kind.
@looseFACTS@twitter.com #EDS #hEDS #HSD #ehlersdanlos #lipedema #lipeodema #lymphoedema #lymphedema #migraine #POTS #dysautonomia #PTSD #anxiety #depression #mentalhealth #raynauds #invisibleillness #invisibledisability #stoppillshaming
π¦π: https://twitter.com/loose_facts/status/1447155072698359811
#eds #heds #HSD #ehlersdanlos #lipedema #lipeodema #lymphoedema #lymphedema #migraine #pots #Dysautonomia #ptsd #anxiety #depression #mentalhealth #raynauds #invisibleillness #invisibledisability #stoppillshaming