Paul Chambers · @paul
1602 followers · 7754 posts · Server oldfriends.live

@jwcph While agree that their supporters might not think this, the framers of this plan and many of the other House GOP members that back it, are of the Ayn Rand persuasions... the weak either live or don't.

Also, by making disabled people wait 5 years, they get sicker and require more care by then. There's no net gain for Medicare, just 3 additional years of suffering.

I lost everything waiting the two-years, got sicker & became more dependent due to my

#parkinsonsplus #multiplesystematrophy

Last updated 1 year ago

Paul Chambers · @paul
1595 followers · 7726 posts · Server oldfriends.live

Follow @penny's and my at @3SistersEnglishGarden account.

We toot post our progress.

We are trying different methods of gardening so I can physically help despite my , and other issues that have hindered my gardening in the most recent years.

Latest post:
oldfriends.live/@3SistersEngli

#3sisters #garden #parkinsonsplus #mobility #autonomicdysfunction #parkinsons

Last updated 1 year ago

Paul Chambers · @paul
1581 followers · 7603 posts · Server oldfriends.live

I'm sooo sleepy. My sleep schedule is messed up right now as we had to adjust my meds to deal with summer issues with my .

I am sleeping like a newborn right now

It's been neat spending time on my Mastodon timeline at hours different than.my normal times online with the timeline being in chronological order

Still, I have had several mutuals reach out to make sure I was ok as my absence was odd during my normal timeline time

I go through this in winter, too

#parkinsonsplus #parkinsons

Last updated 1 year ago

Paul Chambers · @paul
1539 followers · 7333 posts · Server oldfriends.live

@SecularJeffrey

I never had a problem with . I even once grew poison ivy inside by accident because I thought it was a beautiful vining plant. It almost killed my wife of 34 years, then girlfriend, when she had a reaction to the vine that was growing in my kitchen during the date where I cooked for her the first time.

As my gets worse, I've developed severe allergies to and so many other things. My brain just can't mitigate the stimuli.

#allergies #parkinsonsplus #autonomicdysfunction #pollen

Last updated 1 year ago

Paul Chambers · @paul
1519 followers · 7076 posts · Server oldfriends.live

We're acclimating my from to , & it takes a toll on me.

Without going into too much detail, but I'm always open to , my system, the things your body does on its own, is shot.

Season changes means adapting to new stimuli, like heat, allergens, etc.

Reactions to stimuli includes passing out, dangerous blood pressures, heart issues, etc.

We're slowly introducing my body back to the new season, adjusting meds, etc

#parkinsonsplus #winter #summer #ama #autonomic

Last updated 1 year ago

Paul Chambers · @paul
1469 followers · 6265 posts · Server oldfriends.live

@thepoliticalcat

Thanks. I need to keep all the healthy gray matter I have since I have a form of ( )

#parkinsons #parkinsonsplus #multiplesystematrophy

Last updated 1 year ago

Paul Chambers · @paul
1448 followers · 6155 posts · Server oldfriends.live

I feel healthier since my to .

Not in an elitist way but the topics are so broad, and not focused on one evil subject. We still get that in but then you have the pure, refreshing content.

You get into disagreements and discussions, but they usually end with a follow or at least ends without battle scars and wounds.

My skills get tested due to my on a regular basis.

Twitter was physically & cognitively injuring me.

#twittermigration #mastodon #parkinsonsplus

Last updated 1 year ago

Paul Chambers · @paul
1448 followers · 6136 posts · Server oldfriends.live

The 50 degree F weather swing has my muscles playing havoc on me

Had a bad one around the collarbone muscles. The neck ones scare me. Before the spinal pump with continuous Baclofen, I got broken bones from muscle spasms

I've had to take "bolus" doses of my Baclofen via my spinal pump &my muscles are Loosey-Goosey, like jelly

Luckily, I have a bubble butt so as I "fall" forward, it plops me back up, like one of those toy punching clowns

#parkinsonsplus #multiplesystematrophy #medmastodon

Last updated 1 year ago

Paul Chambers · @paul
1434 followers · 5993 posts · Server oldfriends.live

Little Bit, my , saved my life today

I was napping in my lift chair on the other side of the house when he relentlessly woke me up. Penny, my wife, was gone to store and I was by myself

There was an electrical fire with a fan.

I am not too mobile due to my . For their entire lives, my two have lived in a homebound human's house. Not sure if their behavior is different due to that, but they hoover over me 24/7

He won't leave my side tonight. ❤️

#catsofmastodon #parkinsons #parkinsonsplus #cats

Last updated 1 year ago

Paul Chambers :chambers: · @paul
1376 followers · 5224 posts · Server oldfriends.live

My is rough on desktop computer mice. I think I am going to have to setup 'subscribe and save' for the mouse and get a new one every couple months.

Need to figure out something.

Serious . Send me links and suggestions for an ''industrial strength' computer mouse that will take abuse, please.

.

#parkinsons #parkinsonsplus #gamersofmastodon #gaming #gamers #videogame #videogames #gamingcommunity

Last updated 1 year ago

9 o'clock Hashtag Games · @hashtaggames
364 followers · 2661 posts · Server oldfriends.live

🎶 Amandine By Morning

of Romania. Amadine is a chocolate layered cake filled with chocolate, caramel &fondant cream

Off topic, we've had 513 unique players playing at least one of our 9 o'clock over the past 7 days

Thank you, everyone. To see our past games, go to our profile & click on Media

Special thanks to my wife @penny who helps me out on the evenings when my takes it toll on me. Typing, liking, boosting, etc.

~ @paul

#songsormoviesaboutcake #hashtaggames #parkinsons #parkinsonsplus

Last updated 1 year ago

Paul Chambers :chambers: · @paul
1332 followers · 4566 posts · Server oldfriends.live

Jake was my . He lived 16 years. We are approaching the second year of his passing over the

Miss him every day. I was privileged to have such a best friend as Jake

I made a . My piano skills are gone, I'm extra stiff with my hands and fingers ❤️

🎶 What'll I do
When you are far away
And I am blue

🎶 What'll I do with just a photograph
To tell my troubles to?
When I'm alone
With only dreams of you
That won't come true
What'll I do?

#toypoodle #rainbowbridge #tribute #parkinsonsplus #dogsofmastodon

Last updated 1 year ago

Paul Chambers :chambers: · @paul
1324 followers · 4440 posts · Server oldfriends.live

I have , ( ) with severe autonomic dysfunction.

I understand a lot of doctors treating don't understand 's, esp POTS.

Speaking as a long-time sufferer, for they really should look at using (brand name ).

It has been the best relief I've received in the past decade.

The quality of my life improved after I started taking Mestinon.

Significantly decreased my syncope and pre-syncope.

#parkinsonsplus #multiplesystematrophy #msa #longcovid #dysautonomia #pots #pyridostigmine #mestinon

Last updated 1 year ago

Paul Chambers :chambers: · @paul
1287 followers · 4342 posts · Server oldfriends.live

So excited about 's integration. Can't wait for it to come to .

FlipBoard is one of the news reading apps that I can use flawlessly with my

I'm so excited, can't wait!

🔗 'Connect Your Mastodon Account to Flipboard and Join a Federated Future' via @Flipboard By Mia Quagliarello

about.flipboard.com/inside-fli

#flipboard #mastodon #android #parkinsons #parkinsonsplus

Last updated 1 year ago

Paul Chambers :chambers: · @paul
1187 followers · 3260 posts · Server oldfriends.live

They say there is a silver lining in nearly every bad thing if you look beyond your grief, hurt, fear & bias. That tragedy can bring the best of human spirit

Those of us with pre-covid see that happening with

An enormous amount of research is finally happening because of

Many of us paved the way to the early diagnostics & treatments that long sufferers are getting, but long may, in turn, be our healing grace

It gives

#dysautonomia #covid19 #longcovid #covid #hope #parkinsonsplus #msa

Last updated 2 years ago

Paul Chambers :chambers: · @paul
1206 followers · 2916 posts · Server oldfriends.live

assumed her nightly position & purring so loud

Such a joy & relaxer. It does something for my to have such as great nurse like Sissy

This is a Two-fer hashtag toot

For , the home pharmacy in background is to keep my system in check. Nothing major pharmaceutical wise, just things that make you poo and pee, blood pressure medications & meds to keep other automatic things my body doesn't do now working

#sissy #catsofmastodon #health #medmastodon #autonomic #parkinsonsplus #multiplesystematrophy

Last updated 2 years ago

Paul Chambers :chambers: · @paul
1191 followers · 2666 posts · Server oldfriends.live

10, 15 years ago, I could have replaced my roof for the cost of materials and hired day laborers or buddy's, beer & BBQ

Now deprives me of that and it's going to cost dearly. Another hidden expense not taken into consideration

Over time, we've been replacing the roof as money is saved, esp the flat roof

Now we must roof the last of it, the largest

If you can spare $2.00. :paypal: PayPal.me/FeedingTubePaul

About Me :chambers: Chambers.pw

#parkinsons #parkinsonsplus #disability

Last updated 2 years ago

Paul Chambers :chambers: · @paul
1164 followers · 2404 posts · Server oldfriends.live

Got a text reminder for a doctor's appointment for one of my specialists.

This is about as personable as his appointment confirmation text reminder.

But they get the job done. I guess that is all that matters.

#parkinsonsplus #doctor #medmastodon

Last updated 2 years ago

Paul Chambers :chambers: · @paul
1158 followers · 2327 posts · Server oldfriends.live

Part 2/ sitting on my shoulder is kind of our thing.

It doesn't matter where I sit when I first get up. In the office or in the living room, she plops on my shoulder.

On days where I have to stay in bed because of my , she climbs up on the elevated head of my bed and slides down into position when I first wake up.

#sissy #parkinsonsplus #caturday #catsofmastodon #cats

Last updated 2 years ago

Paul Chambers :chambers: · @paul
1111 followers · 1583 posts · Server oldfriends.live

For 10 years, I've consumed nothing but feeding tube formula through a feeding tube. Can't swallow food or liquids.

Turns out, the calories in my "complete, balanced nutrition with fiber" prescription food comes from corn syrup, canola and corn oil.

I now have to add a diabetes medication because my glucose level and A1C is above normal.

#feedingtube #health #healthcare #medication #diet #nutrition #parkinsons #msa #parkinsonsplus

Last updated 2 years ago