Soheb · @soheb
72 followers · 1638 posts · Server pkutalk.com

Just done the blood spot. Very happy with the blood spot circles!

#pku #phenylketonuria #phenylalanine #bloodspot #bloodspots #blood

Last updated 2 years ago

Soheb · @soheb
60 followers · 1451 posts · Server pkutalk.com

I tried this can of Green Cola - Sour Cherry flavour.

I'm not one for sweet things or fizzy drinks, but WOW!

This was so good! It also has no sugar and no aspartame!! Good stuff, I really enjoyed it!

#pku #phenylketonuria #phenylalanine #softdrink #fizzydrink #nosugar

Last updated 2 years ago

Soheb · @soheb
60 followers · 1449 posts · Server pkutalk.com

Completely forgot to share this - PKU scrambled eggs I fried a few days ago!

With a bit of salt and pepper, it was delicious!!

#pku #phenylalanine #phenylketonuria

Last updated 2 years ago

Soheb · @soheb
47 followers · 1366 posts · Server pkutalk.com

I miss sushi so much now that I'm behaving and on-diet.

What PKU foods do folks miss?

#pku #pcu #phenylketonuria #phenylalanine #phenylcetonurie #lowprotein #diet #health #nhs

Last updated 2 years ago

Soheb · @soheb
46 followers · 1298 posts · Server pkutalk.com

New blood spots!

First finger prick didn’t get too much blood out. The second one did the trick.

Given how the second finger (my usual go-to finger) is hurting and the other one feels like nothing happened to, I would say I probably didn’t put the needle close enough to the finger. Oh well.

#pku #pcu #bloodspots #bloodspot #blood #phenylketonuria #phenylcetonurie #phenylalanine #health #nhs #lowprotein #diet #lowproteindiet

Last updated 2 years ago

Soheb · @soheb
46 followers · 1284 posts · Server pkutalk.com
Soheb · @soheb
45 followers · 1218 posts · Server pkutalk.com
Soheb · @soheb
42 followers · 1132 posts · Server pkutalk.com

If you haven't heard, @poconnor is donating half of her profits from "Living with PKU" to the NSPKU - a fantastic charity that helps people with the rare disorder called PKU!

And if you buy both of her books, you get 25% off!

Get her books here now:

pigpen.page/books/

Also, please boost! Boosts are incredibly welcome!!

#phenyketonuria #phenylcetonurie #phenylalanine #book #books #bookstodon #pku #metabolic #metabolicdiet #metabolicdisease

Last updated 2 years ago

Soheb · @soheb
42 followers · 1024 posts · Server pkutalk.com
Soheb · @soheb
42 followers · 1023 posts · Server pkutalk.com

Don’t mind me, I’m just depressing myself by reminding myself there was low protein sausages and meat balls through alternative vegan stores that are effectively no longer being sold.

I think the Hooba Foods company got bought out by some bigger fish who hasn’t made a single Hooba product 🫠

#pku #phenylalanine #phenylketonuria #lowprotein #vegan #vegetarian #diet

Last updated 2 years ago

Soheb · @soheb
40 followers · 1005 posts · Server pkutalk.com

A question to the PKU community:

What would you say to parents who have just discovered that their child has PKU?

#pku #phenylketonuria #parenting #parents #lowprotein #metabolic #phenylcetonurie #phenylalanine

Last updated 2 years ago

StructBiolCommunications · @ActaCrystF
44 followers · 52 posts · Server mstdn.science

Two N-acetyl-(R)-β-phenylalanine acylases were expressed and found to be dimeric in solution. One was structurally analyzed and compared with the large subunit of N,N-dimethyl­formamidase.  doi.org/10.1107/S2053230X23000

#nacetylrphenylalanineacylase #phenylalanine

Last updated 2 years ago

We love you Carb0naut! ☺️🙌🏼 Don’t change too much. 🙏🏻😅
*
Nous t’aimons Carb0naut ! ☺️🙌🏼 Ne change pas trop. 🙏🏻😅

instagram.com/reel/CpYXLoYshKM

#phenylketonuria #pku #phenylalanine #lowprotein #lowcarb #lowproteindiet #lowproteinfood #phenylcetonurie

Last updated 2 years ago

We love you Carb0naut! ☺️🙌🏼 Don’t change too much. 🙏🏻😅
*
Nous t’aimons Carb0naut ! ☺️🙌🏼 Ne change pas trop. 🙏🏻😅

#phenylketonuria #pku #phenylalanine #lowprotein #lowcarb #lowproteindiet #lowproteinfood #phenylcetonurie

Last updated 2 years ago