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in a bubble (he/him) · @BubbleMan
21 followers · 47 posts · Server disabled.social

It's annoying the lengths I have to go to avoid smokers at a hospital. (Many, but not all, are hospital staff.)

People should know better, especially those who work in the field of medicine.

They don't understand that it's a huge accessibility issue for those of us with Mast Cell Disease and also Alpha-1 Antitrypsin Deficiency. (And for others, like COPD, asthma, etc.)

#NEISvoid #mcas #AATD #alpha1 #Alpha1AntiTryptsinDeficiency

Last updated 2 years ago
Original post

in a bubble (he/him) · @BubbleMan
12 followers · 14 posts · Server disabled.social

Just got my 5th vax shot (4th booster). It's the updated one.

I'm so fortunate my HaT + MCAS doesn't get in the way. My IgA, IgM, and Alpha-1 Antitrypsin deficiencies mean I need all the help I can get.

#mcas #MCAD #HaT #IgA #IgM #immunedeficiency #Alpha1AntiTryptsinDeficiency #AATD #vax #covid

Last updated 2 years ago
Original post

in a bubble (he/him) · @BubbleMan
0 followers · 1 posts · Server disabled.social

Hello ! Good to be here.

I'm often stuck inside, but when I venture out, I'm masked & distanced — even before COVID.

I've got lots of issues:
(),
(),
(),
(none) & (low) deficiencies,
,
and had (, stage IV)

I have problems (likely ), and ().

I probably also have: &

And perhaps:

#NEISvoid #HaT #HeriditaryAlphaTryptasemia #mcas #MastCellDisease #AATD #Alpha1AntiTryptsinDeficiency #IgA #IgM #Migraine #cancer #ColonCancer #hypermobility #eds #heds #pots #tachycardia #autism #adhd #AnkylosingSpondylitis

Last updated 2 years ago
Original post

in a bubble (he/him) · @BubbleMan
0 followers · 1 posts · Server disabled.social

Hello world! Good to be here.

I'm usually stuck inside, but when I venture out, I'm masked and distanced — even before COVID.

I've got lots of issues:
(),
(),
(),
(none) & (low) deficiencies,
,
and had (, stage IV)

I have problems (likely ), and ().

I probably also have: &

And perhaps:

#HaT #HeriditaryAlphaTryptasemia #mcas #MastCellDisease #AATD #Alpha1AntiTryptsinDeficiency #IgA #IgM #Migraine #cancer #ColonCancer #hypermobility #eds #heds #pots #tachycardia #autism #adhd #AnkylosingSpondylitis

Last updated 2 years ago
Original post