Cat on a Table with a Cup and Overly Distraught People 1/2
- charcoal sketch
Trying again to get back into the swing of things after a protracted relapse of sorts. Truth be told it wasn’t a relapse per se. My MS doc has informed me that I have been promoted to Secondary Progressive. The symptoms can at times be quite debilitating now there doesn’t need to be a relapse to bring them on; everything just kind of smolders there …
#carchoalsketch #ata188 #spms #ppms #cats #adlaiburman #MSChat

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#carchoalsketch #igartists #multiplesclerosisresearch #ata188 #spms #ppms #msartist #multiplesclerosisart #cats #adlaiburman #adlaiburmanimages

Oct 31 2022 article on ECTRIMS’ poster on #ATA188 and #MultipleSclerosis

(I missed this write up previously).

This is the trial I am in. They are expanding recruitment to RRMS soon.

I’m happy to answer any questions about my experience. — I am still “blinded” in the trial.

https://multiplesclerosisnewstoday.com/news-posts/2022/10/31/ectrims2022-ata188-still-easing-disability-progressive-ms/

#MultipleSclerosis #MSChat

#ATA188 trial update

👉🏼Update after EDSS exam.

EDSS examiner thought my exam looked much better than last time he saw me; but no specific details.

Day 185 since 1st transfusion. Feel great - except when I don’t. Typical #MS sx triggers - virus fatigue travel cold temp etc.

@LomelindiMS

The study
is to find the first ever medication for nonactive Ptogressive MS.

The drug trial Is by Atara Biotherapeutics anti EBV T cell transfusions. #ATA188

They are starting a trial for relapsing #MS. See. Link. https://multiplesclerosisnewstoday.com/ata188/

#MultipleSclerosis #MSChat

@StephZihms

I’m glad to see you in our MS community. Expand the reach of your post by using #MultipleSclerosis or #MSChat.

I had my first MS relapse in 1984 while in army ROTC camp. Left the army as JAG Officer in 1997 due to MS fatigue and relapses that went undiagnosed til 2016.

Retrained as a counseling psych but left for good in 2016 after bad relapse.

Now inactive SPMS and in the #ATA188 EBV T cell transfusion trial.

#MultipleSclerosis #MSChat #ATA188 trial update.

Day 185 since 1st transfusion. Feel great - except when I don’t. Typical #MS sx triggers - virus fatigue travel cold temp etc.

I traveled to Denver (13 F; -10 C) while I’m fighting a virus (not Covid). Bad sleep.

The sidewalks are covered with 3” snow and there’s a severe weather alert!

Both my Neuro + Study Manager took off early for T-day.

I need to find out if the substitutes + MRI tech will make it in for EDSS.

AAGH! Bit of a whinge.

Hello!

Thank you much for looking in.

I am particularly interested in #ArmChairTravelling and #StreetPhotography due to my #Disability with #MultipleSclerosis and my participation in the drug trial for #ATA188 #EBV #TCells and #Neurology. #ATARABIO.

Please boost the #MultipleSclerosis hashtag so we can come together as PwMS, medical personnel and researchers to share info and expertise.

You are welcome to check my #ATAUpdates on my #SPMS progress and my #StreetPhotography on my profile page.

@jsabatino37 Hi Joe, I have non active SPMS and an in the AtaraBio drug trial of #ATA188 t-cell transfusions.

Happy to have your experience here and I’ll answer any questions you have. If you search #ATA188 my update posts should appear.

Best wishes

Anne

Looking for #neurologists, #neuroscience, #journals, people with interest in #MultipleSclerosis, #MS #MRI #ClinicalTrials, #research, #ATA188 to follow and connect.

#Introductions

Hi! Long term person with #MultipleSclerosis. #SPMS. I’m in the #Atarabio #ATA188 trial and looking for my community.