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Dr Ian Kellar · @driankellar
472 followers · 98 posts · Server fediscience.org

First exacerbation for ages. First time I've had to resort to postural drainage on top of huffing and other breathing techniques. Mask wearing has kept my lungs clear, but family time over Xmas couldn't be fixed with a HEPA filter running. Considering paying for percussive massage as I find it too grim to do with a partner.

#Alpha1AntiTryptsinDeficiency #bronchiectasis

Last updated 2 years ago
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in a bubble (he/him) · @BubbleMan
21 followers · 47 posts · Server disabled.social

It's annoying the lengths I have to go to avoid smokers at a hospital. (Many, but not all, are hospital staff.)

People should know better, especially those who work in the field of medicine.

They don't understand that it's a huge accessibility issue for those of us with Mast Cell Disease and also Alpha-1 Antitrypsin Deficiency. (And for others, like COPD, asthma, etc.)

#NEISvoid #mcas #AATD #alpha1 #Alpha1AntiTryptsinDeficiency

Last updated 2 years ago
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in a bubble (he/him) · @BubbleMan
12 followers · 14 posts · Server disabled.social

Just got my 5th vax shot (4th booster). It's the updated one.

I'm so fortunate my HaT + MCAS doesn't get in the way. My IgA, IgM, and Alpha-1 Antitrypsin deficiencies mean I need all the help I can get.

#mcas #MCAD #HaT #IgA #IgM #immunedeficiency #Alpha1AntiTryptsinDeficiency #AATD #vax #covid

Last updated 2 years ago
Original post

in a bubble (he/him) · @BubbleMan
0 followers · 1 posts · Server disabled.social

Hello ! Good to be here.

I'm often stuck inside, but when I venture out, I'm masked & distanced — even before COVID.

I've got lots of issues:
(),
(),
(),
(none) & (low) deficiencies,
,
and had (, stage IV)

I have problems (likely ), and ().

I probably also have: &

And perhaps:

#NEISvoid #HaT #HeriditaryAlphaTryptasemia #mcas #MastCellDisease #AATD #Alpha1AntiTryptsinDeficiency #IgA #IgM #Migraine #cancer #ColonCancer #hypermobility #eds #heds #pots #tachycardia #autism #adhd #AnkylosingSpondylitis

Last updated 2 years ago
Original post

in a bubble (he/him) · @BubbleMan
0 followers · 1 posts · Server disabled.social

Hello world! Good to be here.

I'm usually stuck inside, but when I venture out, I'm masked and distanced — even before COVID.

I've got lots of issues:
(),
(),
(),
(none) & (low) deficiencies,
,
and had (, stage IV)

I have problems (likely ), and ().

I probably also have: &

And perhaps:

#HaT #HeriditaryAlphaTryptasemia #mcas #MastCellDisease #AATD #Alpha1AntiTryptsinDeficiency #IgA #IgM #Migraine #cancer #ColonCancer #hypermobility #eds #heds #pots #tachycardia #autism #adhd #AnkylosingSpondylitis

Last updated 2 years ago
Original post