Found out someone I know also has AS. A mixture of oh hey no way, I have that! And just....overwhelming sorrow and sympathy for them. #axialspa #AnkylosingSpondylitis #disability

This is my second time making an #introduction post on Mastodon.

I'm basically a geeky disabled #trans woman (she/her).

I'm a fan of electronic music, especially #industrial and #synthpop. I really love #StarTrek :TransDelta:. I've started to have an interest in manga and anime. And I have a calculator collection.

I deal with multiple chronic conditions, including #ADHD, #AnkylosingSpondylitis, #RheumatoidArthritis, #seizures, and #migraine.

Most importantly, I love cats and have 4 of them.

Every morning now, I wake up and immediately have to crack my left SI joint.

I usually employ a belt or a book. Open to exercises that would prevent the need for this :')

#ankylosingspondylitis

Save the Dates - May 5-6 - Annual 2023 Global #Spondyloarthritis Summit hosted by Spondylitis Association of America.

I'm pleased to say I'm covering this event again for the SAA.

#SpA topics:
💙 Flares & Possible Triggers
💙 SpA Research Updates
💙 Sleep Issues
💙 Women & SpA
💙 Diet & Nutrition
💙 Surgery & Joint Replacement Recommendations
💙 Cardiovascular Disease
+ more

Register today:
https://spondylitis.org/.../saas-5th-annual-global.../

#SpondySummit #Spondylitis #axSpA #AnkylosingSpondylitis #PsA #ArthritisAwareness

Gearing up for April and some HUGE announcements.

I might be a legit world-class weakling because of disabling arthritis, but I promise I am one of the toughest chicks you'll ever know!

🏷
#LifeWithPain #ItsNotJustArthritis
#ChronicIllness #ChronicPain
#axSpA #Spoonie #SickSelfie
#Spondyloarthritis #MyChronicLife #AnkylosingSpondylitis #StillSick
#Fibromyalgia #MECFS
#InvisibleIllness #disability
#ButYouDontLookSick #arthritis #DisabilityAwareness #ChronicallyFabulous

So. Hi! I'm Linzi. #Queer, #disabled #videoediting type person. I have an auto immune disease called #AnkylosingSpondylitis that means I take immuno suppressants. I love #bookstodon I play #dnd I love music, I'm an aspiring #writer occasional #guitar player, LOVE #dogs #streetart and #photography

[Automatic repost https://twitter.com/dystobot/status/1613605538851323921]

RT @LunaRivera96: Diagnosis Journey of Chronic Illness
#SLE #lupus #Fibromyalgia #chronicillness #cancer #diabetes #epilepsy #sjogrens #lymedisease #MultipleSclerosis #rheumatoidarthritis #raynauds #crohnsdisease #CRPS #osteoarthritis #ankylosingspondylitis #dystonia #Dysautonomia #Chiari https://t.co/30OzuFhccO

RT @MohamadBittarMD@twitter.com

#AxSpA #AxialSpondyloarthritis #AnkylosingSpondylitis #AS https://link.springer.com/article/10.1007/s11926-022-01096-0

🐦🔗: https://twitter.com/MohamadBittarMD/status/1611072820515069961

[Automatic repost https://twitter.com/dystobot/status/1609659536725446656]

RT @MommaJacy: @ChuckGartland1 @CMerandi #Dystonia #MECFS #Migraine #Fibromyalgia can all cause flares and all body pain attacks. Many like myself, have all of the above, and then some. Like #Scoliosis, #DDD, #CSpineStenosis #AnkylosingSpondylitis, and #POTS.

How Ankylosing Spondylitis Affects Your Oral Health | VeryWellHealth #AnkylosingSpondylitis #ChronicIllness #OralHealth #Teeth https://www.verywellhealth.com/ankylosing-spondylitis-and-teeth-problems-6828467

How Ankylosing Spondylitis Affects Your Oral Health | VeryWellHealth #AnkylosingSpondylitis #ChronicIllness #OralHealth #Teeth https://www.verywellhealth.com/ankylosing-spondylitis-and-teeth-problems-6828467

Thx for interviewing me @healthcentral@twitter.com on addressing pt’s worries about treatment for #AnkylosingSpondylitis ⁦⁩ https://www.healthcentral.com/article/ankylosing-spondylitis-treatment-fears-debunked

RT @drmapaley@twitter.com

We are thrilled to have been part of a multi-institutional, multidisciplinary group to identify disease-associated T cells in #AnkylosingSpondylitis & Anterior #Uveitis that recognize antigens presented by HLA-B27, published in @Nature@twitter.com. (1/9)

🐦🔗: https://twitter.com/drmapaley/status/1600552733790158873

RT @drmapaley@twitter.com

We are thrilled to have been part of a multi-institutional, multidisciplinary group to identify disease-associated T cells in #AnkylosingSpondylitis & Anterior #Uveitis that recognize antigens presented by HLA-B27, published in @Nature@twitter.com. (1/9)

🐦🔗: https://twitter.com/drmapaley/status/1600552733790158873

Today is International Disabled Persons Day.

I'm here. It sucks. It's nice to get a day and all, but I'm TIRED, y'all. I'm tired of pretending I'm OK. I'm tired of listening to euphemisms (I'm not "differently abled," I'm a mess).

And I'll still be #disabled tomorrow.

#InternationalPersonsWithDisabilitiesDay #deaf #ADHD #AnkylosingSpondylitis

"What happens to musicians when they have or acquire disabilities." A very special piece by Ria Andriani published on ABC Classic FM.
https://www.abc.net.au/classic/read-and-watch/music-reads/what-happens-to-musicians-with-or-who-acquire-disabilities/101684738
#neurodivergent #musician #musicians #Braille #Music #RiaAndriani #ABCClassic #ClassicalMusic #Viola #Cello #Piano #AnkylosingSpondylitis #spondylolisthesis #blind #Australia

My petition for med coverage: DENIED AGAIN.
Taiwan supports keeping pts disabled instead of helping w. access to meds for #axSpA & #AnkylosingSpondylitis.

15 years of disabling medical history doesn't count! My story is on MySeveralWorlds.com.
I'll leave it here: My knees in 2022

💙Arthritis affects 1 in 5
💙60% of arthritis patients are 18-64
💙Arthritis steals your life. I lost mine at age 34. I'm 48.
💙Arthritis is the #1 cause of disability

#ButYouDontLookSick
#MedMastodon #RheumMastodon

#ACAB #FUCKTHEPOLICE #ENDQUALIFIEDIMMUNITY
This is another example of Loveland Police in Colorado using Police Brutality to arrest a 14 year old girl for lightly slapping her 18 year old boyfriend during a breakup which took place in public at a Safeway when he was caught cheating on her. No one is safe from Police brutalty except elitists.

We need to keep Protesting and fighting these bastards. I'm 100% disabled because of the hard life I've had. I grew up homeless, sextrafficked, in and out of juvenile dentention for being a runaway. Arrested time and time again, targeted throughout my adult life. So many misdemeanors to count they have put me in jail for throughout my life. They assaulted me one time and almost killed me. The prisons were filthy and even though I was non-violent, It has never stopped me from expressing my 1st amendment.

They would put me in a hole with rats, mice, cockroaches, ringworm, lice, ect... I have severe PTSD, Anxiety Disorder, I'm autistic, I have 3 autoimmune diseases, and I caught hepatitis. I have been cured for 7 years but not before it destroyed my liver. Now I'm dying and on Hospice. I have #HepaticEncephalopathy #AnkylosingSpondylitis #Gout #Fibromyalgia

A broken back, broken feet, broken hands, and most of my teeth have been knocked out. My last encounter was 2006 and I have had Panic attacks ever since. Ive witnessed cops murder people in prison. I know people cops have murdered outside. My own cousin is a cop and I hate his ass too.

On to the video by @TheRealNews #TheRealNews

youtu.be/VKMSUaFXsw8

Well, I used up all my spoons this morning taking out the dog and making this beautifully styled breakfast.

Now I’m gonna watch Andor’s season finale and probably pass out.

#AS #AnkylosingSpondylitis #ChronicIllness #SpoonLife #Spoonie

Life pro tip: don’t use your laptop in this position if you don’t want to be in pain the next day. And especially don’t play videogames without a mouse.

You’d think I’d know by now what not to do, but apparently I don’t.

#AS #AnkylosingSpondylitis #ChronicPain #ChronicIllness #InvisibleDisability