Niamh Garvey · @niamhgarvey
695 followers · 2070 posts · Server mastodon.ie

Today I have for the 3rd time.

First time ended up in hospital via ambulance.

Second time was only 6 month ago.

Had a booster Vaccine this June.

I am a magnet to this disease.

Thats life on

#covid #immunosuppressants #AutoimmuneArthritis

Last updated 1 year ago

Niamh Garvey · @niamhgarvey
687 followers · 1914 posts · Server mastodon.ie

has flared and I am very annoyed by this. This summer my symptoms have been much better on higher doses of but suddenly yesterday the pain and immobility hit with a hard bang. Had planned nice things for the kids last week off school but alas, it is not to be. Fingers crossed I can get past this flare without steroids as they have side effects I prefer to avoid.

#AutoimmuneArthritis #immunosuppressants

Last updated 1 year ago

Niamh Garvey · @niamhgarvey
604 followers · 1354 posts · Server mastodon.ie

I want to spend ALL my time at the moment , but my body is suffering from even small amounts and it is making me cross.

In particular weeding is hurting my lower back, in the flower beds.

Thankfully I have extra tall raised beds for the vegetable growing.

Stupid and .

#gardening #heds #AutoimmuneArthritis

Last updated 1 year ago

· @niamhgarvey
427 followers · 665 posts · Server mastodon.ie

I would love if there was an extra hour between 11am and midday. My body and brain work best in the morning once the has loosened up, so morning is my time to tidy up, cook dinner in slow cooker, and . But an extra hour would give me time to exercise and / or read too.

After 1pm the school runs start, and lunch must be eaten, and the hits hard and the becomes unpredictable.

and really shortens ones day.

#arthritis #write #fatigue #AutoimmuneArthritis #brainfog

Last updated 2 years ago

· @niamhgarvey
376 followers · 543 posts · Server mastodon.ie

Very impressed with these compression gloves. Slept with them on and woke without aching finger joints. Although as I soon as I took them off to make breakfast the aches returns. Bought from website. Dear, but worth it for having hands that function. Wearing them all day, especially in this freezing weather.


#arthrits #arthritisireland #AutoimmuneArthritis #spondylarthritis

Last updated 2 years ago

· @niamhgarvey
329 followers · 388 posts · Server mastodon.ie

There's nothing like a audiobook (narrated by KateBinchy.. should always be narrated by an Irish accent) on a day with bone deep fatigue.

Not sure if my fatigue is the start of a flare of or a touch of after a socially heavy few days, but the cause is not important once I treat the symptoms and just rest, look after myself, and listen to magnificent tales.

#maevebinchy #AutoimmuneArthritis #autisticburnout

Last updated 2 years ago

· @niamhgarvey
286 followers · 337 posts · Server mastodon.ie

Couldn't survive the pain of and (hEDS) without balm but by God it makes my clothes stink. Seems to cling to some materials esp jersey cotton.

#AutoimmuneArthritis #hypermobileEhlersDanlosSyndrome #cbd

Last updated 2 years ago

Tori · @JustTori
192 followers · 168 posts · Server mastodon.ie

In 🛌 listening to 🌧

Staying in bed later than the norm is a regular occurrence for me

A key symptom of is morning stiffness
There've bn mornings I've crawled to 🚽, atm it's more of a waddle until my joints, muscles &ligaments ease

Any length of time in one position& my body siezes, fluid builds up in my joints due to my immune system constantly attacking thm. The natural antiinflammatory factors in my body don't work, ergo nding time to get moving

#AutoimmuneArthritis #ArthritisAwareness

Last updated 2 years ago