Deirdre Clune · @deirdreclunemep
2 followers · 694 posts · Server respublicae.eu

RT Fesca
🙏 A big thank you to @deirdreclunemep (@EPPGroup, IE) for advocating for scleroderma patients and supporting our campaign! Read her thoughts on how we can improve the quality of life for people with scleroderma:
t.co/xZm7FO9oYX

🐦🔗: n.respublicae.eu/Fscleroderma/

#BloomWithScleroderma

Last updated 1 year ago

Patrizia Toia · @toiapatrizia
2 followers · 46 posts · Server respublicae.eu

RT @Fscleroderma: Huge thank you to @toiapatrizia for these insightful opening remarks.

🐦🔗: nitter.eu/toiapatrizia/status/

#BloomWithScleroderma

Last updated 2 years ago

Patrizia Toia · @toiapatrizia
2 followers · 46 posts · Server respublicae.eu

I look forward to being part of
@Fscleroderma event on September 27. I urge you to register today, to secure your attendance. bit.ly/3QGlTS9
RT @Fscleroderma: We are excited to have @toiapatrizia host our “Advancing equitable rare disease diagnosis and care: How EU health policy can solve existing challenges” event next month.

fesca-scleroderma.eu/wsd2022/?

🐦🔗: nitter.eu/toiapatrizia/status/

#scleroderma #BloomWithScleroderma

Last updated 2 years ago

James Carver · @JamesJimCarver
1 followers · 507 posts · Server respublicae.eu

RT @WeAreSRUK: Today is . Join us and those living with this disease to ensure scleroderma becomes a health policy priority. Read the FESCA position paper to learn more and start your journey to

fesca-scleroderma.eu/wsd2022/

🐦🔗: nitter.eu/JamesJimCarver/statu

#WorldSclerodermaDay #BloomWithScleroderma

Last updated 2 years ago

Frédérique Ries · @Frederiqueries
0 followers · 168 posts · Server respublicae.eu

RT @Fscleroderma: 🌻 On , @Frederiqueries delivered a message of solidarity to those living with scleroderma, calling for a new policy framework linking European and national initiatives.
Together, we can Find the Light to Bloom: ▶️fesca-scleroderma.eu/wsd2022/?

🐦🔗: nitter.eu/Frederiqueries/statu

#WorldSclerodermaDay #BloomWithScleroderma

Last updated 2 years ago

István Ujhelyi · @istvan_ujhelyi
5 followers · 624 posts · Server respublicae.eu

RT @Fscleroderma: We are very grateful to @istvan_ujhelyi for his support in providing political impetus to improve policy and ensure timely diagnosis, as well as timely access to treatment and care for all people living with !
fesca-scleroderma.eu/wsd2022/?

🐦🔗: nitter.eu/istvan_ujhelyi/statu

#scleroderma #WSD2022 #BloomWithScleroderma

Last updated 2 years ago