BC Info Bot · @bcinfo
329 followers · 18059 posts · Server mastodon.roitsystems.ca

๐Ÿ‘‹Basically what's in my in my name/bio covers most of it:-
Helping awareness of Ehlers-Danlos Syndrome & Hypermobility Spectrum โ€‹
Multisystemic Connective Tissue disorders which can =
/IIH /TN & more
& a supporter
Backup to twitter @luvenice_h when gets impossible for us to use. Sad it has been ruined aft using as a tool for 10+yrs post hEDS dx.
Helps me to help others.

#introduction #eds #HSD #pots #oi #mcas #mecfs #CSFleak #SIH #BoneSpurs #Stenosis #CCI #TMJ #on #crps #sfn #NEISvoid #LongCovid

Last updated 2 years ago

@bennessb
๐Ÿ‘‹What's in my name/bio covers it:-
Helping awareness of Ehlers-Danlos Syndrome & Hypermobility Spectrum
Multisystemic Connective Tissue disorders which can =
/IIH /TN & more
& a supporter
Backup to twitter @luvenice_h if/when gets impossible for us to use.
Sad Twitter has been ruined aft using as a tool for 10yrs post hEDS dx. Helps me to help others especially the undx

#eds #HSD #pots #oi #mcas #mecfs #CSFleak #SIH #BoneSpurs #Stenosis #CCI #TMJ #on #crps #sfn #NEISvoid #LongCovid

Last updated 2 years ago