JellyDots · @JellyDots
73 followers · 181 posts · Server mastodonapp.uk

RT @ChrisToseland
I don’t usually post personal news but Clinicians have told us to pull every lever.

Our daughter has with Brain cancer. There is no cure and typically 9m life expectancy.

If anyone knows of trials then please get in contact! @CR_UK

#DIPG #BrainCancer #childrenscancer

Last updated 2 years ago

Ian · @Ian_R_Howard
81 followers · 536 posts · Server mastodonapp.uk

RT @ChrisToseland
I don’t usually post personal news but Clinicians have told us to pull every lever.

Our daughter has with Brain cancer. There is no cure and typically 9m life expectancy.

If anyone knows of trials then please get in contact! @CR_UK

#DIPG #BrainCancer #childrenscancer

Last updated 2 years ago

Theoretical Biophysics · @TheoBiophysics
109 followers · 437 posts · Server mas.to

RT @ChrisToseland
I don’t usually post personal news but Clinicians have told us to pull every lever.

Our daughter has with Brain cancer. There is no cure and typically 9m life expectancy.

If anyone knows of trials then please get in contact! @CR_UK

#childrenscancer #BrainCancer #dipg

Last updated 2 years ago

· @Amor_plantonico
2 followers · 934 posts · Server toot.community

RT @ChrisToseland
I don’t usually post personal news but Clinicians have told us to pull every lever.

Our daughter has with Brain cancer. There is no cure and typically 9m life expectancy.

If anyone knows of trials then please get in contact! @CR_UK

#dipg #BrainCancer #childrenscancer

Last updated 2 years ago

OpenAir Collective · @openair
30 followers · 746 posts · Server mas.to

RT @ChrisToseland
I don’t usually post personal news but Clinicians have told us to pull every lever.

Our daughter has with Brain cancer. There is no cure and typically 9m life expectancy.

If anyone knows of trials then please get in contact! @CR_UK

#childrenscancer #BrainCancer #dipg

Last updated 2 years ago

Prof Antony · @professorantony
48 followers · 224 posts · Server mstdn.social

RT @ChrisToseland
I don’t usually post personal news but Clinicians have told us to pull every lever.

Our daughter has with Brain cancer. There is no cure and typically 9m life expectancy.

If anyone knows of trials then please get in contact! @CR_UK

#childrenscancer #BrainCancer #dipg

Last updated 2 years ago

jobRxiv · @jobRxiv
792 followers · 1193 posts · Server mas.to
jobRxiv · @jobRxiv
776 followers · 934 posts · Server mas.to
Steve Schulz · @SteveSchulz
10 followers · 49 posts · Server mstdn.social

My radiation oncologist sure wasn't kidding when he said the fatigue would get worse for two weeks after the last session. No way the vaccines are still fully affecting me by now, and I can barely do a fucking thing!

#cancersucks #BrainCancer

Last updated 2 years ago

World News Feeds 🇺🇦 · @newz
1354 followers · 10409 posts · Server mas.to
Steve Schulz · @SteveSchulz
9 followers · 46 posts · Server mstdn.social

Five more radiation sessions after today's. Surreal to think I'll be 5/6s through after this morning. One more (work)week.

#weforgeahead #radiationtherapy #cancer #BrainCancer

Last updated 2 years ago

Steve Schulz · @SteveSchulz
7 followers · 38 posts · Server mstdn.social

Steroid insomnia still real, still awful. I'm 2/3 of the way through radiation, however, so nearly there, and then I'll get to start my taper and hopefully be able to sleep a whole night through sometime soon.

Until then, hello night (morning?) owls.

#cancertreatment #radiation #braintumor #BrainCancer

Last updated 2 years ago

Steve Schulz · @SteveSchulz
5 followers · 21 posts · Server mstdn.social

I'm looking forward to moving forward with treatment, in any case. With the genetics of my type of cancer I'm likely to see results. It won't put this disease behind me, but it'll buy me years of joy and some better quality of life, I hope. That's more time to spend with friends and family, and to spread awareness about this disease!

We forge ahead!

#weforgeahead #hairloss #family #radiation #grade2astrocytoma #braintumor #BrainCancer

Last updated 2 years ago

Steve Schulz · @SteveSchulz
7 followers · 38 posts · Server mstdn.social

I'm looking forward to moving forward with treatment, in any case. With the genetics of my type of cancer I'm likely to see results. It won't put this disease behind me, but it'll buy me years of joy and some better quality of life, I hope. That's more time to spend with friends and family, and to spread awareness about this disease!

We forge ahead!

#weforgeahead #hairloss #family #radiation #grade2astrocytoma #braintumor #BrainCancer

Last updated 2 years ago

Steve Schulz · @SteveSchulz
4 followers · 15 posts · Server mstdn.social

Steroid insomnia at 6am like clockwork. At least I have all my bedding washed now, so afternoon napping is more feasible for a while.

#insomnia #radiation #BrainCancer #cancer

Last updated 2 years ago

Steve Schulz · @SteveSchulz
7 followers · 38 posts · Server mstdn.social

Steroid insomnia at 6am like clockwork. At least I have all my bedding washed now, so afternoon napping is more feasible for a while.

#insomnia #radiation #BrainCancer #cancer

Last updated 2 years ago

Steve Schulz · @SteveSchulz
7 followers · 38 posts · Server mstdn.social

Will I make the right decision? Who knows, because the studies that compare the two specifically for my type are incomplete and provide no definitive answer. This is the hardest decision I've ever had to make in my life. And, other than pursuing a second surgery down the road, may very well be the most difficult decision I ever make in life.

#cancersucks #braintumor #chemo #chemotherapy #astrocytoma #BrainCancer

Last updated 2 years ago

Eveline Ruehlin · @enilev
16 followers · 38 posts · Server mstdn.social