Renaud Muselier · @RenaudMuselier
16 followers · 2111 posts · Server respublicae.eu
RT Alain DI CRESCENZO
Je suis à #Marseille où la @CCI_AMP et @RenaudMuselier , président @MaRegionSud , ont mis en place des mesures pour aider et accompagner les #commerçants vandalisés. Les #CCI sont mobilisées pour soutenir le #commerce.
#France @chauvinjl @Regionsdefrance https://t.co/xEsOqs8Vbw
🐦🔗: https://n.respublicae.eu/DiCrescenzo_A/status/1675880118995017730
#Marseille #commerçants #CCI #commerce #France
Massimo Matricini · @matricini
25 followers · 379 posts · Server mastodon.uno
Massimo Matricini · @matricini
25 followers · 373 posts · Server mastodon.uno
dystobot · @dystobot
5 followers · 5180 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1648544548660862976]
RT @Aaleayha: My daily struggle:
#hEDS, #CCI, #Chiari, #seizures, #Dystonia, #Dysautonomia, #POTs, #IIH #migraine, #asthma, C1-L5 herniated discs, spinal cord compression, #neuropathy, muscle spasms, #chronicpain #sciatica, #incontinence, #RheumatoidArthritis, stiffness, #IBS, #gastroparesis
#hEDS #CCI #chiari #seizures #dystonia #Dysautonomia #pots #iih #migraine #asthma #neuropathy #chronicpain #sciatica #incontinence #rheumatoidarthritis #ibs #gastroparesis
Oliver Ding · @die_socke
219 followers · 3688 posts · Server nrw.socialRT @sibylle_berlin
Selbst #Komorbiditäten, die alle eigenständige schwere multi-systemische Erkrankungen sind & OFT überlappend auftreten, werden kaum genannt.
Ich halte das für einen Fehler. 7/7
#MEcfs #FQAndMEcfs #FQToxicity #CCI #POTS #SmallFiber (#BigPain) #Lyme #LongCovid #MCAS #EDS #PostVac
#komorbiditaten #mecfs #fqandmecfs #FQToxicity #CCI #pots #SmallFiber #bigpain #Lyme #LongCovid #mcas #eds #PostVac
Oliver Ding · @die_socke
219 followers · 3688 posts · Server nrw.socialRT @sibylle_berlin
Beispiel: Abgesehen der #Fluorchinolon Schädigungen habe ich eine instabile HWS #CCI, aber auch eindeutig eine #MEcfs Diagnose (2018). Die mir jüngst auch noch mal bestätigt wurde (2023).
Nun zur HWS (#CCI Diagnose 2020/21): wenn mir da jemand sagt, das ist/sei selten, 2/x
AG Gesundheit + Pflege · @gesundheitspiraten
23 followers · 776 posts · Server medibubble.org
RT @sibylle_berlin
#LongCovidAwarenessDay
It is shocking to experience that the #LongCovid tragedy has not changed anything in the minds of the politicians who are responsible for the decades of neglect and ignorance.
#MEcfs
#ME
#Lyme
#POTS
#SmallFiber (#BigPain)
#MCAS
#FQtoxicity
#CCI
#PostVac
#longcovidawarenessday #LongCovid #mecfs #me #lyme #pots #SmallFiber #bigpain #Mcas #FQToxicity #CCI #PostVac
Thomas Lavergne · @lavergnetho
738 followers · 628 posts · Server fediscience.org
#SeaIce and #Satellites friends: check out this short story : "Satellite ’archaeology’ provides record of 1970s sea ice development".
The #ESA CCI+ #SeaIce team releases a first version of a Sea Ice Concentration data record covering 1972 - 1977 with the #ESMR Nimbus-5 mission !
Access the data and its documentation on the #CCI Open Data Portal: https://catalogue.ceda.ac.uk/uuid/34a15b96f1134d9e95b9e486d74e49cf
#CCI #esmr #esa #satellites #seaice
Ruth Mottram · @Ruth_Mottram
3724 followers · 5871 posts · Server fediscience.orgInterested in #SeaIce and long records from #SatelliteData ?
Today's meeting with these guys has been super interesting, you should check out the #ESA CCI website
#CCI #sicci #esa #satellitedata #seaice
Michael Kunz · @Michael_Kunz
640 followers · 25724 posts · Server nrw.social
RT @sibylle_berlin@twitter.com
So gleich geht es los! #MEcfsimBundestag
Ich weiss gar nicht, was ich erwarten soll. Bin sehr berührt von dem Tag heute, von den Posts hier auf Twitter und den Bildern da draussen. Danke. ♥️ #MEcfs #POTS #SmallFiber #CCI #FQToxicity #LongCovid #PostVac die Hölle, alles …!
🐦🔗: https://twitter.com/sibylle_berlin/status/1616110201337167874
#mecfsimbundestag #mecfs #pots #SmallFiber #CCI #FQToxicity #LongCovid #PostVac
Michael Kunz · @Michael_Kunz
640 followers · 25724 posts · Server nrw.social
RT @sibylle_berlin@twitter.com
„Wir“, sagt sie und spricht für all die Unsichtbaren, „wir versauern hinter Gardinen.“ 5/5
#POTS #SmallFiber #Lyme #LongCovid #CCI #FQToxicity #SmallFiber #MEcfs #MEcfsImBundesTag #NichtGenesen #StillerProtest
🐦🔗: https://twitter.com/sibylle_berlin/status/1616029422070415365
#pots #SmallFiber #Lyme #LongCovid #CCI #FQToxicity #mecfs #mecfsimbundestag #nichtgenesen #stillerprotest
Mela · @Mela_mehrdavon
54 followers · 301 posts · Server sueden.social
RT @sibylle_berlin@twitter.com
#Leitlinie #Müdigkeit - grosses Unheil - ich habe das nicht‼️Nächste Bearbeitung für 2026 vorgesehen - solange schaffe ich nicht #MEcfs #POTS #SmallFiber #CCI #MCAS #FluorchinolonVergiftung #PostVac #Lyme #MitochondrienSchaden #fragwürdigeTests - die spinnen ja - #DoctorShopping
🐦🔗: https://twitter.com/sibylle_berlin/status/1611010282377318401
#Leitlinie #mudigkeit #mecfs #pots #SmallFiber #CCI #mcas #fluorchinolonvergiftung #PostVac #Lyme #mitochondrienschaden #fragwurdigetests #doctorshopping
Bendy~hEDS & Co 🥄👩🏻🦼😷 · @bendyhedsandcoawareness
47 followers · 53 posts · Server mastodonapp.uk#Introduction 👋Basically what's in my in my name/bio covers most of it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFLeak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h when gets impossible for us to use. Sad it has been ruined aft using as a tool for 10+yrs post hEDS dx.
Helps me to help others.
#introduction #eds #HSD #pots #oi #mcas #mecfs #CSFleak #SIH #BoneSpurs #Stenosis #CCI #TMJ #on #crps #sfn #NEISvoid #LongCovid
Thomas Lavergne · @lavergnetho
579 followers · 448 posts · Server fediscience.org@phil_browne I really don't know enough about these two sources (or other) for pre-1978 SICs to comment.
In the #CCI #SeaIce project, we have been preparing daily SIC fields from ESMR Nimbus-5 (1972-1977, many gaps). If this satellite mission was not used in HadISST2 or COBE-SST it could be an independent source of evaluation.
I can otherwise only encourage you at #C3S/#ECMWF to flag high the need for pre-satellite SICs so that funders initiate the right calls.
Bendy~hEDS & Co 🥄👩🏻🦼😷 · @bendyhedsandcoawareness
49 followers · 57 posts · Server mastodonapp.uk@bennessb
👋What's in my name/bio covers it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFLeak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISVoid & a #LongCovid supporter
Backup to twitter @luvenice_h if/when gets impossible for us to use.
Sad Twitter has been ruined aft using as a tool for 10yrs post hEDS dx. Helps me to help others especially the undx
#eds #HSD #pots #oi #mcas #mecfs #CSFleak #SIH #BoneSpurs #Stenosis #CCI #TMJ #on #crps #sfn #NEISvoid #LongCovid
Mela · @Mela_mehrdavon
51 followers · 175 posts · Server sueden.socialRT @sibylle_berlin@twitter.com
Dass das allerdings im Jahr 2022 immer noch möglich sein würde, haut mich aus den Latschen.
Das ist echt krank, diese Psychologisierung auf Biegen und Brechen aufrecht erhalten zu wollen 3/3
#ME #MEcfs #POTS #SmallFiber #FQToxicity #PostVac #MCAS #CCI #Lyme #LongCovid #Latschen
🐦🔗: https://twitter.com/sibylle_berlin/status/1602617755622064129
#me #mecfs #pots #SmallFiber #FQtoxicity #PostVac #mcas #CCI #Lyme #LongCovid #latschen
Thomas Lavergne · @lavergnetho
458 followers · 361 posts · Server fediscience.org@jgomezdans @trappmartin In Europe, the efforts on satellite-based retrieval have continued at a steady pace with the #FiduceEO project. #CCI teams and even new satellite missions (#CIMR, #TRUTH,...) try to embrace the #FiducEO approach all the way to geophysical products (Level-2).
It is hard, and sometimes an overkill, but with time we will get there.
FiducEO paper: https://iopscience.iop.org/article/10.1088/1681-7575/ab1705/meta
An recent example from #CCI :
https://doi.org/10.3390/rs14040875
#fiduceo #truth #CIMR #CCI #fiduceeo
γπνος / #29 · @29
0 followers · 1 posts · Server disabled.socialhello. i am γπνος (or # 29), and i’m the newest member of @bodyetal.
i only exist within migraine auras, migraines, and similar acute neurological episodes, as of now. we have those very frequently, though—we have #CCI, or #craniocervicalinstability which has caused kinking of the brain stem and as a result neurological damage and disability.
that’s it for now.
tags:
#intro #schizospec #neurologicaldisability #neurologicaldamage #neurodivergent #pluralgang #migraine
#CCI #craniocervicalinstability #intro #schizospec #neurologicaldisability #neurologicaldamage #neurodivergent #pluralgang #Migraine
Mela · @Mela_mehrdavon
22 followers · 31 posts · Server sueden.socialRT @sibylle_berlin@twitter.com
Heute wollte ich etwas auf meiner Homepage posten, einen Blog zum Thema #Hoffnung. Dabei wurde mir die Homepage gehackt. Seltsam nicht.
Hier ein paar Gedanken (Auszug), die ich notiert hatte:
#CCI #FQToxicity #SmallFiber #PoTS #MEcfs
1/x
🐦🔗: https://twitter.com/sibylle_berlin/status/1592190174460772352
#hoffnung #CCI #FQtoxicity #SmallFiber #pots #mecfs
Ody · @Ody
55 followers · 5 posts · Server disabled.socialHi! I'm Ody.
I'm chronically ill and disabled.
#EDS #CCI #MCAS #Dysautonomia
During the past couple of years, I've learned so much from Twitter. The people on there have become my teachers, my community, my window to the world and my friends.
I've felt most at home in the #NEISVoid community.
To learn about #EpistemicInjustice was eye-opening for me.
This will be my more personal account on the fediverse. I hope to keep learning.
#introduction #eds #CCI #mcas #Dysautonomia #NEISvoid #EpistemicInjustice