I'm not American, or in America, but I do have a disability. So I'll toot for #DisabilityPrideMonth
#CharcotMarieTooth

TM's Blog: Gadgets I use to make my disabled life easier

I have got Charcot-Marie-Tooth disease. Its a disease that affects the peripheral nerves, it is hereditary and it makes me weak and wobbly and frequently tired.

Because of this disability I use a fair few 'aids' to help me live normally.
#blog #accessibility #disability #CharcotMarieTooth
https://www.tattooedmummy.co.uk/2023/01/gadgets-i-use-to-make-my-disabled-life.html

Getting ready for Rare Disease Day at the end of the month. Any other people out there who are rare?
#RareDiseaseDay #CharcotMarieTooth

[Automatic repost https://twitter.com/dystobot/status/1621549127149490180]

RT @white_whale_wyo: Be grateful that you do not have #dystonia or #CharcotMarieTooth #neuropathy https://t.co/fwOwLU7PDE

Rare Disease Day 2023
28 FEBRUARY
is Rare Disease Day
Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

Charcot-Marie-Tooth is a rare disease! I'm rare! #CharcotMarieTooth
https://www.rarediseaseday.org/#share-your-colours

OMG I've done a blog post!
Gadgets I use to make my disabled life easier.

#blogging #blog #accessibility #disability #CMT #CharcotMarieTooth #Neurology

https://tattooedmummy.blogspot.com/2023/01/gadgets-i-use-to-make-my-disabled-life.html

Winter solstice greetings

Looking for people who have #hereditaryneuropathy #CharcotMarieTooth to connect with, follow.

Boosts welcome 🤗

Winter solstice greetings

Looking for people who have #hereditaryneuropathy #CharcotMarieTooth to connect with, follow.

Boosts welcome 🤗

@Cleoqc no I have #CharcotMarieTooth it's like MS but with my peripheral nerves not the central ones

Just fell up the stairs because when I'm tired my feet don't lift high enough not to trip, but they feel like they lifted! So now I have painful toes. Ouch and goodnight #CharcotMarieTooth #disability

Where I explain Charcot-Marie-Tooth, a condition I live with
#CharcotMarieTooth #disability
https://www.tattooedmummy.co.uk/2012/09/the-one-where-i-explain-my-disease-cmt.html?m=1

Where I explain Charcot-Marie-Tooth, a condition I live with
#CharcotMarieTooth #disability
https://www.tattooedmummy.co.uk/2012/09/the-one-where-i-explain-my-disease-cmt.html​​

What are the first signs of CMT ? #CharcotMarieTooth

✅ Frequent steppage gait
✅ Clumsiness
✅ “Burning” sensations in the feet or hands
✅ Musculoskeletal pain / ankle sprains/fractures.
✅ Weakness of the feet and ankles.
✅ Abnormal sensation in the extremities
✅ Poor tolerance for cool or cold temperatures is typical and many people have chronically cold hands and feet.
✅ Additional symptoms may include fatigue, sleep apnea, breathing difficulties, and hearing loss.

Charcot-Marie-Tooth #CharcotMarieTooth #CMT 🦓

I have this, it's similar to MS but the affected nerves are peripheral not central. #disability #disabled #genetics

Haha missed the whole concept of #introduction 😅

I am Kae, 30 years of age, #american by birth; #irish by heart (I've lived here nearly 8yrs!).

Proud #catmom to 1 house panther and 1 very #longboi that just gives the world some meaning when I otherwise cannot find it

Causes dear to my heart and bits about me since they're all integral to my identity. #sexworkiswork #marijuanaismedicine #bisexual #genderqueer #neurodivergent #disabled #loveislove #CharcotMarieTooth #domesticviolence

♡♡K

In a shit load of pain.
#CMT flare
Being punished for going to the beach with partner and dog. Worth it.
But still, so much pain.

Vaping #cannabis desperately and trying to focus on my audiobook. 'Genghis Khan and the making of the modern world'.
Nothing can compete with the noise of my pain though. Pain PAin paIN PAIN PAIN!!!!!!!!
I will be asleep soon.
90 minutes.
I hope.

#chronicillness #chronicpain #CharcotMarieTooth

What I wanted most as a child.
https://www.tattooedmummy.co.uk/2016/11/what-i-wanted-most-as-child.html

#disability #CharcotMarieTooth #diagnosis

#introduction

I've been on here since April 2022 but this is a new instance for me (again!!).

I have #CharcotMarieTooth and work from home in health care regulation. I am married and have an adult daughter and two dogs.

I post about daily nonsense and sometimes politics (I use cw)

Interests are #dogs #nature #disability #disabled #Discworld #reading #gardening #family #cooking #baking #recipes #ebay

Where I explain Charcot-Marie-Tooth, a condition I live with
#CharcotMarieTooth #disability
https://www.tattooedmummy.co.uk/2012/09/the-one-where-i-explain-my-disease-cmt.html​

@soheb well obviously.
#CharcotMarieTooth ftw 😉