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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1900 posts · Server mastodon.ie
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#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #LongCovid #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1899 posts · Server mastodon.ie
Open media

4/

We got this email today which confirms the competition is still ongoing.


@mecfs

#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1876 posts · Server mastodon.ie
Open media

September 19

batemanhornecenter.org/event/o

3 PM EDT/8 PM GB & Ireland

Find the time in your time zone here:
timeanddate.com/worldclock/fix

Topic: Let's Talk about What Works

Support Group Format

The first 30-minutes will focus on a predetermined topic followed by a general discussion. Support groups are designed to include people with , , , etc.

@mecfs
@longcovid

#mecfs #fm #LongCovid #myalgicencephalomyelitis #ChronicFatigueSyndrome #cfs #pwme #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1876 posts · Server mastodon.ie
Open media

#meaction #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1848 posts · Server mastodon.ie
Open media

Free, professionally-facilitated online support group

September 12 @ 1:00 pm - 2:00 pm MDT Free
batemanhornecenter.org/event/o

3 PM EDT/8 PM GB and Ireland

Find the time in your time zone here:
timeanddate.com/worldclock/fix

Topic: Strategies for Approaching Treatments

@mecfs
@longcovid

#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #LongCovid #pwLC #postcovidsyndrome #PostCovid #postCOVID19

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1848 posts · Server mastodon.ie
Open media

#LongCovid #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc #covidlonghaulers #LongHaulers

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1848 posts · Server mastodon.ie
Open media

"Wexford woman on a lifetime of chronic pain–‘if I ever get bed-ridden again I’m going to end my life’"

Yvonne tragically spent 7 years bedbound with ME. This gets across the difficult life she has had due to ME &

Shared with journalist's permission

We had difficulty getting an interviewee: thanks to Yvonne for stepping forward 👍

@mecfs
@fibromyalgia

#fibromyalgia #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #fibrositis #fibro #fms #fm

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
182 followers · 1848 posts · Server mastodon.ie
Open media

3/
Thanks very much to everyone who has gone to paypal.com/fundraiser/set-favo & searched for Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association .
We've just received €157 through this scheme (presumably mostly from the competition) for which we are very grateful. 👍👏

@mecfs

#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
180 followers · 1693 posts · Server mastodon.ie

Light article on the RTE* website:

“Martine McCutcheon says living with an invisible illness [] has given her a helpful "perspective of reality" – especially when it comes to falling into the trap of comparing yourself to others.”

rte.ie/lifestyle/living/2023/0

*The Irish national, taxpayer-funded media outlet

@mecfs

#ChronicFatigueSyndrome #mecfs #cfs #myalgice #myalgicencephalomyelitis #pwme

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
180 followers · 1693 posts · Server mastodon.ie
Open media

Trustee @tomkindlon attended a webinar on Aug 17 organised by the Irish ME Trust, "Social welfare – Disability Allowance & Invalidity Pension"

Access his notes which contain a link to the slides here:
1drv.ms/b/s!AoHfldspRkWU04FWBj
or
mediafire.com/file/rc67xqzspsa

@mecfs

#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
180 followers · 1693 posts · Server mastodon.ie
Open media

🧵

Our update for the Hospital Saturday Fund

Thanks very much to the HSF for the core grant of €3000 we received this year which helped us continue our ongoing work and contributed to us being able to organise 5 free meetings with an international speaker, Dr William Weir, during May in Cork, Dublin, Galway, Limerick & Sligo followed by a chance to chat with others over free tea/coffee and biscuits.

@mecfs @tomkindlon

1/

#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
180 followers · 1693 posts · Server mastodon.ie
Open media

Webinar: Social Welfare – Disability Allowance & Invalidity Pension (organised by the Irish ME Trust)

Tom: I attended a similar webinar last year and found it very good

Email: Info [ @ ] imet dot ie

@mecfs

#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
178 followers · 1554 posts · Server mastodon.ie

Bateman Horne Center:
Post-Exertional Malaise (PEM/PESE): Clinical Attributes, Part 2 of 7

youtu.be/84BVPaGdSJU

This video series is intended to review the clinical presentation, scientific underpinnings, and treatment approach for patients with post-exertional malaise ()/post-exertional symptom exacerbation ().

@mecfs

@longcovid

#pem #pese #mecfs #cfs #myalgice #myalgicencephalomyelitis #ChronicFatigueSyndrome #pwme #LongCovid

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
178 followers · 1554 posts · Server mastodon.ie
Open media

#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #severeme

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
178 followers · 1549 posts · Server mastodon.ie

“I cling to one thing, hope. Hope for a cure, if not for me, for all of my brothers and sisters who suffer with ME, hope that one day the medical profession will make us a priority, and offer understanding, diagnosis, treatment of our multiple symptoms and ultimately the cure.”

meassociation.org.uk/2023/08/s

@severeme @mecfs

#severemeweek #mecfs #cfs #myalgice #myalgicencephalomyelitis #ChronicFatigueSyndrome #pwme #mye #severeme

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
178 followers · 1548 posts · Server mastodon.ie
The ME Association - Severe ME Week 2023: Mike's Story - The ME Association

New
“I have had for 26 years”

“The frustrating thing about sometimes having 30% capacity is that I can do so much more from well-rested but it is an illusion, which masks my true capacities. They are always much lower than I think”

meassociation.org.uk/2023/08/s

@severeme @mecfs

#severeme #mecfs #cfs #myalgice #myalgicencephalomyelitis #ChronicFatigueSyndrome #pwme #mye #me #millionsmissing #cfsme

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
178 followers · 1533 posts · Server mastodon.ie

2/

2/

Martine McCutcheon: “I also ask my friends to google CFS / symptoms. If they love you, it’s the least they can do! Understanding helps with support. So thank you to our friends who came with a few hours notice!

@mecfs

#fibro #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
178 followers · 1532 posts · Server mastodon.ie
Open media

Extract:
"She continued to explain how she manages her life, explaining: "So now, I only surround myself with people who understand that if I need to cancel something (& that can happen often) it’s not a choice I want to make and that they go ahead and book something and if they see me rocking up, it’s a bonus!

thesun.ie/tv/11161664/martine-

@mecfs

1/

#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
178 followers · 1532 posts · Server mastodon.ie
Open media

Some medical educational initiatives we have planned for later in the year.

Feel free to send on your GP's details

@mecfs

#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Irish ME/CFS Association · @IrishMECFSAssociation
178 followers · 1532 posts · Server mastodon.ie
Open media

#myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #chronicillness #LongCovid #pwLC #postcovidsyndrome

Last updated 1 year ago
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