I have severe #restlesslegssyndrome or #RLS. I live in #Sydney #Australia. I am having a lot of difficulty finding a specialist who understands this condition, especially one who has knowledge and experience of the phenomenon known as "augmentation", in which the use of dopamine agonists actually worsens the condition. The Mayo Clinic has published the paper below, but it is proving difficult to find a doctor who even pretends to have read it. #chronichealth #fatigue
https://www.mayoclinicproceedings.org/article/S0025-6196(20)31489-0/fulltext

#ChronicHealth life:
Box just arrived with #knuckle splint for long term as-needed joint protection after knuckle replacement required by 20 years of medication-resistant #rheumatoid disease.
*probiotic #gummies to help control long-term IBS and current effect of cephalexin because of a (fortunately rare) UTI.
*fiber gummies for IBS.

I think I'll roll my #powerchair (which I use because of rheumatoid disease and chronic ankle problems after fracture caused because of #osteoporosis after #prednisone needed during RA flares) down to the city arts #festival today and have a #beer and buy some #art.
#rheumatoidArthritis #mobility #livingTheDream

Hello loves, I realise I've committed a bit of a Mastodon faux pas and not done an #Introduction so let me offer you a belated one.

Recently aquiring a #disability/ #chronichealth condition in #TrigeminalNeuralgia has upended my life. To that end I was 'rescued' by my forbears in the shape of the 200+ love letters they left behind - so I turned them into the #podcast 'My Love Letter Time Machine' and now spend large chunks of my life in the 1880s. Mainly to escape the pain, but also in the hope that it might eventually keep me and the cat fed. I love #gardening when I can manage it, bit of a #coffee snob, and adore #music. Learning to play the #piano and have a mild (cough) #fanfic addiction. I love playing #Zelda and #jrpgs. Recently divorced. I live in West #Wales and can get by in #Welsh. I'm bi, and #TransRightsAreHumanRights

V happy to chat and make new friends.

#Intro #TwitterMigration #mastodonintro

People with chronic health conditions face unique challenges in the face of abortion restrictions.

https://www.ncbi.nlm.nih.gov/pubmed/36424122

#ChronicHealth #Abortion #Health #ReproductiveHealth #NICHDimpact

This year's EasterCon covid policy has finally been released...and sadly, what I've learned in the last few years is that when people (at least here in the UK) are not required but "encouraged" to wear masks...they just don't, on the whole.

So, I won't be attending this year's con in person, & I am personally disappointed by this decision on both a personal and professional level.

#EasterCon #covid #disabled #ChronicIllness #Spoonie #ChronicHealth

Sigh. Deadline for my module hand in is on Friday. Neighbour has got the builders in next door, hammering away, and my body is playing up. Full crash mode. #cfs #fibromyalgia

Timing and #ChronicHealth is a thing. I was expecting something though. Winter is generally a trigger for me. Darkness and cold.

At least I have very good noise cancelling headphones. I’m hoping they can deal with the random rhythm of hammering as opposed to the more constant distractions it normally works for.

Question for #creative professionals and working #artists who also suffer from #ChronicHealth issues.

Has anyone ever come across a website/organisation focused on helping that subset of people?

I could swear I came across something like it a few years ago but my focus was a bit different then and my hurdles not as large. So I didn’t take note. It wouldn’t surprise me if it no longer exists but IMO it still should.

I wish I’d bookmarked it.

#cfsme #fibromyalgia #fibro #arthritis

Look I know I keep saying this, but I'm going to say it again:

Exercise will make you feel better!

You are the monarch of your life - love yourself with some activity!

"let them know
Of what a monarchy you are the head:
Self-love, my liege, is not so vile a sin
As self-neglecting."

Dauphin, Henry V

ride a bike, run, swim, lift, anything - and you will feel better.

#Cycling #Swimming #ChronicHealth

Hello this is me, yet another #Mstdn #introduction. But nice to be here. I do #lightingdesign for #theatre as an #ALPD member, #photography #code and #teach at #dramaschool #RADA. I love #ceramics (especially #teapot s). I live with and like to talk about #neuro #ChronicHealth #FND and #migraine. #constitutionallaw and #copyright when I need some light #reading.

The #1 Reason People Don't Fix #ChronicHealth Problems

https://www.brighteon.com/9177eba7-8cac-453b-8d48-bae12074a642