The chronic Lyme cult harassed me as badly as someone leaving Scientology when I left and spoke out. I'll never be silent.

I wrote this right when I left it: https://www.itstrainingcatsanddogs.com/blog/2019/2/11/lyme-warrior-no-more

A doctor wrote this about me:
https://sciencebasedmedicine.org/fake-diagnoses-not-fake-diseases/

And a journalist for New York Magazine interviewed me for this:
https://www.thecut.com/2019/07/what-happens-when-lyme-disease-becomes-an-identity.html

#LymeDisease #ChronicLyme

San Diego, CA, USA:

New $1 million grant...to support a multi-method effort to deeply characterize the microbial, viral, immune & genetic characteristics of tissue samples collected from...#longCOVID, #Lyme, #myalgicencephalomyelitis/#chronicfatiguesyndrome & #EDS

https://today.ucsd.edu/story/what-are-the-drivers-of-chronic-infectious-disease

#MEcfs #CFS #ChronicLyme

2/

It looks like this study may still recruiting people from the US

https://snyderlabs.stanford.edu/crashcourse/

Researchers are recruiting ME/CFS, #ChronicLyme and #LongCovid patients for a study to better understand symptom flares such as post-exertional malaise (PEM), or “crashes”.

@longcovid #ptlds #longlyme #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme

Keep up to date on our Northern Virginia and Zoom events for people with and who care for people with
#MECFS
#POTS
#LongCovid
#fibromyalgia syndrome
#ChronicLyme
and similar syndromes by joining our email list, CFSupport at groups.io.
groups.io/g/CFSupport

Just heard about a 14-year-old who can't attend school this year because of #chroniclyme and is really depressed. So upsetting! If anyone in the NE US has advice about #lyme, please let me know because they are looking for a doctor who can help. #lymedisease

Excellent newsletter today from @douthatnyt. Covers lots of important territory and worth reading more than once. #LongCovid #mecfs #ChronicLyme

https://www.nytimes.com/2022/12/02/opinion/chronic-illness.html?smid=nytcore-ios-share&referringSource=articleShare

@sleepyknave

I have been seeing this for a long time. Curious if you know when this started. HIV/AIDS?

I know the #MyalgicEncephalomyelitis & #ChronicLyme communities concur after what they did in 1994.

This book (The Why by Hillary Johnson) explains the history of what the CDC did to #pwME.

https://www.amazon.com/Why-Historic-CFS-Call-Arms/dp/0578398478?ref_=d6k_applink_bb_dls_failed

Chronic Lyme info at www.May12.org

1994 was a pivotal year for systemic bias against chronically ill patients. That would be a great story for journalists to cover!

#ChronicLyme is so, so hard to live with. My health is always changing. Some days I’m okay some days I can’t get out of bed. It’s so frustrating. It’s like having something nice (Aka, health) within reach and having it taken away from you, over and over again.

Soo, hi. I have #LymeDisease more specifically #ChronicLyme I will post more about these in the future I promise! I’ve been sick since I was 15. So 9 years. I was only correctly diagnosed when I was 21, which was devastating for my health, letting the #Lyme run rampant for so long. I got a PICC line and it helped quite a bit. Then things got worse, PICC line went out, I developed gastritis from all the antibiotics. Had to switch docs because we weren’t sure treatment was working.

Anyone else have #ChronicLyme?

Thrilled to find Artisan Chat!! What a welcoming place this seems with lots of inspiration and support!

Some hashtags to by way of #Introduction during the #TwitterMigration : #Knitting #CrossStitch #Cats #YarnAddict #InclusiveYarnCommunity #IndieDesignerSupporter .

Other info : Live in #Canada with #ChronicIllness #ChronicPain #ChronicLyme