If you’re not in a good headspace after #DamarHamlin and need to talk to someone, you can call or text the National Suicide and Crisis Lifeline at 988, or text the word “HOME” to 741741 #CrisisTextLine

#crisislines #988Lifeline #CrisisTextLine

It is difficult to hold the health care system (such as it is) accountable in the USA.

I made an FOIA (freedom of information act) request to USA agency SAMHSA for:

"All public agency records relating to the application & approval, or disapproval, of Crisis Text Line as service provider (backup or otherwise) to 988 Suicide & Crisis Lifeline (formerly known as National Suicide Prevention Lifeline) (“988 Lifeline”)."

They replied: ...

@urbandata @p2173
I'm personally grateful to Dr. Bernholz for this work and for keeping a light shining on #CrisisTextLine (p. 14) as an example of exploitative data practices that are continuing, against person in their most vulnerable moments. #crisislines

#crisislines Apparently USA agency SAMHSA isn't responsible for approving crisis line centers for participation in the #988Lifeline national call/text network. Film at 11.

Partial response to my public records request about whether #CrisisTextLine has been approved:

"Approval or disapproval of service providers to the 988 Suicide & Crisis Lifeline is not handled by the federal agency. It is managed by a grantee. Hence, we have no agency records related to this request."

I have more questions.

Content: #crisislines, advocacy
Retaining crisis conversations indefinitely is a carceral-state act. Capturing and holding in jail the words, at a private corporation's pleasure. Words of unsuspecting humans, in their crisis moments & volunteers. "Sentiment-rich" data is not a cool take. #CrisisTextLine / Loris

#TrevorProject and #CrisisTextLine are great places to reach out to for help. https://www.newportacademy.com/resources/mental-health/self-injury/

I submitted these comments about #dataethics #consent #privacy #AI to the USA Federal Trade Commission, using #CrisisTextLine for examples. Also #TheTrevorProject is mentioned.
https://reformcrisistextline.com/wp-content/uploads/2022/11/FTC_Comment_tdr_2022-11-21.pdf

#CrisisTextLine #CrisisLines
I'm sharing this link to a 28 Feb 2022 Lock and Code podcast interview of Courtney Brown by @davidalruiz. An informative interview for those interested in crisis lines, non-profits, #DataEthics. #988Lifeline.

So - bringing it to the top. Courtney Brown is currently at Larkin St Youth Services in San Francisco.

CW: Content - podcast discusses variety of issues faced by persons experiencing crisis.
https://podcasts.apple.com/us/podcast/how-crisis-text-line-crossed-the-line-in-the-publics-mind/id1500049667?i=1000552467602

#crisislines #988Lifeline
It takes about 45 text msgs with a volunteer on a crisis line for someone experiencing crisis to feel they can go on. That's kind of amazing.
For a non-profit to then profit off that, is gut-wrenching.
#CrisisTextLine still holds shares in Loris .ai, the for-profit it created.

RT @holdspacefree@twitter.com

Retweeting this comment from Feb 1, and adding that #CrisisTextLine has now, apparently, disbanded its data/ethics/research advisory board, and clinical advisory boards. https://twitter.com/holdspacefree/status/1572721598498766850 Who will seek accountability from this largely unregulated non-profit? https://twitter.com/ArsonAtDennys/status/1488770938221076481

🐦🔗: https://twitter.com/holdspacefree/status/1573065452074717184

There are some places that algorithms shouldn't go.
(1) Triage of the queue, and
(2) Conversation texts.
#CrisisTextLine
This is to protect people from the Data Allure & Data Greed stampede that tramples consent and dignity in crisis moments, when it is most needed.

Happening today until 4pm EDT USA: FCC forum discussing Geolocation for National 988 hotline rollout.

https://www.fcc.gov/live

I favor automatic opt-out for geolocation within 988. This is not 911 (emergency services request). "Active rescue" poses a danger to many.

For reference, see FCC letter requesting an investigation of #CrisisTextLine by the FTC--Terms of Service does not provide meaningful consent.

FCC Mar 22, 2022 Letter to FTC:
https://reformcrisistextline.com/wp-content/uploads/2022/04/ltr_FCC_to_FTC_03-22-2022_transcribed_to_text.pdf

Wishing all a good day.

RT @holdspacefree@twitter.com

1/12 I’m calling on #CrisisTextLine to stop allowing anonymous donations. It was shared with me that 2020 financials were recently posted. In 2020, there were massive donations—securities donations totaling $30.4M plus several cash at $1M. All appear anonymous.

🐦🔗: https://twitter.com/holdspacefree/status/1526254871048925185

#CrisisTextLine Any current or former staff or volunteers who would be willing to talk with me, please reach out, even if just to say hi. I do have a question to ask & opportunity to share. I will respect all wishes for confidentiality. Thank you.
My website is here https://reformcrisistextline.com/

DISGUSTING!!!!!!!!!!!!!

#ItsGoingDown
How #CrisisTextLine is #Monetizing Its #Data

#tech #mentalhealth
On this episode of the It's Going Down podcast, we host a round table discussion on Crisis Text Line monetizing the data of those that use its platforms for help. https://twitter.com/jjvincent/status/1487091130659450886?s=20&t=Mv8dHCX65cdBNX23X0oRKA As Politico reported: Crisis Text Line is one of the world’s most prominent mental health support lines, a tech-driven nonprofit that uses big data...

https://itsgoingdown.org/how-crisis-text-monetizing-data/

@onepict Oh holy hell, Dana's on the board?!!!

I am on the board of @CrisisTextLine. Many people are asking us to account for our decisions. To do so, I wrote a blog post detailing my ongoing struggle to govern responsibly and ethically: http://zephoria.org/thoughts/archives/2022/01/31/crisis-text-line-from-my-perspective.html

https://nitter.kavin.rocks/zephoria/status/1488308977087647745

Danah Boyd, YOU ARE IN THE WRONG

#DanahBoyd #CrisisTextLine #Surveillance #MentalHealth