Response to Anon:

I have those fights within at times as well.  Sometime symptoms of disability play a part.

It's sad when individuals want accomodation, or will accommodate other's symptoms and limitations but,  do not afford the same to all. Some folks even shun or retaliate. This is often especially true for people with #InvisibleDisabilities. Analogy? Ramps are a nessesary accommodation but, they do nothing for the brain.

What is more sad is that persons with disabilities are often the worst offenders.  #DisabilitySolidarity and #DisabilityCommunity with #CrossDisabilitySupport are so important. Without, our community's quest for equality and inclusion is ineffective.

Thank you, for your unwavering support and comradery.  I am always here for you if you need.

#equality #inclusion #understanding #acceptance #accommodation #love #ActuallyAutistic #BrainInjury #disability #DisabilityAdvocacy #BrainInjury #TBI #ABI #AnoxicBrainInjury #Support #InvisibleDisabilityRights

10 small things …

I finally dragged myself to do grocery shopping today.
It took FOUR Hours.

After all the product decisions, lights, noise, screaming little ones and overwhelming, over-stimulation.. I’m a puddle, in a glass, that got knocked over on the the floor. I feel like a stain on the rug.  Oh yeah, I still have to put all the groceries away.

“The act of cooking or doing groceries are both exhausting.” (Evie)

It’s not unusual for people with #BrainInjury and other #InvisibleDisabilities to dislike,  and be taxed greatly, by daily tasks.  Evie’s piece: “10 Small Things You Can Do to Help Someone with a Brain Injury ”, is a concise, easy reading jem.  This is a must for anyone interested in understand  and accommodating people that live with (ID) invisible disabilities.  It’s worth two minute to read, don’t you think?

As one living the subject matter, I find Evie’s list to be the perfect glimpe for those “looking in”.  So many, are unaware that even little things can exacerbate a person with IDs.  From where to sit in a room, to being asked “how are you doing “, Evie has great wisdom on accommodation.

For me at times, bright light is like kryptonite with a migrane.  Shrilly sounds... and even the “buzz" of shoppers in the background, weaken my battery and bend up the spoons. The brain is a powerful force that controls our breathing, movement, emotion and thinking.  Like any other “muscle”, it wears down and needs rest.  This is also true for the brains of individuals with many types of invisible disabilities. Better understanding and accommodation go hand in hand.

Evie offers her insight in:

“10 Things…”:

https://refindingnormal.com/en/2017/09/24/help-someone-brain-injury/

Check out Evie’s others great writing on living with brain injury here:

https://refindingnormal.com/en/author/evievans/

Don't forget about the ALT text.

#DisabilitySolidarity :solidarity: #TBI #ChronicIllness #spoonies #pain #LongCovid #fibromyalgia #fatigue #CrossDisabilitySupport #care #ActuallyAutistic #BrainInjury #inclusion #InvisibleDisabilityRights #understanding #inclusion #love

OutOfExile_IDR - § Focus:
@OutOfExile_IDR@disabled.social OutOfExile_IDR - § Deux:
@OutOfExile_IDR@neurodifferent.me

“I couldn't really imagine, what it's like to not imagine…” 

PHOTOREALISTIC IMAGINATION - APHANTASIA - HYPERPHANTASIA

Imagine…rather picture.. no, visualize a place in your m.....

What if none of these were an option for your brain?  No going to your happy place, where the flowers are in bloom and the tea is hot?  No being comforted by the golden sunset on the beach, or the vista from atop the mountain in your minds eye.  Yes, “I couldn't really imagine what it's like to not imagine…”

The experience of those that live with Aphantasia, can be accompanied by memory issues and difficulty remembering faces. This is not to say, that these individuals cannot retain information, or remember intricate detail.  When giving descriptions, people with Aphantasian will often cite detailed facts and data, rather than using imagery. Many are likely to be introverted, as well.

Some information on Aphantasia, dates back to the1880s but, there hasn’t been a lot of attention on the subject until recent years. The brain’s cerebral cortex is thought to function differently, causing interference with mental visualization. One view on Aphantasia considers, it may only be a different way of thinking; suggesting the Neurodivergent, rather than the neurological.

With Hyperphantasia, some people experience powerful imagery generation within the mind; or being said to have “Photorealistic Imagination”.

"Typically, individuals with hyper-imagination are able to construct imagery that is beyond detailed and brightly outlined—resulting in some individuals having the capability even to experience a 360-degree vision.."

Paul Deretskiy

The contrast between Aphantasia and Hyperphantasia, is just another fascinating reflection of the human mind.  The links below are definitely a rabbit hole worth exploring. It seems I may know a bit about photorealistic imagery, as well as little more about myself.   Imagining what one with Aphantasia may experience, I’m at a loss...

I imagine it may feel… like “being blind in your mind”.  I couldn’t imagine, “what it’s like not to imagine”.

"Brain" Artwork below by John Hain: Buy him a cup?

https://pixabay.com/images/id-1000062/

Paul Deretskiy’s piece:
https://memoryos.com/article/hyperphantasia-revealing-the-truth-about-photorealistic-imagination

Photorealistic  Imagination:
https://www.magneticmemorymethod.com/hyperphantasia/

Aphantasia:
https://www.stemata.org/blog/what-is-the-loss-of-the-minds-eye-or-aphantasia

UK Aphantasia discussion:
https://www.bbc.com/news/health-34039054

When you are blind in your mind:
https://www.verywellmind.com/aphantasia-overview-4178710

What is Aphantasia:
https://aphantasia.com/what-is-aphantasia/

#PhotorealisticImagination #Aphantasia #Hyperphantasia #aphasia #WernickesArea #BrocasArea #visualization
#DisabilitySolidarity #Imagination #CrossDisabilitySupport #ActuallyAutistic #BrainInjury #VisualImpairment #VisualCortex
#NeurodivergentThinking
#InvisibleDisabilities #equality
#InvisibleDisabilityRights #imagine

New: Revised Hashtag Intro.
Click here 🧠 to expand.
The Proverbial list Evolved:

Focus:
:solidarity: #DisabilitySolidarity #DisabledCommunity #EndAbleism #InvisibleDisabilityRights #StopAbleistHate #DisabilityAdvocacy #passionate #DisabledVoicesUnite #CrossDisabilitySupport #inclusion #ListeningEar #Here4All #NeurodivergentThinking #neurodiversity
#ConcussionAwareness #TBI #ABI #AnoxicBrainInjury #BrainInjury #SpineInjury #fibromyalgia #LimbDifference #ActuallyAutisic #OrthopedicDisabilities #SticksAndStones #BrokenBones #NaturesPharmaceutical #DisabilityAcceptance #EndAbleistHateCrime #StopAbleistSlurs #DisabilityEconomicJustice #CripTheVote #DisabilityLobby #HumanInterest #NonPartisan #research #Education #Knowledge
#UnityConquers #TearDownTheWall
:solidarity:

Behind and beside in :solidarity: : #CivilRights #MentalHealth #EndRacism #EndBigotry #LandBack #gratitude Kahnawá:ke #LGBTQIA #BLM #WomenRights #EqualPay #StopViolence #StopAsianHate #POC #EndBigotry for #everyone
#BeYou #BeNice
#UnityConquers #TearDownTheWall :solidarity: !!

Un peu de moi?
Je ne parle pas couramment Français. I like using #HastagsNobodyWillEverSearch
#FilmMaking #Writing #poetry
Ex-#musician #Songwriter Passé
💐⚘🌺🏵 #GardenCreator extraordinaire. #FlowerGardens
Et Bien plus encore

Original profile is informational only.
@OutOfExile_IDR@disabled.social

New posts and communication will originate from § Voice and § Deux: @OutOfExile_IDR@neurodifferent.me
The character count affords me accommodation.
🙏, ✌️, 💛, :solidarity: #accommodation for "👥🫂👤" with #InvisibleDisabilities
Just like many of us, this list is incomplete and still evolving.

Don't forget the ALT text.

1of?
#Ableism and Division Within the #DisabilityCommunity

#CrossDisabilitySupport

People often confide in me for some reason. I have also recieved many compliments from OUR visually impaired #community regarding my descriptive ALT text.

This saddens me:

Anon:
"...someone was trying to explain that (they) can’t do Alt codes because it’s too hard for xxx #disability and the reception wasn’t good.
...There’s other stuff. Some instances are that bad?"

Please be sure to read the ALT text and also to consider the journey of others.

#DisabilitySolidarity #TBI #love #care

1of?
#Ableism and Division Within the #DisabilityCommunity

#CrossDisabilitySupport

People often confide in me for some reason. I have also recieved many compliments from OUR visually impaired #community regarding my descriptive ALT text.
This saddens me:

Anon:
"...someone was trying to explain that (they) can’t do Alt codes because it’s too hard for xxx #disability and the reception wasn’t good.
...There’s other stuff. Some instances are that bad?"

#DisabilitySolidarity #TBI #love #care

@shunthepants
Hi. I came across your page and read your into.

IDR is for Invisible Disability Rights. You are so right about community and accessibility. #DisabilitySolidarity and #CrossDisabilitySupport is so important to create nessesary change for the #DisabilityCommunity and other marginalized communities.

Below is a link to my hashtag intro list and the page is full of related content and support for others. I'd love to hear from you, if you choose.

https://disabled.social/@OutOfExile_IDR/109345631149677871

@KaCi
Thanks for this. So many miss this concept in #advocacy.

#DisabilitySolidarity and #CrossDisabilitySupport is so important in the quest for #InvisibleDisabilityRights, #DisabilityRights and #DisabilityJustice .

A house divided, will not stand. Keep up the great work!!!

The Proverbial #list
#DisabilitySolidarity #DisabledCommunity #EndAbleism #InvisibleDisabilityRights #AbleistHateCrimes #StopAbleistHate #DisabilityAdvocacy #DisabledVoices #CrossDisabilitySupport #inclusion #ListeningEar #Here4All #NeurodivergentThinking #neurodiversity
#ConcussionAwareness #TBI #ABI #AnoxicBrainInjury #BrainInjury #SpineInjury #fibromyalgia #LimbDifference #AutismAwareness #DisabilityAwareness #CripTheVote #DisabilityLobby #Research #Educating #Knowledge #FilmMaking #Writing