ME Association

Decode ME Study - "Join the world’s largest ME/CFS study!"

Are you aged 16 or over, live in the UK, and have had an ME/CFS diagnosis from a healthcare professional?

If so, please take part (if you haven't already) here:

https://www.decodeme.org.uk/portal/

#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #LongCovid #DecodeME #DecodeMEStudy #DNAresearch #Research @mecfs

Study looking for #MEcfs participants in the UK (including those who illness followed Covid)

"It's not too late to be part of this change"
Sign up here: https://www.decodeme.org.uk/portal/

#InternationalWomensDay #pwME @mecfs #DecodeME @longcovid @cfs #MyalgicEncephalomyelitis

UK study:

Decode ME Study

As we continue our data collection stage for DecodeME, we’re really pleased to see more people visiting our website and social media platforms. If you have ME/CFS and want to help us change history, there’s still time to sign up as a participant!

@mecfs #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #CFSME #CFIDS #SEID #NeuroME #DecodeME #DNAStudy #ResearchStudy #ResearchParticipantsNeeded #StudyRecruitment

1/

At the @Biocentre_UK@twitter.com today with @CGATist@twitter.com and Diana, our project manager. Looking forward to seeing how the #DecodeME samples are being processed and DNA extracted.

If you are a #pwME person with #MyalgicEncephalomyelitis aka #ChronicFatigueSyndrome then #DecodeME still needs c.5,000 UK residents to join. First complete the on-line questionnaire. If one meets the criteria (which have to be very strict to ensure scientific rigour), one may be sent a spit-kit in order to give a #DNA sample to the researchers. Please consider helping out this vital research. Do not worry if you have several conditions, most #pwME are in the same boat! 💙
https://www.decodeme.org.uk/portal/?utm_source=facebook&utm_medium=social&utm_campaign=dontmissout_facebook_28oct22&fbclid=IwAR1ZenNPqAOsMyr91LaGGuzaOeEA3j2Bf52zX6-UbQ0fyr5w5Rm7TqtJGYI

For those that want to know why I have a #DecodeMe hastag on my profile, and especially if you are living in the #UK or know people that do, check out https://www.decodeme.org.uk #MECFS #LongCOVID

Thanks to @firefoxx66, I've just learned about #DecodeME, a massive study of the genetics of #mecfs in the UK, that's at the intersection of my professional and very personal interests. If there was such a study in France (or in the EU, at any rate, accepting participants from France) I would love to participate...

Anyway, if you know anyone in the UK with #mecfs, including triggered by covid, who would like to be a research participant, send this URL their way
https://www.decodeme.org.uk/

I'm happy to help boost the #DecodeME study - designed to help shed light on #ME #CFS in a study that truly reaches out to & works with those it aims to help. 🙏🏻💙

If you or someone you know in the UK have ME/CFS please consider if you/they could sign up to be part of it!

RT @DecodeMEstudy@twitter.com

Join our webinar next week! Updates on the study and a Q&A with @SonyaChowdhury@twitter.com & @CGATist@twitter.com

Watch on Facebook live or register to join on Zoom: http://ow.ly/1mBG50LzC30

We hope you can join!

Comment any questions below:

#MECFS #DecodeME #PwME

🐦🔗: https://twitter.com/DecodeMEstudy/status/1590736225409069057

Me watching Syabria's DNA double helix on #GBBO thinking I kinda know what one of those is thanks to #DecodeME

DecodeME have published a statement about the importance of all people in the study, both the questionnaire and DNA part

https://www.decodeme.org.uk/participation-and-criteria-for-the-dna-stage/

"If you have completed the DecodeME questionnaire but have not been asked to provide a DNA sample it is not because we are questioning if you have ME/CFS. You are still a DecodeME participant and your questionnaire answers are valuable to understanding more about the illness and helping the development of future treatments."

#DecodeME #MECFS #pwME

(#pwME = people with ME)
@mecfs @chronicillness

PSA for #pwME - if you are taking part in the #DecodeME study, be prepared that you might not get asked to submit a DNA sample.

You are still in the study, just not the DNA part.

I say this as someone who was screened out yesterday and not asked to take part in the DNA part of the study. I was quite crushed and I did go through a mini "maybe I'm not really ill" episode. But today I've managed to remind myself that I am indeed ill, and the head pixies can bugger off.

#MECFS @mecfs #ChronicIllness

The DecodeME study has officially opened today. This is going to be the worlds biggest study into ME/CFS and will help future research into #MECFS.

You can take part (note: open to people in the UK only) now by visiting http://decodeme.org.uk/portal and signing up.

You can read the full statement about today's launch here http://decodeme.org.uk/statement

Please share widely!

@mecfs @chronicillness

#DecodeME #MECFS