After 3 years of struggles with #rareDisease we got some good news today.✨️

It's my birthday next week. At some point I thought I wouldn't see that day...

Chronic illness is hard.
Rare disease is hard.

.@NHSEngland #scleroderma #dermatomyositis #rareIsMany

It's #autoimmuneAwarenessMonth

As scientist, I am fascinated.
As patient, I am terrified.

Incredibly lucky to have an excellent care team .@LeedsHospitals!

#scleroderma #dermatomyositis #raynauds @NHSEngland

Rare is Many.

There are over 300 Million (!) people living with a rare disease.

@sruk @rarediseaseday
#rareDisease #scleroderma #Dermatomyositis #health #equity

28 FEBRUARY is Rare Disease Day.

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

#rareDisease #scleroderma #Dermatomyositis #Raynauds #noCure
@rarediseaseday @sruk

#ACR22 #ICYMI

https://twitter.com/ElvisHysa/status/1591880557201620992

RT @ElvisHysa@twitter.com

Greatly excited in presenting our work on #capillaroscopy in #connectivetissuediseases at #ACR22.
Take home message: #systemicsclerosis and #dermatomyositis show a more severe microangiopathy compared to other CTDs.
Incredible session! Learnt so much by the other speakers🥰 https://t.co/wo8Fy5RSXZ

🐦🔗: https://twitter.com/ElvisHysa/status/1591880557201620992

#ACR22 #GlobalSummit #Myositis experts #ICYMI

Appreciate the insights of Drs Ingrid Lundberg & GuoChen Wang

https://twitter.com/gurdeep_dulay/status/1590717501729427459

RT @gurdeep_dulay@twitter.com

#ACR22

Tips for anti-#MDA5 #Dermatomyositis

1. Look closely for lung involvement (HRCT, pulmonary function tests) - low threshold to repeat if indicated

2. Muscle involvement may only show when using muscle endurance testing (#myositis functional index)

🐦🔗: https://twitter.com/gurdeep_dulay/status/1590717501729427459