Took part in the #ECRD & discussed how we can tackle #RareDiseases affecting more than 30 million patients in Europe.

We need an EU Action Plan for rare diseases as a pillar of the EU #HealthUnion, which can be built through EU shared competences in health.

@eurordis

🐦🔗: https://nitter.eu/AlinMituta/status/1542560110609932288

It was my honor to participate in the 11th European Conference on Rare Diseases & Orphan Products🙏
RT @eurordis: Last but not least, @kympouropoulos from @europarl_en emphasised the importance of interconnectedness among the European Regulations, which shall foresee the social inclusion and empowerment of people with rare diseases. #ECRD #ECRD2022

🐦🔗: https://nitter.eu/Kympouropoulos/status/1541419887507214336

RT @eurordis: Calling all healthcare professionals 🏥

⏰ It's not too late to register for #ECRD 2022!
Don't miss the opportunity to dialogue with different stakeholders, hear first-hand patient experiences, and help shape future rare disease policies!

👉 https://l.eurordis.org/SyrM

🐦🔗: https://nitter.eu/Frederiqueries/status/1539149236515876874

Today, more than 6,000 rare diseases are affecting up to 36 million people in the EU, many of them children

Together with @Europe2022FR, we are working towards a stronger EU response

#HealthUnion
RT @eurordis: Join us at #ECRD 2022 to hear from EU Health and Food Safety Commissioner, Ms. @SKyriakidesEU on the current challenges 🚧 facing the rare disease community and our next steps in proposing a new European policy framework to ad…

🐦🔗: https://nitter.eu/EU_Health/status/1532280897915035648