@EU_Commission @EpiCARE_ERN And we are working towards a stronger EU response to #RareDiseases

The European Reference Networks (#ERNs) are an essential part of the European #raredisease community and a vital part of the 🇪🇺#HealthUnion

#PurpleDay

More: https://health.ec.europa.eu/european-reference-networks_en

🐦🔗: https://n.respublicae.eu/EU_Health/status/1639934963003817984

We are strengthening the 24 European Reference Networks, including with:

🔸Targeted support for more ambitious goals for registries, international expert panels & professional training

🔸Supporting national actions with EU Member States

#RareDiseaseDay #ERNs

🐦🔗: https://n.respublicae.eu/EU_Health/status/1630499382285029377

🟡#H2020 project @erica_rd_eu is a platform that integrates the research on #rarediseases from all #ERNs. The ultimate aim is to ensure efficient access and safe therapies for the benefit of patients.

🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487293050904576

🟠#H2020 project @solve_rd aims to solve the unsolved #rarediseases by delivering new tests to improve the diagnostics of patients.

The project is closely collaborating with #ERNs @ERN_RND @euro_nmd @ERNIthaca #ERNGENTURIS

🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487290874064898

The European Reference Networks #ERNs facilitate the sharing of knowledge on complex and #rarediseases that require specialised treatments and resources.

Find out more ➡ https://hadea.ec.europa.eu/news/tackling-rare-diseases-through-european-reference-networks-erns-2023-02-28_en

#EU4Health

🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630487284972699648

EU4Health Work Programme 2023 released

https://health.ec.europa.eu/publications/2023-eu4health-work-programme_en

#EU4Health #BeatingCancer #resilience #ERNs #EHDS #pharmaceuticalstrategy #globalhealth

RT @EU_Health: We are working towards a stronger EU response to #RareDiseases

The European Reference Networks (#ERNs) are an essential part of the European #raredisease community and a vital part of the 🇪🇺#HealthUnion

More: https://health.ec.europa.eu/european-reference-networks_en

🐦🔗: https://nitter.eu/EU_HaDEA/status/1585169059804762115

We are working towards a stronger EU response to #RareDiseases

The European Reference Networks (#ERNs) are an essential part of the European #raredisease community and a vital part of the 🇪🇺#HealthUnion

More: https://health.ec.europa.eu/european-reference-networks_en

🐦🔗: https://nitter.eu/EU_Health/status/1584857831530168320

More than 6,000 rare diseases affect up to 36 million people in the EU, many of them children.

Today and tomorrow @EU2022_CZ hosts an expert conference on #RareDiseases to further strengthen cooperation between EU countries.

Agenda & streaming below ⬇

#HealthUnion #ERNs

🐦🔗: https://nitter.eu/EU_Health/status/1584857555779698689

@EUCOPE @EU2022_CZ Together with @EU2022_CZ, we are working towards a stronger EU response to #RareDiseases

The European Reference Networks (#ERNs) are an essential part of the European #raredisease community and a vital part of the 🇪🇺#HealthUnion

More: https://health.ec.europa.eu/european-reference-networks_en

🐦🔗: https://nitter.eu/EU_Health/status/1584569535922741248

European Reference Networks (#ERNs) are one of the greatest achievements of the European #raredisease community and a vital part of the 🇪🇺#HealthUnion
RT @ern_reconnet: Information webinar on #ERNs #evaluation provided by @EU_Commission with Jose Valverde: how the evaluation will be organised both at the Network level and at the level of Full Members since all the Full Members that joined #ERNReCONNET in 2017 will be evaluated.

🐦🔗: https://nitter.eu/EU_Health/status/1575138606343241728

RT @EU_Health: European Reference Networks (#ERNs) are one of the greatest achievements of the European #raredisease community and a vital part of the 🇪🇺#HealthUnion

🐦🔗: https://nitter.eu/EU_HaDEA/status/1575145063922995202

-4 days⌛️
Time to finalise your application for #EU4Health #tender on:
🔵 Strengthening inspections and training in the field of Substances of Human Origin #SoHO
🟣Evaluating #ERNs & healthcare providers

👉 https://hadea.ec.europa.eu/calls-tenders_en

🐦🔗: https://nitter.eu/EU_HaDEA/status/1536708957829484547

RT @EU_HaDEA: -4 days⌛️
Time to finalise your application for #EU4Health #tender on:
🔵 Strengthening inspections and training in the field of Substances of Human Origin #SoHO
🟣Evaluating #ERNs & healthcare providers

👉 https://hadea.ec.europa.eu/calls-tenders_en

🐦🔗: https://nitter.eu/EU_Health/status/1536709198326685697

10 days to go ⏰

Apply for the #EU4Health tenders on:
🔸 Strengthening the oversight and training in the field of SoHO in the EU
🔸 Multiple framework contract to evaluate #ERNs & #healthcare providers

👉 https://hadea.ec.europa.eu/calls-tenders_en

🐦🔗: https://nitter.eu/EU_HaDEA/status/1534434775720677376

Since the first weeks of the war, the #EUfunded #EuropeanReferenceNetworks have been supporting people with rare diseases fleeing #Ukraine.

Learn more about #ERNs and their initiative #ERNcare4Ua ⤵️
https://www.erncare4ua.com/

#StandWithUkraine
RT @EU_Health: At least 6% of the Ukrainian population, including those currently migrating, are affected by a #RareDisease

Our #EuropeanReferenceNetworks are supporting people with rare di…

🐦🔗: https://nitter.eu/EU_HaDEA/status/1532627408045711360

#EU4Health tenders closing on 17 June ⏰

🔸 Strengthening the oversight and training in the field of SoHO in the EU

⚠️ Deadline extension: Multiple framework contract to evaluate #ERNs & healthcare providers

https://hadea.ec.europa.eu/calls-tenders_en

🐦🔗: https://nitter.eu/EU_HaDEA/status/1531535052915494915

RT @EU_HaDEA: ⚠️To #consultancies, #research services, #pharmaceuticalcompanies

Deadline approaching for #EU4Health tenders:

🔹Multiple framework contract to evaluate #ERNs and healthcare providers
🔸EU FAB Call to reinforce the EU #vaccine production

🗓️Apply by 3/06
https://hadea.ec.europa.eu/calls-tenders_en

🐦🔗: https://nitter.eu/EEAthina/status/1528953177684549633

⚠️To #consultancies, #research services, #pharmaceuticalcompanies

Deadline approaching for #EU4Health tenders:

🔹Multiple framework contract to evaluate #ERNs and healthcare providers
🔸EU FAB Call to reinforce the EU #vaccine production

🗓️Apply by 3/06
https://hadea.ec.europa.eu/calls-tenders_en

🐦🔗: https://nitter.eu/EU_HaDEA/status/1528671642129506305

RT @EU_HaDEA: ⚠️To #consultancies, #research services, #pharmaceuticalcompanies

Deadline approaching for #EU4Health tenders:

🔹Multiple framework contract to evaluate #ERNs and healthcare providers
🔸EU FAB Call to reinforce the EU #vaccine production

🗓️Apply by 3/06
https://hadea.ec.europa.eu/calls-tenders_en

🐦🔗: https://nitter.eu/EMA_News/status/1528683908505776141