SOS FACING STATE RETALIATION · @weareintolerant
457 followers · 664 posts · Server kolektiva.socialMCAS = Mast Cell Activation Disorder. If anyone reading this has MCAS and has undergone the dramatic shift in severity that happens for some with the condition has any advice it is very welcome.
#MastCellActivationSyndrome #EhlersDanlosSyndrome
JRMilward · @JRMilward
290 followers · 556 posts · Server nerdculture.deAnyone had any experience with orthopedic cushions? I've finally thrown in the (rolled-up) towel and ordered a donut-shaped one that's supposed to be excellent for sore coccyxes, pelvic/hip pain, etc., and I'm hoping it will make sitting at the computer more bearable.
#EhlersDanlosSyndrome #ChronicIllness #ChronicPain #AmWriting #WritingCommunity
#EhlersDanlosSyndrome #chronicillness #chronicpain #amwriting #writingcommunity
Liana Brooks · @LianaBrooks
158 followers · 2442 posts · Server mastodon.onlineThe incision was not properly stitched shut for my body's terrible healing abilities (hello, #EhlersDanlosSyndrome) and there's been subcutaneous bleeding off and on since the original surgery. So.
*shrug*
Malka Beth · @BrahmaBelarusian
51 followers · 808 posts · Server todon.eu@micah @shrimp @actuallyautistic hand sanitizer or those soaps...I've a lovely (sarcasm) combination of delicate and quick absorbing skin from #EhlersDanlosSyndrome and the senory issues of autism, so when I remember I just bring out my own soap or be a little grateful for a little neuropathy kicking in, to let me duck the senory problem. @multipledisabilities
Ruth Cheesley (she/her) · @rcheesley
111 followers · 101 posts · Server mastodon.online
Day 2 #rwrunstreak .. getting back to running after #injury is hard! 4 months off in my case.
Keeping it short, focusing on cadence and technique. Hard work as it forces my pace higher, but great to be back on it!
Snagged some new #Brooks kicks in the sale so looking forward to them arriving!
#running #runstreak #VeganRunners #VeganRunnersUK #thisgirlcan #EDSAthletes #EhlersDanlosSyndrome
#EhlersDanlosSyndrome #edsathletes #thisgirlcan #veganrunnersuk #veganrunners #runstreak #running #brooks #injury #rwrunstreak
Jodi · @Quietisolation
11 followers · 2 posts · Server mastodon.onlineJoined this in case the bird site implodes. Hopefully can recreate the same little community I have over there on here.
#Cycling
#couchpeloton
#Crochet
#StockportCounty
#football
#Rugbyleague
#cricket
#speedway
#gardening
#cooking
#reading
#EhlersDanlosSyndrome
#EhlersDanlosSyndrome #reading #cooking #gardening #speedway #cricket #Rugbyleague #football #StockportCounty #crochet #couchpeloton #cycling
Ruth Cheesley (she/her) · @rcheesley
101 followers · 91 posts · Server mastodon.online📣 New blog post: My top hacks for surviving long-distance travel with Ehlers-Danlos Syndrome.
#EDS #EhlersDanlos #EhlersDanlosSyndrome #TravelHacks #Disability #DisabledTravel #Spoonie
#spoonie #disabledtravel #disability #travelhacks #EhlersDanlosSyndrome #ehlersdanlos #eds
JRMilward · @JRMilward
111 followers · 105 posts · Server nerdculture.deOops, didn't #Introduction properly, so here goes again 😂
#TombRaider
#AngelOfDarkness
#LaraCroft
#VoiceActing
#Audiobooks
#audioproduction
#ToriesOut
#SaveOurNHS
#AbolishTheMonarchy
#Cats
#Cooking
#Nature
#Art
#Writing
#readingcommunity
#Books
#WritingCommunity
#Science
#Biology
#openuniversity
#Editing
#EhlersDanlosSyndrome
#DisabledCommunity
#FantasyandScienceFiction
#movies
#soundtracks
#sfx
#TransLivesMatter
#HumanRights
#BlackLivesMatter
#DisabledLivesMatter
#LGBTQIAS
#introduction #tombraider #AngelOfDarkness #laracroft #VoiceActing #audiobooks #audioproduction #toriesout #SaveOurNHS #AbolishTheMonarchy #cats #cooking #nature #art #writing #readingcommunity #books #writingcommunity #science #biology #openuniversity #editing #EhlersDanlosSyndrome #disabledcommunity #FantasyandScienceFiction #movies #soundtracks #sfx #translivesmatter #humanrights #blacklivesmatter #disabledlivesmatter #LGBTQIAS
Ruth Cheesley (she/her) · @rcheesley
101 followers · 91 posts · Server mastodon.onlineHi folks, figured I should finally do an #introduction here!
I'm Ruth, she/her, based in the UK.
I work full time for #Acquia as Project Lead for @mautic - yes, I'm paid to work in #opensource - super awesome!
#Mautic is an Open Source #MarketingAutomation platform which allows you to do cool stuff across the digital experience - https://mautic.org.
Outside work I am a #musician (learning flute, piano & music theory), #buddhist #Vegan #Runner, and live with #EhlersDanlosSyndrome.
#EhlersDanlosSyndrome #runner #Vegan #buddhist #musician #marketingautomation #mautic #opensource #acquia #introduction