Legitimate Selvedge · @MartianBananas
54 followers · 543 posts · Server kolektiva.social

It's wild that even people trying to advocate for endometriosis patients and comment on how bad it is for them to get respectful care still manage to get basic shit about endometriosis wrong.

There are no tests other than a biopsy and visual confirmation (so a laparoscopic surgery) that can diagnose endometriosis.

A respectful doctor might run some less invasive tests to rule out other potential issues (particularly since symptoms can be so wide ranging and impact nearly every part of the body) before recommending a laparoscopic excision but there is no evidence to support testing for endometriosis and not treating at the exact same time, since both are done through a laparoscopic surgery.

No imaging can consistently detect it. No hormone tests.

#Endometriosis

Last updated 1 year ago

Knowledge Zone · @kzoneind
265 followers · 1577 posts · Server mstdn.social

Why is not making us more ? : BBC

Could Be Caused by ? Study Offers Fresh Clues : Sci Am

Why Are We Here? : HBR

Check our latest

knowledgezone.co.in/resources/

#knowledgelinks #bacteria #Endometriosis #productive #Technology

Last updated 1 year ago

Isobel Ruine · @canard_deluxe
0 followers · 1 posts · Server kolektiva.social

I live with my cat Pluton, I'm and homebound since 2021 because of and , trying to find community online. English is not my first language

Main hobbies are and , nature inspires me in everything I do and everything I believe in

I'm mostly involved in food justice, climate action, disability justice, , reproductive rights and community care

Happy to connect, not a big social media person so it might take me a while to get the hang of things !

#disabled #Endometriosis #adenomyosis #foraging #gardening #antispeciesism

Last updated 1 year ago

EU Research Results · @CORDIS_EU
131 followers · 1367 posts · Server respublicae.eu

is looking into the pain of endometriosis to help find solutions.
A new study shows how different types of pain and share a genetic basis. Discover the science ➡️ europa.eu/!FGwrXH

🐦🔗: n.respublicae.eu/CORDIS_EU/sta

#EUresearch #Endometriosis

Last updated 1 year ago

The European Network · @TheEuropeanNetwork
2142 followers · 1282 posts · Server mstdn.social

French supermarket giant Carrefour will allow female employees to take days off if they suffer from endometriosis, a medical condition that can cause excessive period cramps.

The move is the latest to allow women extra time off in a country where paid menstrual leave still depends on the individual initiative of employers.

One in ten women worldwide suffer from endometriosis, a chronic disease.

france24.com/en/europe/2023041

#Endometriosis #MenstrualLeave #France

Last updated 2 years ago

Iain MacLean · @pkboi
323 followers · 954 posts · Server mstdn.social

A very personal project our daughter-in-law has been working on for the past few months. Really looking forward to watching it.

rnz.co.nz/programmes/in-depth-

#fertility #womenshealth #Endometriosis

Last updated 2 years ago

Dierck ✅ · @Dierck
82 followers · 4454 posts · Server norden.social

Die Krankenkassen bzw. die gesetzlichen Grundlagen dazu sind doch wirklich krank. 😡
Endometriose ist das Stichwort.
Aber auch der PSA Test für Männer kostet 34 €. Wie kann das sein? Ist doch grundlegende Vorsorge?

taz.de/Gender-Bias-beim-Arzt/!

#Endometriosis

Last updated 2 years ago

Carmela · @DocCarms
980 followers · 16316 posts · Server mstdn.social
Luke 'Ming' Flanagan · @lukeming
15 followers · 3014 posts · Server respublicae.eu

RT @SarahJaneVlogs: We are not crazy
We are not lying
We are not imagining it

Our pain is REAL 🎗️💛

After the week I’ve had of medical gaslighting, I was even more motivated to attend today’s @wwendomarch in Dublin organised by the fabulous @Kathleen_M_King !

🐦🔗: n.respublicae.eu/lukeming/stat

#EndoMarch #Endometriosis

Last updated 2 years ago

Luke 'Ming' Flanagan · @lukeming
15 followers · 2953 posts · Server respublicae.eu

RT @LauraJHalton: Today, 6 women made the effort to travel to Leinster House from all over Ireland to raise awareness & highlight the serious lack of treatment/delays in diagnosis of

Not a single rep from The Minister of Health's office showed up. Disgraceful @DonnellyStephen

🐦🔗: n.respublicae.eu/lukeming/stat

#Endometriosis

Last updated 2 years ago

RT @NoInvisibles: Es No debemos esconder la , q sea visible y tratada adecuadamente.

Este recomendamos el trabajo q hace @endovikinga y su
Q fácil es detectar👇Pues a tratarla‼️

🐦🔗: n.respublicae.eu/beatrizbecerr

#DiaMundialEndometriosis #Endometriosis #EndometriosisAwarenessMonth #EndometriosisDay #EndoGuia

Last updated 2 years ago

Farney Expat (she/her) · @farneyexpat
123 followers · 1079 posts · Server mstdn.social

I just donated to support this Noteworthy investigation into how women's sexual and reproductive health is (or isn't) being supported in Ireland. They are 10% funded - can you help?

noteworthy.ie/proposal/gynaeco

#mastodaoine #reproductivejustice #menopause #Endometriosis

Last updated 2 years ago

Karen Melchior @karmel80@norre · @karmel80
162 followers · 3611 posts · Server respublicae.eu

A fellow panellist then started talking about rare diseases. But endometriosis is *not* a rare disease when 10% of women globally suffer. Amongst certain communities? Numbers are higher. is ignored, in short because it’s pain of women. who.int/news-room/fact-sheets/ 2/2

🐦🔗: n.respublicae.eu/karmel80/stat

#Endometriosis

Last updated 2 years ago

Karen Melchior @karmel80@norre · @karmel80
162 followers · 3610 posts · Server respublicae.eu

Was on a panel this week talking about data sharing and how we can use more data to diagnose earlier. I mentioned with wearables then women could perhaps point out symptoms better and illnesses such as could be diagnosed earlier. 1/

🐦🔗: n.respublicae.eu/karmel80/stat

#Endometriosis

Last updated 2 years ago

Good news/Bonnes nouvelles · @upliftingtoots
405 followers · 956 posts · Server mstdn.social
HaDEA · @EU_HaDEA
42 followers · 1515 posts · Server respublicae.eu

March is 📅

@FEMaLeEUProject is:

🟣Using machine learning and to improve diagnosis, prevention & care in
🟣Developing a model for the detection & management of patients
🟣Conducting research for novel therapies

🐦🔗: n.respublicae.eu/EU_HaDEA/stat

#EndometriosisAwarenessMonth #H2020 #AI #Endometriosis

Last updated 2 years ago

Maggie Maybe · @maggiejk
171 followers · 1148 posts · Server mstdn.social

@LindaVT I was having such terrible hormonal problems that I would have three days of vomiting with the start of my cycle pretty regularly. I have endometriosis, but I don’t know if it’s just extra extra estrogen making me puke or if it’s getting activated by the estrogen. But it’s bad, I need an ER after 2 days of being unable to drink water AT ALL.
My gyno won’t help. She said she could treat a dry vagina but not hormones causing medical emergencies regularly. Ridiculous.

#Endometriosis

Last updated 2 years ago

life after beth :lesbian_flag: · @digitalbeth
136 followers · 1286 posts · Server mastodon.lol

any recommendations for dealing with pain? we're desperate to try just about anything.

#Endometriosis

Last updated 2 years ago

Rebecca Esther (they/she) · @RebeccaEsther
64 followers · 104 posts · Server mastodon.lol

I've never had pain that feels like burning before, but my left side feels like it's ON FIRE. That could be my Endo, right? I'm scared my Endo is getting worse, but I'm even more afraid I'm developing yet another illness or comorbidity.

Such a pleasant way to be woken up in the middle of the night 🙃

#Endometriosis #spooniechat #NEISvoid #painsomnia #chronicpain

Last updated 2 years ago