It's wild that even people trying to advocate for endometriosis patients and comment on how bad it is for them to get respectful care still manage to get basic shit about endometriosis wrong.

There are no tests other than a biopsy and visual confirmation (so a laparoscopic surgery) that can diagnose endometriosis.

A respectful doctor might run some less invasive tests to rule out other potential issues (particularly since symptoms can be so wide ranging and impact nearly every part of the body) before recommending a laparoscopic excision but there is no evidence to support testing for endometriosis and not treating at the exact same time, since both are done through a laparoscopic surgery.

No imaging can consistently detect it. No hormone tests.

#endometriosis

Why is #Technology not making us more #Productive? : BBC

Could #Endometriosis Be Caused by #Bacteria? Study Offers Fresh Clues : Sci Am

Why Are We Here? : HBR

Check our latest #KnowledgeLinks

https://knowledgezone.co.in/resources/bookmarks

I live with my cat Pluton, I'm #disabled and homebound since 2021 because of #endometriosis and #adenomyosis, trying to find community online. English is not my first language

Main hobbies are #foraging and #gardening, nature inspires me in everything I do and everything I believe in

I'm mostly involved in food justice, climate action, disability justice, #antispeciesism, reproductive rights and community care

Happy to connect, not a big social media person so it might take me a while to get the hang of things !

#EUResearch is looking into the pain of endometriosis to help find solutions.
A new study shows how different types of pain and #endometriosis share a genetic basis. Discover the science ➡️ https://europa.eu/!FGwrXH

🐦🔗: https://n.respublicae.eu/CORDIS_EU/status/1663168417376116743

French supermarket giant Carrefour will allow female employees to take days off if they suffer from endometriosis, a medical condition that can cause excessive period cramps.

The move is the latest to allow women extra time off in a country where paid menstrual leave still depends on the individual initiative of employers.

One in ten women worldwide suffer from endometriosis, a chronic disease.

https://www.france24.com/en/europe/20230419-french-retail-giant-carrefour-to-offer-menstrual-leave

#France #MenstrualLeave #Endometriosis

A very personal project our daughter-in-law has been working on for the past few months. Really looking forward to watching it.

#Endometriosis #WomensHealth #fertility

https://www.rnz.co.nz/programmes/in-depth-special-projects/story/2018885956/the-deadline

Die Krankenkassen bzw. die gesetzlichen Grundlagen dazu sind doch wirklich krank. 😡
Endometriose ist das Stichwort.
Aber auch der PSA Test für Männer kostet 34 €. Wie kann das sein? Ist doch grundlegende Vorsorge?
#Endometriosis
https://taz.de/Gender-Bias-beim-Arzt/!5923447/

This is an excellent article on #Endometriosis #Menstruation #MenstrualPain

https://www.nationalgeographic.com/magazine/article/endometriosis-pain-misdiagnosed-surgery-excision-women

RT @SarahJaneVlogs: We are not crazy
We are not lying
We are not imagining it

Our pain is REAL 🎗️💛

After the week I’ve had of medical gaslighting, I was even more motivated to attend today’s @wwendomarch in Dublin organised by the fabulous @Kathleen_M_King !

#EndoMarch #endometriosis

🐦🔗: https://n.respublicae.eu/lukeming/status/1640355775150268416

RT @LauraJHalton: Today, 6 women made the effort to travel to Leinster House from all over Ireland to raise awareness & highlight the serious lack of treatment/delays in diagnosis of #endometriosis

Not a single rep from The Minister of Health's office showed up. Disgraceful @DonnellyStephen

🐦🔗: https://n.respublicae.eu/lukeming/status/1639024621017001984

ENDOMETRIOSIS.
https://rodriguezamorin.blogspot.com/2023/03/15.html
https://rodriguezamorin.bearblog.dev/20230315/
#Asturies
#CovadongaToméNestal
#SanidadPública
#ENDOMETRIOSIS

RT @NoInvisibles: Es #DiaMundialEndometriosis No debemos esconder la #Endometriosis, q sea visible y tratada adecuadamente.
#EndometriosisAwarenessMonth
Este #EndometriosisDay recomendamos el trabajo q hace @endovikinga y su #EndoGuia
Q fácil es detectar👇Pues a tratarla‼️

🐦🔗: https://n.respublicae.eu/beatrizbecerrab/status/1635781611953192961

I just donated to support this Noteworthy investigation into how women's sexual and reproductive health is (or isn't) being supported in Ireland. They are 10% funded - can you help?

#endometriosis #menopause #ReproductiveJustice #MastoDaoine

https://www.noteworthy.ie/proposal/gynaecology-service-issues-197-Mar2022?contributed=1&time=1678702837294&totalAmountRaised=29500

A fellow panellist then started talking about rare diseases. But endometriosis is *not* a rare disease when 10% of women globally suffer. Amongst certain communities? Numbers are higher. #Endometriosis is ignored, in short because it’s pain of women. https://www.who.int/news-room/fact-sheets/detail/endometriosis 2/2

🐦🔗: https://n.respublicae.eu/karmel80/status/1634571666171854848

Was on a panel this week talking about data sharing and how we can use more data to diagnose earlier. I mentioned with wearables then women could perhaps point out symptoms better and illnesses such as #endometriosis could be diagnosed earlier. 1/

🐦🔗: https://n.respublicae.eu/karmel80/status/1634571192269938688

https://www.abdn.ac.uk/news/16820/ #uk #endometriosis #GoodNews

March is #EndometriosisAwarenessMonth 📅

#H2020 @FEMaLeEUProject is:

🟣Using machine learning and #AI to improve diagnosis, prevention & care in #endometriosis
🟣Developing a model for the detection & management of patients
🟣Conducting research for novel therapies

🐦🔗: https://n.respublicae.eu/EU_HaDEA/status/1630848438941229056

@LindaVT I was having such terrible hormonal problems that I would have three days of vomiting with the start of my cycle pretty regularly. I have endometriosis, but I don’t know if it’s just extra extra estrogen making me puke or if it’s #endometriosis getting activated by the estrogen. But it’s bad, I need an ER after 2 days of being unable to drink water AT ALL.
My gyno won’t help. She said she could treat a dry vagina but not hormones causing medical emergencies regularly. Ridiculous.

any recommendations for dealing with #Endometriosis pain? we're desperate to try just about anything.

I've never had pain that feels like burning before, but my left side feels like it's ON FIRE. That could be my Endo, right? I'm scared my Endo is getting worse, but I'm even more afraid I'm developing yet another illness or comorbidity.

Such a pleasant way to be woken up in the middle of the night 🙃

#Endometriosis #SpoonieChat #NEISvoid #Painsomnia #ChronicPain