"Letter to Journal about Inflated Claims of FND Prevalence"

David Tuller DrPH continues to pursue and correct a false claim over-representing the prevalence of #FunctionalNeurologicalDisorder (#FND). The authors of a paper containing this claim in the journal NeuroImage: Clinical had agreed to correct it, but then changed their mind. The journal invited Tuller et al to instead write a letter which he shares in his article

https://shorturl.at/fkyLM

Which instance is recommended for a global peer support charity, specifically for sufferers in the neurology sector?

Kind regards

Robert WT
#FND #FNDhope

dropping weight this year without trying + trying to re/connect w my wot is this? oh its me huh body = backyard photoshoot where I look like a very happy kinda melted jessica rabbit candle

#FND #FunctionalNeurologicDisorder #BodyMind #Dysphoria #Dysmorphia #SelfLove #SelfAcceptance

Hey dude, I haz neurology am shut-in. I used to run an arts business volunteer board of directors do civics ride orange bike all over GrittyCity be friend glamp hard rock shows raves accordion recital thrift make love art openings sticker/flyer bomb drive fly to ‘yerp. Not no more
Fire up some #hash tags #fnd #migraine #ptsd #cpstd #functionalNeurologicDisorder #MMJ #feminist #disability #ChronicPain #ChronicFatigue #Trauma #DisabilityRights #SensoryIssues #Privacy #Hemipeligic

hi here i yam
-looking to connect w others w/ same/similar #dxs for #support #tips
-was highly functioning #artist business running board of directors volunteer who rode my orange bike all over #GrittyCity camped every year now a shut in, thanks #FND
-trying to figure out how to be #disabled while my life seems to be falling apart #therapy and rxs #help
-i am a woman and #feminist and own my own body
-hope i get more betterer soon
heres some #art a #valentine #MailArt and a #cat

Dr. David Tuller writes —

“For years, experts in functional neurological disorder (#FND) have cited a seminal study in their field to claim that the diagnosis was the second-most-common presentation at outpatient neurology clinics, with a prevalence of 16%. This claim was, and is, categorically untrue.”

“The authors have now agreed to correct the false statement”

"I need to say I was impressed with the speed with which the journal handled our request.”

https://virology.ws/2023/06/24/trial-by-error-fnd-experts-agree-to-correct-inflated-prevalence-claim

My #FND neurologist suggested using a fan to blow air on myself when waking up in the morning. I thought that would just be annoying but YIKES! it makes my brain connect to my body even on bad days. Serious science-magic

[Automatic repost https://twitter.com/dystobot/status/1659203470086524930]

RT @AlbertoEspay: A ⁦@DrABrashear masterclass in ⁦@UCincyMedicine⁩ on the large phenotypic range of #ATP1A3. Key lessons: stressors are common (source of #FND misdiagnosis), severe dystonia makes patients look parkinsonian (they aren’t), and most mutations are de novo (no family history). https://t.co/2l1DyyEIvc

[Automatic repost https://twitter.com/dystobot/status/1650776713838702592]

RT @MaribelCarot: De un año atrás, hasta ahora todo ha ido aumentando en más dificultades y luego dicen que no es degenerativo? Tanto mi #FND #TNF y las #distonías que empezaron en brazo y mano derecha y ahora es todo mi cuerpo. En serio no es degenerativo? https://t.co/drBGGNfsSg

[Automatic repost https://twitter.com/dystobot/status/1649897153672761347]

RT @MaribelCarot: Momentos de relax, que me llenan por dentro, con mis últimas #distonías ya en los cuatro miembros... Todo se me hace más difícil. #FND #TNF https://t.co/WF80NLiIzi

[Automatic repost https://twitter.com/dystobot/status/1649556216140423172]

RT @drpaulwinston: Post traumatic #dystonia and #FND contractures are in your head? Right wrist and hand dystonia. Note WHOLE forearm hypo-echoic, fibrosis and atrophy. Her neurologist did toxin to R FCU only so not the cause. L normal. @MuninMichael @PicelliAle @ZacharyGrinDPT https://t.co/EzdZEJe5b4

[Automatic repost https://twitter.com/dystobot/status/1648476643571408899]

RT @AsClearAsClair: #stones Written 25/04/2005. About struggling with ill health whilst trying to raise a family. 17 years later, diagnosed #FND #laryngealdystonia #arthritis #Fibromyalgia and more. #Songs are stories. Never give up on you, even if others do. 🙏#guitar #songwriter #432hz https://t.co/GeOQoxiN49

[Automatic repost https://twitter.com/dystobot/status/1646917541879504912]

RT @AsClearAsClair: Weather messing with my sinuses, but here it is. 'Black Dog Days' forgive the voice crackles #laryngealdystonia and #FND flare keeping me firmly grounded. Written March 2016. I'm looking forward to recording the new album 😌 #blackdogdays #guitar #vocals #songwriting https://t.co/ZqmAc9YBKS

[Automatic repost https://twitter.com/dystobot/status/1645883217679982592]

RT @painphysio: Dystonia and FND, my other hat.

New blog.

https://t.co/48ygYW2DtR

#thepaincoach #physiotherapy #FND #dystonia https://t.co/TiNTP8kZnh

[Automatic repost https://twitter.com/dystobot/status/1645469234347012096]

RT @MaribelCarot: @TomPlender @FND_Together @dimandjules @DrZoffness @Astro_Flow No lo podría haber explicado yo mejor, a éstas alturas de mi #FND y #distonías más todo lo que me va sumando, pienso de igual manera. Muchas gracias por todo lo que aporta a esta comunidad!

[Automatic repost https://twitter.com/dystobot/status/1645396324345364481]

RT @MaribelCarot: #FND #TNF #Distonías #Enfermedadesinvisibles sólo el que vive en éstas enfermedades sabe que es la soledad en Sanidad, la incomprensión, la ignorancia en nuestra persona #masinvestigaciónparamásvida #loquenosevenoseconoce 😢 https://t.co/ywnvIMtnD3

[Automatic repost https://twitter.com/dystobot/status/1642516027845009411]

RT @alinewlandious: #fnd #FND #fndaware #fndawareness #letstalkfnd #fnd2023 #functionalneurologicaldisorder #brainhealth #nervoussystem #dystonia #paralysis #cognition #speechandlanguage #gait #seizures #spasms #tremors #dizziness #bladder #bowel #migraine #brainfog #fatigue #tics

[Automatic repost https://twitter.com/dystobot/status/1640827385124618240]

RT @Diabetesauras: @shvogt @SarahLidstone They do not bother differentiating between #FND and #DIMD such as #akathisia.

They often diagnose whatever is convenient to them.

I have 2 rare immune mediated neurological diseases, in addition to severe akathisia, myoclonus, and episodic dystonia.

Thanks for featuring our report on the 32nd @AlzheimerEurope Conference #32AEC on your website @ACNRjournal !
---
RT @ACNRjournal
New delegate conference reports now online at https://acnr.co.uk/conference-reports/
Topics include: #Dizziness and #balance, #Encephalitis, #Alzheimers, #FND, #rehabilitation, #stroke and #MS
https://twitter.com/ACNRjournal/status/1640299731833192449

'Research into rehabilitation models, treatment and integrated care is needed, and should take into account biological underpinnings as well as possible psychological mechanisms and the patient perspective'

FND is an increasingly common diagnosis reported within our support services. Families are more often left with ongoing symptoms and without support.

Further biomedical pediatric research is needed.

#LongCovidKids #LongCovid #FND #Childhood #ChildHealth #Research

https://www.mdpi.com/1999-4915/15/3/783?fbclid=IwAR0xMvXIedXm_RDrOCjVA01KBW-ExNJz43G90Wyfs3QQk4eYXXQC71WkrwY