dystobot · @dystobot
5 followers · 4443 posts · Server med-mastodon.com
dystobot · @dystobot
6 followers · 4052 posts · Server med-mastodon.com
dystobot · @dystobot
5 followers · 3440 posts · Server med-mastodon.com
Bill Auchter · @archaeothoughts
503 followers · 395 posts · Server scicomm.xyz

Thank goodness has seating on the upper level. I'm having a bad flare-up so I'm sitting while my wife finishes shopping. Just another day with .

#FunctionalNeurologicalDisorder #FND #wegmans

Last updated 2 years ago

Bill Auchter · @archaeothoughts
503 followers · 394 posts · Server scicomm.xyz


Why functional neurological disorder is not feigning or malingering | Nature Reviews Neurology
nature.com/articles/s41582-022

#neurology #FunctionalNeurologicalDisorder #FND

Last updated 2 years ago

Anthony Arblaster · @aarblaster
49 followers · 341 posts · Server mastodonapp.uk
Emeritus Prof Christopher May · @ChrisMayLA6
1111 followers · 1852 posts · Server zirk.us

Having retired (in part) to become my wife's primary carer - she has - these figures reveal a now familiar element of the crisis in .

While on one level it reveals family's compassion & support for their members, on another it suggests that any limited measures on social care will merely be sticking plasters on a gunshot wound!

I'd put myself in in 10-19 hours group but I have no idea how those caring over 50 hours do it... they must be saints!

#FunctionalNeurologicalDisorder #socialcare

Last updated 2 years ago

Bill Auchter · @archaeothoughts
477 followers · 344 posts · Server scicomm.xyz
Bill Auchter · @archaeothoughts
469 followers · 305 posts · Server scicomm.xyz
Anthony Arblaster · @aarblaster
23 followers · 70 posts · Server mastodonapp.uk

There’s a study going on into contribute to make our voices heard. To get involved please follow the link: lancasteruni.eu.qualtrics.com/

#FND #FunctionalNeurologicalDisorder #seizures #NEAD

Last updated 2 years ago

Anthony Arblaster · @aarblaster
25 followers · 99 posts · Server mastodonapp.uk

There’s a study going on into contribute to make our voices heard. To get involved please follow the link: lancasteruni.eu.qualtrics.com/

#FND #FunctionalNeurologicalDisorder #seizures #NEAD

Last updated 2 years ago

Anthony Arblaster · @aarblaster
22 followers · 68 posts · Server mastodonapp.uk
Bill Auchter · @archaeothoughts
427 followers · 214 posts · Server scicomm.xyz
Emeritus Prof Christopher May · @ChrisMayLA6
199 followers · 267 posts · Server zirk.us

Any thoughts greatly appreciated:
My wife (77) has been relatively recently diagnosed with , which includes a complex of symptoms she's had for some time.

The key issue is around mobility and this is essentially a 'software not a hardware problem'.

We've done a fair amount of Physio (incl. Otago exercises), but that & hypnotherepy have not been able to break the viscous circle around anxiety about falling.

any ideas on other approaches/tools we could try?

#FunctionalNeurologicalDisorder

Last updated 2 years ago

@harris this would also be great for those with neurological issues. I have () which causes random flair ups of hand tremors and loss of hand function for me sometimes. It makes it EXTREMELY hard to code and I’m always thinking: “I wish there was a talk-to-text option for writing code” :blobthinkingsmirk:

#FunctionalNeurologicalDisorder #FND #accessibility #webaccessibility

Last updated 2 years ago

Lily Rose by the Beach · @Persephone
102 followers · 173 posts · Server mastodon.me.uk

I question this diagnosis simply because FND is not meant to be a diagnosis of exclusion but only diagnosed upon observation of certain positive signs.

I asked my neurologist which positive signs he had observed, and he declined to respond.

I would be interested to hear from anyone with more knowledge on these diagnoses.


#FND #FunctionalNeurologicalDisorder #pwme #mecfs #NeuroME

Last updated 2 years ago

Lily Rose by the Beach · @Persephone
100 followers · 171 posts · Server mastodon.me.uk

I have a long list of diagnoses and I seem to gain a few year on year.

My most recent diagnosis is , a .

As I understand it, this is separate and distinct from ME which, organisations like ActionForME are at pains to emphasise, is not considered an FND.

(Happy to be corrected if I have it wrong though!)

#FND #FunctionalNeurologicalDisorder #pwme #mecfs #NeuroME

Last updated 2 years ago

Bill Auchter · @archaeothoughts
263 followers · 30 posts · Server scicomm.xyz

For those newly diagnosed with or unaware of this resource, Neurosymptoms put together by Professor Jon Stone (Not sure if he's on Mastodon) from Edinburgh who has been working on FND for over 20 year. The website provides information on symptoms, causes, treatments, etc. I highly recommend it.







neurosymptoms.org/en/

#disability #disabled #InvisibleDisorder #FunctionalDisorder #chronicpain #ChronicDisorder #NeurologicalDisorder #FunctionalNeurologicalDisorder #FND

Last updated 2 years ago

Bill Auchter · @archaeothoughts
263 followers · 30 posts · Server scicomm.xyz

I'm wondering if there is a community on Mastodon? The bird site has a robust supportive community. If not just follow me and we'll make one from scratch.






#FND #NeurologicalDisorder #BrainDisorder #chronicpain #ChronicDisorder #disability #Disabed #FunctionalNeurologicalDisorder

Last updated 2 years ago