Beckalina · @beckalina
177 followers · 1031 posts · Server toot.communitySomeone on reddit mentioned that they had pretty bad muscle aches on days 3-5 after their infusions. Muscle aches are basically my life with #fibro so I wasn't sure it mattered much for me. I WAS SO WRONG. My body aches so much. I can't wait to finish working & just go soak in a bath. #GravesDisease #ThyroidEyeDisease #ChronicIllness #Spoonie #SpoonieThings #Fibromyalgia
#fibro #GravesDisease #thyroideyedisease #chronicillness #spoonie #spooniethings #Fibromyalgia
Beckalina · @beckalina
173 followers · 1011 posts · Server toot.community
Week 2 of steroid infusions. #GravesDisease #ThyroidEyeDisease #ChronicIllness #Spoonie #SooonieThings #Fibromyalgia
#GravesDisease #thyroideyedisease #chronicillness #spoonie #soooniethings #Fibromyalgia
Beckalina · @beckalina
166 followers · 960 posts · Server toot.community
I had my first steroid infusion today. It went well. I’m still waiting on the after effects but so far so good. #GravesDisease #ThyroidEyeDisease #ChronicIllness #Spoonie #SpoonieThings #Fibromyalgia
#GravesDisease #thyroideyedisease #chronicillness #spoonie #spooniethings #Fibromyalgia
Beckalina · @beckalina
166 followers · 960 posts · Server toot.communityI start weekly steroid infusions on Monday so this weekend is all about prepping my apartment in case I feel like absolute crap after the first infusion 😩 #GravesDisease #ThyroidEyeDisease #ChronicIllness #SpoonieThings #Spoonie #Fibromyalgia
#GravesDisease #thyroideyedisease #chronicillness #spooniethings #spoonie #Fibromyalgia
Beckalina · @beckalina
165 followers · 939 posts · Server toot.communityMy friend just congratulated me on closing all three rings today & I don’t know how to tell her I didn’t actually exercise it’s just tachycardia from the #GravesDisease 😂
Beckalina · @beckalina
163 followers · 914 posts · Server toot.communitySo in the spirit of trying to share more that I would have shared on the bad site… over the past year I’ve had a lot of weird health issues that no one could figure out. I shared a lot about this on the bad site. Well I just recently got diagnosed with #GravesDisease & #ThyroidEyeDisease, which explains all the issues I’ve been having so *yay* but also *womp womp*
#GravesDisease #thyroideyedisease
dystobot · @dystobot
5 followers · 818 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1611014794072539139]
RT @LunaRivera96: Chronic Illness Grief Is Real!
#SLE #Fibromyalgia #lymedisease #pancreatitis #depression #arachnoiditis #migraines #thyroiddisease #sjogrens #sarcoidosis #endometriosis #gravesdisease #diabetes #trigeminalneuralgia #dysautonomia #CRPS #epilepsy #crohns #COPD #LongCovid #dystonia https://t.co/NyR0VDlwOf
#SLE #fibromyalgia #lymedisease #pancreatitis #depression #arachnoiditis #migraines #thyroiddisease #Sjogrens #sarcoidosis #endometriosis #GravesDisease #diabetes #trigeminalneuralgia #Dysautonomia #crps #epilepsy #Crohns #COPD #LongCovid #dystonia
dystobot · @dystobot
5 followers · 817 posts · Server med-mastodon.com[Automatic repost https://twitter.com/dystobot/status/1611010947736371200]
RT @LunaRivera96: People living with chronic illness have a higher risk of depression. #SLE #lupus #Fibromyalgia #POTS #lymedisease #MultipleSclerosis #Dystonia #epilepsy #RheumatoidArthritis #dysautonomia #chiari #diabetes #gastroparesis #gravesdisease #sarcoidosis #sjogrens #depression https://t.co/qqUuG98Xmb
#SLE #Lupus #fibromyalgia #pots #lymedisease #MultipleSclerosis #dystonia #epilepsy #rheumatoidarthritis #Dysautonomia #chiari #diabetes #gastroparesis #GravesDisease #sarcoidosis #Sjogrens #depression
NorthBeastArt (Comms Open) · @NorthBeastArt
52 followers · 380 posts · Server mastodon.lolSomething about the treatment for #GravesDisease I’ve noticed is how my doctors did nothing to prepare me or warn me for how I would start to feel cold again. That’s a huge change in how accessible things are for me. Hell, I wasn’t told about a lot of the changes that Graves made and what treatment would do exactly. And it’s really screwing me up
NorthBeastArt (Comms Open) · @NorthBeastArt
52 followers · 380 posts · Server mastodon.lolOk, I need to ask. For others with #GravesDisease and are on #Tepezza, how do you do cope with the side effects when they’re really affecting your QOL? My endocrinologist literally cut me off the other day when bringing up how the side effects are kicking me and ended the appointment. (I don’t have the option of seeing someone else because of my insurance and other circumstances, and I’m almost done with the course, but I am not doing so hot rn)
Katie (she/her) · @MPHMedLib
26 followers · 10 posts · Server disabled.social👋 Hello, I'm Katie and I use she/her pronouns. You can read my bio for some more info, but I live in the southwestern US, my #dog's name is Duncan, and I work in #HigherEd. I am also #ace and have interestist in #SocialJustice issues including #DisabilityRights #Antiracism #FatLiberation and more. Also love #comics #zines #StarWars #Disney and lots more geeky stuff.
I was diagnosed with #GravesDisease thyroiditis at age 16. I also have #MyastheniaGravis and #vitiligo.
#introduction #dog #highered #ace #socialjustice #disabilityrights #antiracism #FatLiberation #comics #zines #starwars #disney #GravesDisease #myastheniagravis #vitiligo