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#StopCOVIDDeaths #IEI

Ocampo: 88,760 Filipinos are suffering silently.

For our doctors, please make sure that your curriculum [and training] in the medical schools include this. Update yourselves. Mahirap i-detect ng patients ito [mag-isa].

#StopCOVIDDeaths #IEI #COVID19

Villareal: Build your village as a patient and patient-advocate because you need a good support system.

#StopCOVIDDeaths #IEI #COVID19

IKYMI: Hear our panelists' important reminders and parting messages:

Baraguir appeals to the government: Sana [talaga] magawan nang paraan na matulungan kami.

#StopCOVIDDeaths #IEI #COVID19

Jose: IVIG is available in PGH for free.

#StopCOVIDDeaths #IEI #COVID19

Here's Dr. Stella Marie Jose, Deputy Director for Health Operations at UP PGH, to formally close the event.

#StopCOVIDDeaths #IEI #COVID19

You may rewatch this episode, along with all other 117 episodes of #StopCOVIDDeaths, at http://www.youtube.com/TVUPph

#IEI #COVID19

Ocampo: A lot of the burden has to be on us doctors.

#StopCOVIDDeaths #IEI #COVID19

Villareal: I have to take better care of myself because of [and for] him.

#StopCOVIDDeaths #IEI #COVID19

Villareal: There's still hope that he will gain some independence, but our lives are so intertwined na it's hard for me to separate my schedule; everything is around him. All of my decisions revolve around him.

#StopCOVIDDeaths #IEI #COVID19

Villareal: I have come to accept that this is a marathon; it's long term. He will and may need me for the rest of his life, way into adulthood.

#StopCOVIDDeaths #IEI #COVID19

Villareal: It's hard because in the beginning, you don't want to live in fear, pero nandoon.

His first hospitalization was New Year's Eve, and for several years since then, I never looked forward to New Year's.

#StopCOVIDDeaths #IEI #COVID19

Villareal: There were all of these adjustments prior to the pandemic.

Come pandemic, dinagdagan pa namin yung precautions namin.

Matthew hasn't been out since March 2020 except when he was vaccinated.

#StopCOVIDDeaths #IEI #COVID19

Villareal: There always has to be at least three adults at home with him.

It wasn't just his life that was affected, it was also all our lives.

#StopCOVIDDeaths #IEI #COVID19

Villareal: He was staying home for the first four years of his life. Ang labas lang niya were just doctor check-ups and blood tests; no malls, no family reunions.

#StopCOVIDDeaths #IEI #COVID19

Villareal: My son Matthew is 14 y.o., siya yung may DiGeorge Syndrome.

Because the condition has a spectrum of medical disorders, it's hard to diagnose.

In Matthew's case, he started with seizures.

#StopCOVIDDeaths #IEI #COVID19

Baraguir to the government: Ang IVIG, medyo may kamahalan.

Sana mapansin nila ang IVIG para matulungan kami--ibaba ang price at isali sa PhilHealth.

#StopCOVIDDeaths #IEI #COVID19

Baraguir: Na-affect yung mental health ko kasi rare talaga 'tong sakit ko.

#StopCOVIDDeaths #IEI #COVID19

Baraguir: Lifetime na ito. Mahirap tanggapin pero lifetime IVIG [na ako].

#StopCOVIDDeaths #IEI #COVID19

Baraguir: Normal din yung result ng biopsy, so advise sakin ng immunologist ko ay kailangan ko mag-IVIG. Kung hindi, magkakasakit pa ako lalo.

#StopCOVIDDeaths #IEI #COVID19