RT @EKHA_EU: Challenges & unmet needs remain significant in the care pathway for rare kidney disease patients.

👉On #RareDiseaseDay we call for more awareness, early diagnosis, investments in R&D and improved management of rare kidney diseases.

#LightUpForRare

🐦🔗: https://n.respublicae.eu/BuschmannMartin/status/1630822786640871426

RT @eurordis: This #RareDiseaseDay, 43 MEPs have co-signed a letter to @vonderleyen calling for a new European Action Plan on Rare Diseases on behalf of the 30 million people living with a rare disease in Europe!

Learn more: https://www.eurordis.org/meps-call-on-commission-president/

#LightUpForRare #ShareYourColours

🐦🔗: https://n.respublicae.eu/MonicaSemedoLux/status/1630543043269996546