Saturday, September 16
CAREGIVER SUPPORT CALL (for caregivers of people with ME (myalgic encephalomeylitis), #LongCOVID and associated conditions)
https://www.meaction.net/event/me-caregiver-support-call/2023-09-16/
3:30 PM EDT/8:30 PM in Great Britain & Ireland
Find the time in your time zone:
https://www.timeanddate.com/worldclock/fixedtime.html?msg=September+16+CAREGIVER+SUPPORT+CALL&iso=20230916T1530&p1=179&ah=1
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE @longcovid
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers
#LongCovid #myalgicencephalomyelitis #ChronicFatigueSyndrome #mecfs #cfs #pwme #myalgice #pwLC #postcovidsyndrome #PostCovid #postCOVID19 #lc #covidlonghaulers #LongHaulers
2/
On the podcast, Ed Yong shared: ME/CFS " is a condition that has existed long before COVID. It is a debilitating, long-term chronic illness that has often been overlooked....People who have it might be bedbound. They might be housebound. They might be unable to perform very simple and normal activities of daily life.... (contd.)"
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE @longcovid
#LongCovid #PwLC #postcovid #postcovid19 #LC #longhaulers
#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice #LongCovid #pwlc #PostCovid #PostCovid19 #lc #LongHaulers
(From March)
Canada’s Minister of Health, announced a $20 million investment from the Canadian Institutes of Health Research (CIHR) to support a pan-Canadian Post COVID-19 Condition Research Network called Long COVID Web
@longcovid
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers
@covid @covid19
#COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2
#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #COVID_19 #sarscov2
3/
There are risks to the individual (the risk of death, but also the risk of long term health issues and even the risk of not being able to earn money or carry out other activities when ill). There also risks to people they are in contact with.
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers
@covid @covid19
#COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2 @longcovid
#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #COVID_19 #sarscov2
2/
Her message is that journalists are treating the pandemic as if Covid infections don’t matter any more and it’s time to move on. This, she says, shames people who remain cautious about Covid and it does not communicate the risks which still exist.
@covid @covid19 @longcovid #LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers #COVIDー19 #COVID19 #COVID #COVID_19 #SARSCoV2 #Mask
#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #COVID_19 #sarscov2 #mask
🧵
Postacute sequelae of COVID-19 at 2 years
Free fulltext:
https://www.nature.com/articles/s41591-023-02521-2
"In sum, while risks of many sequelae declined 2 years after infection, the substantial cumulative burden of health loss due to PASC calls for attention to the care needs of people with long-term health effects due to SARS-CoV-2 infection."
@longcovid
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers
@covid @covid19
#COVIDー19 #COVID19 #COVID
1/
#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid
3/
Graphical abstract for "Epigenetic memory of coronavirus infection in innate immune cells and their progenitors"
Free fulltext:
https://www.cell.com/cell/fulltext/S0092-8674%2823%2900796-1
@longcovid
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers
@covid @covid19
#COVIDー19 #COVID19 #COVID #covid1in20 #apresJ20 #covidpersistente #MitCoronaLeben
#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #covid1in20 #ApresJ20 #covidpersistente #mitcoronaleben
2/
"Epigenetic reprogramming of HSPC may underlie altered immune function following infection and be broadly relevant, especially for millions of COVID-19 survivors."
@longcovid
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers
@covid @covid19
#COVIDー19 #COVID19 #COVID #covid1in20 #apresJ20 #covidpersistente #MitCoronaLeben
#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #covid1in20 #ApresJ20 #covidpersistente #mitcoronaleben
🧵
Epigenetic memory of coronavirus infection in innate immune cells and their progenitors
Free fulltext:
https://www.cell.com/cell/fulltext/S0092-8674%2823%2900796-1
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers
@covid @covid19
#COVIDー19 #COVID19 #COVID #COVID_19
1/
#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #COVID_19
Psychiatric Symptoms in Acute and Persisting Forms of #COVID19 Associated with Neural Autoantibodies
Free fulltext:
https://www.mdpi.com/2073-4468/12/3/49
"Evidence from our research suggests it is highly likely neural autoantibody production is facilitated by SARS-CoV-2 infection, and that more neuropsychiatric patients than control subjects will present neural autoantibodies"
@longcovid
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #longhaulers
@covid @covid19
#COVIDー19 #COVID
#COVID19 #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #LongHaulers #covidー19 #covid
4/
"(Contd.)—or sensing bright lights and loud sounds, regulating body temperature on hot days, or coping with stress. And if in fatigue your batteries feel drained, in PEM they’re missing entirely. It’s the annihilation of possibility.”
@mecfs @longcovid #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE #CFSME #MEeps #CFIDS #SEID #NeuroME #LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers
#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice #cfsme #meeps #cfids #seid #NeuroME #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers
2/
From Tarek Gaber (who is/was "Clinical Lead for #CFS / ME Service Wigan, Bolton & Bury"):
Pattern of #PostCOVID Fatigue in Elderly Patients
Free fulltext
https://journals.sagepub.com/doi/epub/10.1177/27536351231194561
"The incidence of #LongCOVID (#LC) increases with age but then drops sharply in over 70-year-olds"
@longcovid @mecfs #LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers #COVIDー19 #COVID19 #COVID @covid @covid19 #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
#cfs #PostCovid #LongCovid #lc #pwlc #postcovidsyndrome #PostCovid19 #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #MyalgicEncephalomyelitis #chronicfatiguesyndrome
🧵
Press release:
"A Better Understanding of #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Could Benefit #LongCOVID Patients"
On the special edition of the journal WORK on #MEcfs & #postcovid
With quotes from Amy Mooney, an occupational therapist
@longcovid @mecfs #OT #OTalk #OccupationalTherapist #CFS #PwME #MyalgicE #CFSME #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers
1/
#MyalgicEncephalomyelitis #chronicfatiguesyndrome #LongCovid #mecfs #PostCovid #ot #otalk #occupationaltherapist #cfs #pwme #myalgice #cfsme #pwlc #postcovidsyndrome #PostCovid19 #lc #covidlonghaulers #LongHaulers
Reduced athletic performance post-COVID-19 is associated with reduced anaerobic threshold
Free fulltext:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9943905/
“Reduced AT [anaerobic threshold] suggests a peripheral disorder of aerobic metabolism. This finding may result from virally mediated mitochondrial dysfunction beyond normal ‘deconditioning’, associated with impaired fat oxidation.”
@longcovid #LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers #COVIDー19 #COVID19 #COVID
#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid
2/
🧵
New from Germany:
Long-term symptom severity and clinical biomarkers in #postCOVID19 / #chronicfatiguesyndrome: results from a prospective observational cohort
Free:
https://www.sciencedirect.com/science/article/pii/S2589537023003231
Lots of data in this
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers #COVIDー19 #COVID19 #COVID @mecfs @longcovid @covid @covid19
#PostCovid19 #chronicfatiguesyndrome #MyalgicEncephalomyelitis #mecfs #cfs #pwme #myalgice #LongCovid #pwlc #postcovidsyndrome #PostCovid #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid
🧵
New from Germany:
Long-term symptom severity and clinical biomarkers in #postCOVID19 / #chronicfatiguesyndrome: results from a prospective observational cohort
Free:
https://www.sciencedirect.com/science/article/pii/S2589537023003231
Lots of data in this
@mecfs
#MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #PwME #MyalgicE @longcovid
#LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers #COVIDー19 #COVID19 #COVID @covid @covid19
1/
#PostCovid19 #chronicfatiguesyndrome #MyalgicEncephalomyelitis #mecfs #cfs #pwme #myalgice #LongCovid #pwlc #postcovidsyndrome #PostCovid #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid
RoySocMed webinar
🚨 Speaker announcement for Spotlight on #LongCovid: Part 3, 12 noon on Thursday 28 September:
☑️ Professor Danny Altmann
☑️ Professor Brendan Delaney
☑️ Professor Trish Greenhalgh
☑️ Dr Melissa Heightman
☑️ Dr
@sivanmanoj
With more to be announced.
"If you are a patient/carer, please contact content@rsm.ac.uk for a discount code on our tickets"
@longcovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers #COVID19
#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #COVID19
7/
"Because the kynurenine pathway is pro-inflammatory, the entire body, including the brain, is flooded by inflammatory products over a prolonged period."
@longcovid @covid @covid19 #LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers #COVIDー19 #COVID19 #COVID
#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid
5/
"This is associated with short-term memory problems, difficulty in multi-tasking or concentration over long periods of time.
As A/Prof. Cysique explains, the best descriptor of #brainfog would be a flu-like physical and mental fatigue lasting months, although with some fluctuations."
@longcovid @covid @covid19 #LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers #COVIDー19 #COVID19 #COVID
#brainfog #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid
2/
"Scientists from the School of Psychology and Faculty of Medicine & Health found that of the study cohort of 128 people, those who had a prolonged activation of the kynurenine pathway were more likely to have mild cognitive deficits 12 months after developing COVID-19. They also found that these symptoms were less likely to improve over time."
@longcovid @covid @covid19 #LongCovid #PwLC #PostCovidSyndrome #postcovid #postcovid19 #LC #Covidlonghaulers #longhaulers #COVIDー19 #COVID19 #COVID
#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid