OhTWIST · @ohtwist
125 followers · 175 posts · Server disabled.social
Nik · @ascreaminpossum
119 followers · 463 posts · Server disabled.social

@Oryx I feel you completely. I spent 15-20 years begging drs to realize that there was other things going on than the and I was born with that they blamed everything on. I have since been diagnosed with a type of , , , , , , , , and I got sick every time I ate because my gallbladder was at 15% function which they ignored and told me I was fat. ALL of that was supposed to be JUST my Spina Bifida.

#SpinaBifida #chiari #md #Lupus #sjogrens #rls #essentialtremor #narcolepsy #mcas #Mastocytosis

Last updated 2 years ago

Nik · @ascreaminpossum
98 followers · 308 posts · Server disabled.social

@bgp_writes if I could have just one day without some sort of allergy issue I'd probably think I was dead. Lol

#mcas #Mastocytosis #anaphylaxis #severeallergies

Last updated 2 years ago

Theta Sigma · @ThetaSigma
516 followers · 2606 posts · Server fandom.ink

So my youngest sibling was rushed into hospital a fortnight ago with heart failure. Their heart stopped twice, once for 20 seconds. It’s all as a result of their lifetime condition, . Doctors are debating whether giving a pacemaker to a 19 year old is a good idea, and my poor sibling is understandably deeply anxious.

Text to my mum last night, “Does that mean I died?”

This is a little scary.

#Mastocytosis

Last updated 2 years ago

Nik · @ascreaminpossum
43 followers · 132 posts · Server disabled.social

I also have and and more but my brain is total mush currently.

#mcas #Mastocytosis #gastroparesis #tbi #SPD

Last updated 2 years ago

in a bubble (he/him) · @BubbleMan
18 followers · 26 posts · Server disabled.social

When you post about on 🐘, it's .

Posting about Diseases in general is (or ).

#Mastocytosis #mastodon #mastomasto #mastcell #mastmast #mastmasto #mcas #HaT #tryptasemia

Last updated 2 years ago

Invisiblyillin · @Invisiblyillin
93 followers · 211 posts · Server med-mastodon.com

Are there any or folks here? Hello? Anyone?

#mcas #Mastocytosis

Last updated 2 years ago

HaDEA · @EU_HaDEA
26 followers · 1027 posts · Server respublicae.eu
HaDEA · @EU_HaDEA
26 followers · 1027 posts · Server respublicae.eu
HaDEA · @EU_HaDEA
26 followers · 1027 posts · Server respublicae.eu
HaDEA · @EU_HaDEA
26 followers · 1027 posts · Server respublicae.eu
HaDEA · @EU_HaDEA
26 followers · 1027 posts · Server respublicae.eu