GimpyGurl · @GimpyGurl
27 followers · 202 posts · Server disabled.social#Botox for #migraine is truly life changing. I look fwd to when it goes #OffPatent and folks who need it can get it more than quarterly
GimpyGurl · @GimpyGurl
26 followers · 183 posts · Server disabled.socialso much going on right around my #botox for #migraine. Just want to sit peaceful gentle in dark listen to static for day or so vs brain answer plan move stuff saw bang crash ticking clock hustle sparkle bright loud peopling. (insert meme here re: you deserve the chance to be gentle)
sensible gremlin tux · @tux_kate
32 followers · 34 posts · Server blorbo.social#migraine kicking me while I’m down today, which makes sense — next monthly injection is on Sunday.
But having to miss tomorrow’s fun plans because I spent today in a foggy disoriented distracted haze of mild pain really just feels bad.
This is a huge improvement over last year! The diagnosis of my #POTS and treatment for #dysautonomia has helped so much … but being able to make plans and then having to cancel them just plain sucks.
GimpyGurl · @GimpyGurl
25 followers · 85 posts · Server disabled.socialThe #Cephaly device, a tens unit you stick on your forehead, was the biggest piece of #SnakeOil that ever hurt me. $$ tiny little thing magnetically att'd to prissy finicky electrode sticker$ that often would loosen and cause electrical arcing and burns on my forehead #MedicalDevices #Migraine #Quack #FuckThat #CaveatEmptor
#cephaly #snakeoil #medicaldevices #Migraine #quack #fuckthat #caveatemptor
Anna · @halcionandon
70 followers · 99 posts · Server disabled.socialWhere are the #NEISvoid people?
#ChronicPain #ChronicIllness
#MECFS #LongCovid #Migraine #Endometriosis #Dysautonomia #POTS #Disability #SevereME #PwME #Spoonie
Say hi 👋🏻
(I was hoping we’d build a #neisvoid / chronic illness-type place here.)
#NEISvoid #chronicpain #chronicillness #mecfs #LongCovid #Migraine #endometriosis #Dysautonomia #pots #disability #SevereME #pwme #spoonie
Unwell & Fighting Eviction · @Hare
244 followers · 3166 posts · Server kolektiva.socialHunger migraines are vile and am deeply hoping I can avoid one.
We are halfway to being able to order something to eat for our family, we are Painfully hungry.
Can 4 comrades help with $5 each?
Tysm for boosting! 🙏🏻
#Crowdfund #TransCrowdFund #DisabilityCrowdFund #Hungry #MutualAid #Migraine #Help
#crowdfund #transcrowdfund #disabilitycrowdfund #hungry #MutualAid #Migraine #help
GimpyGurl · @GimpyGurl
10 followers · 22 posts · Server disabled.social
Hey dude, I haz neurology am shut-in. I used to run an arts business volunteer board of directors do civics ride orange bike all over GrittyCity be friend glamp hard rock shows raves accordion recital thrift make love art openings sticker/flyer bomb drive fly to ‘yerp. Not no more
Fire up some #hash tags #fnd #migraine #ptsd #cpstd #functionalNeurologicDisorder #MMJ #feminist #disability #ChronicPain #ChronicFatigue #Trauma #DisabilityRights #SensoryIssues #Privacy #Hemipeligic
#hash #FND #Migraine #ptsd #cpstd #functionalneurologicdisorder #mmj #feminist #disability #chronicpain #chronicfatigue #trauma #disabilityrights #SensoryIssues #privacy #hemipeligic
$800 Daily Goal! 😰 #Eviction · @Hare
241 followers · 3161 posts · Server kolektiva.socialNewest blog on our Ko-fi, follow us on there for the most current updates about our situation! 🙏🏻
https://ko-fi.com/post/Sunday-July-9--Fighting-Eviction-J3J1N1XCU
#Blog #Eviction #Migraine #EmergencyCrowdFund #MutualAidRequest #Urgent
#blog #eviction #Migraine #emergencycrowdfund #MutualAidRequest #urgent
Fighting Eviction‼️😰😭 · @Hare
239 followers · 3082 posts · Server kolektiva.socialHaving a rough health week.
Or longer?
The worse the health struggles and amount of symptoms, the easier it is to lose time.
I know many of y'all can relate. 😓
#NEISvoid #Spoonie #EDS #Scolisis #CFS #IBS #IH #Hypersomnia #IdiopathicHypersomnia #CPTSD #Trauma #Migraine #ChronicPain #LongCovid #CovidLongHauler
#NEISvoid #spoonie #eds #scolisis #cfs #ibs #IH #hypersomnia #IdiopathicHypersomnia #cptsd #trauma #Migraine #chronicpain #LongCovid #COVIDlonghauler
Anna · @halcionandon
68 followers · 100 posts · Server disabled.socialPlease #boost
The TL;DR saga of Anna’s magnesium infusions:
Magnesium/Hartmanns IV infusions are the only thing that help me with all my symptoms, especially #ChronicPain #POTS #Hypovolemia & #migraine.
They’re $500 each. I can’t put it off anymore, I have to get out of this bed and the pain is intolerable.
⬇️
I have a favour to ask to make this affordable: Are there any #nurses, #doctors or other people here who are qualified to administer IVs in #Melbourne willing to help me out for less?
#boost #chronicpain #pots #hypovolemia #Migraine #nurses #doctors #melbourne
EU Health - #HealthUnion · @EU_Health
205 followers · 3475 posts · Server respublicae.eu
RT EU Medicines Agency
📢EMA's human medicines committee, the #CHMP, recommended 2⃣ new medicines for approval in the 🇪🇺, including:
☑️ one medicine for the prophylaxis of #migraine
☑️ one medicine for the treatment of chronic #KidneyDisease
https://www.ema.europa.eu/en/news/meeting-highlights-committee-medicinal-products-human-use-chmp-19-22-june-2023
#PublicHealth https://t.co/MmoBuogHs2
🐦🔗: https://n.respublicae.eu/EMA_News/status/1672221581534195712
#CHMP #Migraine #kidneydisease #publichealth
signerinkbeast · @signerinkbeast
2 followers · 121 posts · Server disabled.socialIt's one of those "I pushed myself too hard and gave myself a #migraine" kind of days. Lol, oops.
#Migraine #posttraumaticmigraine #tbi
Eviction Risk‼️😰 268/500 · @Hare
217 followers · 2706 posts · Server kolektiva.socialI hate the migraines I get from hunger + extreme stress
Pretty sure that's what's going on, and it's miserable 😓
#Migraine #NEISvoid #survivalmode
Eviction Risk‼️😰 68/500 · @Hare
217 followers · 2693 posts · Server kolektiva.socialTrying to function with a migraine is just cruel, but here we are.
I need food and sleep, but have to panic and constantly crowdfund so we can pay part of our terrifying debt at our inn so they don't evict us 😭 #Migraine
Eviction Risk‼️😰 50/500 · @Hare
215 followers · 2653 posts · Server kolektiva.socialPain is flaring and I desperately wish I could nap. 😭
Trying to maintain anxiety and panic because it triggers all of our health bs, and I can’t afford seizures right now.
#fibro #painflare #LongCovid #tics #seizures #Migraine #cfs
IT News · @itnewsbot
3297 followers · 263474 posts · Server schleuss.onlineHacking Headaches: Keeping a Neurostimulator Working - We’ve heard a ton of stories over the years about abandoned technology — useful wi... - https://hackaday.com/2023/06/13/hacking-headaches-keeping-a-neurostimulator-working/ #sphenopalatineganglion #clusterheadache #neuromodulation #medicalhacks #repairhacks #abandonware #migraine #brick #nerve #neuro #spg
#spg #neuro #nerve #brick #Migraine #abandonware #repairhacks #medicalhacks #neuromodulation #clusterheadache #sphenopalatineganglion
Safe Today, Tysm!!! 😭💗✨ · @Hare
202 followers · 2553 posts · Server kolektiva.socialTrying to switch to an individual headmate, instead of our current uncomfortable dissociated blurry soup setting.
No idea who will end up fronting, just depends on who wants to, can handle everything going on, and a few other factors.
Although Hal has been near for about an hour, so I suppose it might be them.
Idk, but wish us luck that we don't make our headache turn migraine by switching.
#JustPluralThings #PluralGang #DID #OSDD #Headmates #PolyfragmentedDID #Migraine
#justpluralthings #pluralgang #did #osdd #headmates #PolyfragmentedDID #Migraine
Urgent Help Needed! 70/700 · @Hare
197 followers · 2476 posts · Server kolektiva.socialWhoa, either that was a very quick wave of dissociation (??) or maybe some sort of partial switch?
Better not be seizure activity, but with these levels of stress, pain, and fatigue, I wouldn’t be surprised. 😓
#NEISvoid #DID #Dissociation #Seizures #Migraine #BrainsAreWeird
#NEISvoid #did #dissociation #seizures #Migraine #brainsareweird
Struggling - Pls stand by 😰 · @Hare
197 followers · 2473 posts · Server kolektiva.socialTrying to function with a migraine is awful, especially with so many other things wrong with this body and flaring 😩
#NEISvoid #Migraine #Stress #Crisis #Eviction #LongCovid #ChronicallyIll
#NEISvoid #Migraine #stress #crisis #eviction #LongCovid #chronicallyill
Tab Combs · @DrTCombs
1758 followers · 973 posts · Server transportation.socialOK people listen up.
Not everything needs to be #highlighted in bright #yellow.
In fact, many people cannot read text that is highlighted in bright yellow.
For some, attempting to read text highlighted in bright yellow causes visual disturbances and #Migraine.
I'm one of those people.
PLEASE stop highlighting stuff in bright yellow.
#highlighted #yellow #Migraine #vision #ContrastSensitivity #accessbility