Lydia Schoch · @lydiaschoch
135 followers · 689 posts · Server mastodon.lol

The other day I tried a style of KN95 mask that has two tight bands that loop around the back of your head.

I started feeling an awful headache developing within minutes. It started in the same spot my migraines do, too.

Has anyone else in the community noticed that their head hates certain types of masks?

(To clarify, I am still wearing a mask every time I go out. I just cannot wear that particular style of mask).

#MigraineChat

Last updated 3 years ago

Rebecca Esther (they/she) · @RebeccaEsther
65 followers · 112 posts · Server mastodon.lol

Went to the hospital for a Pulmonary Function Test.

On the way home, I could taste the smell of really bad BBQ sauce. 😬😫

1. Here comes a Migraine
2. I'm 🀬 I had to take my mask off for half an hour in a building during year 4 of a pandemic, but my doctor won't prescribe a puffer without the test and my breathing is worsening my POTS and Costochondritis.
3. I'm still convinced I have Synesthesia or something like it.

#neurodon #MigraineChat #spoonielife #POTSAwareness #migrainetoot

Last updated 3 years ago

· @lydiaschoch
114 followers · 509 posts · Server mastodon.lol
ddouglas · @dd9000
91 followers · 5638 posts · Server mastodon.online

RT @beth_morton@twitter.com

Q6. What have been the most unexpected aspects of living with chronic (by any definition: ongoing condition and/or high frequency symptoms)?

Share anything that comes to mind: from symptoms, to healthcare/treatment access, and stigma and ableism, etc.

πŸ¦πŸ”—: twitter.com/beth_morton/status

#MigraineChat #migraine

Last updated 3 years ago

· @lydiaschoch
108 followers · 428 posts · Server mastodon.lol

I want to stay up until midnight on Saturday to greet the new year, but messing around with my sleep schedule and/or not getting enough sleep in general is one of my migraine triggers.

I think I’ll need to choose getting enough rest over staying up late.

How about all of you?

#MigraineChat

Last updated 3 years ago

Sparrow · @sonflower
148 followers · 440 posts · Server eldritch.cafe

whenever my migraine flares up (like today), my body just asks for potato chips and hydralyte. the first one feels counterintuitive, but it often helps? weird but i'm into it

#MigraineChat

Last updated 3 years ago

· @lydiaschoch
74 followers · 180 posts · Server mastodon.lol

I’m in the prodrome stage of a today and have the worst cravings for chocolate and potato chips. Someone send me all of the treats. Haha.

#Migraine #dairyfree #MigraineChat

Last updated 3 years ago

· @lydiaschoch
74 followers · 180 posts · Server mastodon.lol

@melanpops Hello from a fellow person.

#MigraineChat

Last updated 3 years ago

Sparrow · @sonflower
129 followers · 372 posts · Server eldritch.cafe

all my speculating about my chronic migraine being partially linked to hypermobility turned out to be very possible! now i'm seeing a kinesiologist in a few weeks to start figuring out what to do next. so exciting (:

#MigraineChat

Last updated 3 years ago

Sparrow · @sonflower
114 followers · 326 posts · Server eldritch.cafe

Wow, I've received so many follows overnight! Hello, sweet members of the disabled community, thanks for connecting with me πŸ’– I'm Sparrow - I'm , ADHD, trans, nonbinary, and a somewhat reluctant university student. I haven't provided a proper introduction yet!

I've had for thirteen years, for quite a long time, and started getting attacks sixteen years ago. These intensified over the past five years and over the summer I developed chronic migraine giving me about three migraine symptom free days a month. As of last week, I'm mostly successfully trying out propranolol (the vivid dreams are pretty cool so far). Between being autistic and migraine I'm very visually sensitive.

I have struggles with and when I have some extra spoons for the doctor I will be looking more into - they think I have it, but migraine has been my main focus lately. I suspect that after having in the new year that my new intense fatigue and vestibular troubles are related to .

I've been looking for disabled community online and simultaneously have plans to start a local Discord server to connect my local disabled friends with one another, though I'm still figuring out what I want that to look like. I'm happy to be here! πŸ’•

@disability

#actuallyautistic #disability #gerd #ibs #migraine #hypermobility #eds #covid #LongCovid #MigraineChat

Last updated 3 years ago

Sparrow · @sonflower
114 followers · 326 posts · Server eldritch.cafe

@beth_morton Ooh! I do know but I didn't know about - I'm going to keep an eye on it. I'm curious how disabled community will form on here, as I imagine it'll be a little different than on the bird site. Thanks for sharing ☺️

#neisvoid #MigraineChat

Last updated 3 years ago

Irina Calvo β›… :verified_paw: · @irina
89 followers · 104 posts · Server hachyderm.io

How the hell can I know what meds to take like hours before pain escalates when auras and initial pain from TMJD are similar? I just don't know if I should take hardcore pain killer, go get a pain killer inyection, take a small dose of paracetamol, massage my masseter muscle, sleep in a dark cave, use the bite plane thingy, all of it

#migraine #MigraineChat #tmjd

Last updated 3 years ago