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Kirstie Sivapalan · @kirsties
240 followers · 286 posts · Server mastodon.world
Visible - Activity tracking for Long Covid and ME/CFS

Just started using Visible plus with tracking device to manage for . Will add any updates here when I can. For more info check out

makevisible.com/

#pacing #MyalgicEncephalomylietis #LongCovid #pwme #mecs #disabilitytechnology #medicaldevices #chronicillness

Last updated 2 years ago
Original post

Kirstie Sivapalan · @kirsties
237 followers · 274 posts · Server mastodon.world
Visible - Activity tracking for Long Covid and ME/CFS

Just started using Visible plus with tracking device to manage for . Will add any updates here when I can. For more info check out

makevisible.com/

#pacing #MyalgicEncephalomylietis #LongCovid #pwme #mecs #disabiltytechnology #medicaldevices #chronicillness

Last updated 2 years ago
Original post

Kirstie Sivapalan · @kirsties
233 followers · 260 posts · Server mastodon.world
Writing and M.E. - Mini-roll

Happy Friday 13th! Or Goddess Day as my friends and I call it. The humble little mini-roll post coming back today! Will update this afternoon when time and energy permit

writingandme.com/2022/09/30/mi


#pwme #MyalgicEncephalomylietis #chronicillness #politics #ukpolitics #blog #bloggercommunity

Last updated 2 years ago
Original post

Kirstie Sivapalan · @kirsties
233 followers · 260 posts · Server mastodon.world

Our friend's little boy gave me his Pokemon energy cards as a present. I am so touched 😍


#pwme #MyalgicEncephalomylietis #kindness

Last updated 2 years ago
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Kirstie Sivapalan · @kirsties
233 followers · 260 posts · Server mastodon.world
Open media

Tale of two Christmases

Photo 1: Me on Christmas day, sitting on a sofa post-Christmas dinner wearing make up in a gold/brown dress with red paper hat

Photo 2: Me on Boxing Day in bed propped up on pillows, wearing headphones, glasses and blue santa hat

#pwme #notjustforchristmas #MyalgicEncephalomylietis #pem #christmascrash

Last updated 2 years ago
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Going Brogue (she/her) 🇺🇸🇺🇦 🌊 · @GoingBrogue
199 followers · 670 posts · Server mastodon.world

From The Guardian newspaper:

A Catalog of Losses: What Chronic Fatigue Syndrome Took Away From My Life
"Whether anybody else could see it or not, I had lost someone: my former, healthy self."

theguardian.com/society/2022/n

#MyalgicEncephalomyelitis #MyalgicEncephalomylietis #ChronicFatigueSyndrome #mecfs

Last updated 2 years ago
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