@longcovid

* "Multi-omic approAches to Solve post-Acute COVID-19/SARS-CoV-2 Syndrome – MOSAICS" - profiling the molecular mechanisms underlying the development of long-term symptoms.

* "Clinical trial on Low-dose naltrexone for the treatment of Long-COVID and ME/CFS" - assessing safety, effectiveness, and the best dosages and duration of treatment for LDN for Long COVID and ME/CFS.

#LongCovid #MECFS #PLRC #Epigenetics #LDN #Treatment #ClinicalTrials

@longcovid

* "Understanding the relationship between fibrin amyloid microclots and Long COVID" - develop and assess a diagnostic test based on microclots in LC and associated conditions, and identify microclot burden as a function of infection and vaccination.

#LongCovid #MECFS #PLRC #MicroClots #Diagnosis #PostVaxLC

@longcovid

* "Altered T cell responses in Long COVID (PASC) and ME/CFS" - investigating commonalities between Long COVID and ME/CFS T-cells and herpesvirus reactivations.

* "Systems Biology Approaches to Uncovering Disease Mechanism and Drug Repurposing for Long COVID" - deep machine learning parsing clinical data across Long COVID, ME/CFS and related diseases to identify genetic clusters and potential therapeutics.

#LongCovid #PLRC #MECFS #TCells #Herpesvirus #DeepML #Genetics

@longcovid

* "Characterizing non-restorative sleep in post-viral disease to advance intervention innovations" - understanding sleep regulation (foundations of future treatment)

* "A pre- and postoperative study of patients with ME/CFS operated for foraminal stenosis" - does surgery to relieve neck nerve pain help relieve ME/CFS symptoms?

#LongCovid #MECFS #PLRC #SleepDisorder #Hypermobility #EDS

@longcovid
Patient Led Research Collaborative has announced the 9 research projects funded by $4.8m in grants from Balvi. Selected by a panel of patients, we hope they will accelerate progress towards understanding, diagnosis, and eventual treatment of Long COVID and related diseases.

https://patientresearchcovid19.com/press-releases/

#PLRC #LongCovid #ResearchFunding #PatientLed

Details in thread!

@LongCovidAdvoc @longcovid Hi, I'm a roboticist with #LongCovid and I support LC research at #PLRC with the spoons I have left after working part time. I'm trying to establish a work-life balance that accommodates LC limitations - mainly through very strict pacing. Without #DisabilityAccomodations it wouldn't be possible at all.

And I'm interested in doing some rigorous research establishing titration & effectiveness of cognitive and emotional pacing for PESE management!

#Introduction - In my day job, I'm a researcher for the US Naval Research Laboratory (NRL) and the Director of NRL's Laboratory for Autonomous Systems Research (views my own and not those of the DoD; posts don't constitute endorsement). I'm particularly interested in developing a #ScienceOfRobotics that enables prediction of operational performance.

Outside of work hours, I'm a member of the Patient-Led Research Collaborative #PLRC, supporting #LongCovid research as my symptoms allow.