MediPaCe · @MediPaCe
13 followers · 31 posts · Server mastodon.world
MediPaCe are supporting International Women’s day by providing an introduction to a topic close to our hearts – inequalities in health. Please Read more here:
https://medipace.com/2023/03/07/international-womens-day-2023/
#PatientEngagement #patientInvolvement #patient #equity #Equalhealthcare
#PatientEngagement #patientinvolvement #patient #equity #equalhealthcare
MediPaCe · @MediPaCe
13 followers · 30 posts · Server mastodon.world
Equality and Equity are not the same and talking about equal opportunities isn't enough.
People start from different places, so true inclusion and belonging require equitable action.
Head over to the International women’s day website to read more.
https://www.internationalwomensday.com/
#internationalwomensday #PatientEngagement #EmbraceEquity #Equalhealthcare #IWD2023
#internationalwomensday #PatientEngagement #embraceequity #equalhealthcare #iwd2023
MediPaCe · @MediPaCe
13 followers · 29 posts · Server mastodon.worldCheck out the #Roundup of our #RareDiseaseDay campaign here:
https://medipace.com/2023/02/22/rare-disease-day-2023/
Topics include:
- #FamilyPerspectives & #PatientStories
- #PatientEngagement
- #OvercomingChallenges
Special thanks to our network, colleagues and Ines and Nick for sharing your thoughts!
#Roundup #rarediseaseday #familyperspectives #patientstories #PatientEngagement #overcomingchallenges
MediPaCe · @MediPaCe
13 followers · 29 posts · Server mastodon.world
Leveraging existing #PatientGroups and networks is key to finding #RareDisease patients to engage in medicines R&D says Inês Alves from ANDO Portugal.
➡️ Read more about how to overcome challenges to #PatientEngagement in the #RareDiseaseCommunity: https://medipace.com/2023/02/28/raredisease-community/
#patientgroups #RareDisease #PatientEngagement #rarediseasecommunity
MediPaCe · @MediPaCe
13 followers · 29 posts · Server mastodon.world
"What we need is a #PublicPrivatePartnership approach, because the current drug development model does not work in the case of #UltraRareDiseases"
➡️See Nick Sireau's full interview:
https://www.youtube.com/watch?v=RKzwBmUYKF4
➡️Read the full article about overcoming challenges in #PatientEngagement in the #RareDiseaseCommunity: https://medipace.com/2023/02/28/raredisease-community/
#publicprivatepartnership #ultrararediseases #PatientEngagement #rarediseasecommunity #rarediseaseday
MediPaCe · @MediPaCe
13 followers · 29 posts · Server mastodon.world
For #RareDiseaseDay 2023, we reached out to a couple of #RareDiseaseAdvocates in our network to ask them about their work and how they see #PatientEngagement in the #RareDisease space.
🔗 Read more: https://medipace.com/2023/02/28/raredisease-community/…
➡️ Share with us, what #challenges have you faced?
#rarediseaseday #rarediseaseadvocates #PatientEngagement #RareDisease #challenges
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
“#PatientEngagement is particularly important within the sphere of rare diseases”. Working with organisations like @EURORDIS can help you identify #PatientRepresentatives with required experience & skillset.
🔗 https://www.eurordis.org/patient-engagement-in-medicines-development/
#RareDiseaseDay #SharingResources
#SharingIsCaring
➡️ See also the short list of essential #Guidance we've compiled that can help you get started with your #PatientEngagement journey: https://medipace.com/2023/02/24/patient-engagement/
#PatientEngagement #patientrepresentatives #rarediseaseday #sharingresources #sharingiscaring #guidance #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
With #HealthEquity, #Diversity and #Inclusion being top of agenda in healthcare discussions, #Equity for people living with #RareDisease is #EquitableAccess to diagnosis, treatment, health, social care and opportunity.
#DidYouKnow?
#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
#healthequity #diversity #inclusion #equity #RareDisease #equitableaccess #didyouknow #rarediseaseday #PatientEngagement #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
#DidYouKnow that 72% of #RareDiseases are genetic whilst the rest are a result of infections, allergies, environmental causes or are #RareCancers?
Support #RareDiseaseDay and join the discussion to raise awareness!
#didyouknow #rarediseases #rarecancers #rarediseaseday #PatientEngagement #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
"How do you start engaging patients?" is a frequent question we hear.
To help YOU get started with your #PatientEngagement journey, we've gathered a few very basic and quite essential guides that have been either co-created with patients.
🔖 Bookmark this page for later reference to the guides: https://medipace.com/2023/02/24/patient-engagement/
#PatientEngagement #rarediseaseday
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
Did you know, that collectively, the number of people living with a #RareDisease = to the population of the world’s 3rd largest country? 🤯
Support #RareDiseaseDay and join the discussion to raise awareness!
#RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
#RareDisease #rarediseaseday #PatientEngagement #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.worldAre you interested in reading more about the #experiences of people living with #RareConditions?
Check these:
⭐ @EURORDIS https://www.eurordis.org/rare-disease-personal-stories/
⭐ @PatientWorthy https://patientworthy.com
#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
#Experiences #rareconditions #familyperspectives #rarediseaseday #PatientEngagement #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
Why Advocacy Matters: Chris’ story
A rare condition doesn’t only affect the person living with it, but the family too. We found Chris’ story so insightful. Thanks to Chris and MD Group for sharing.
What’s your experience as a family member of someone living with a rare condition?
https://mdgroup.com/blog/why-patient-advocacy-matters-chriss-story/
#FamilyPerspectives #RareDiseaseDay #PatientEngagement #PatientInvolvement #MediPaCe
#familyperspectives #rarediseaseday #PatientEngagement #patientinvolvement #medipace
MediPaCe · @MediPaCe
13 followers · 24 posts · Server mastodon.world
Ahead of #RareDiseaseDay 2023 #MediPaCe is showing support by sharing resources and information about rare diseases and #PatientEngagement to help raise awareness and encourage more #collaboration between the healthcare industry and patient community.
➡ Follow our campaign through our blog page (link below), or our social media channels and join the movement to raise awareness!
#rarediseaseday #medipace #PatientEngagement #collaboration #RareDisease #patientinvolvement
Kevin Pho, MD · @kevinmd
255 followers · 206 posts · Server med-mastodon.comThe importance of engagement in healthcare
Building trust with our patients is key to providing effective care and achieving positive outcomes. This is especially true for adults who are relatively high functioning and prefer to be engaged in decision-making.
Susan MacLellan-Tobert is a pediatric cardiologist.
Listen here: https://kevinmd.com/podcast
#PatientEngagement #BuildingTrust #CollaborativeCare #HealthcareRelationships #PatientExperience
#PatientEngagement #BuildingTrust #collaborativecare #healthcarerelationships #patientexperience
Kevin Pho, MD · @kevinmd
243 followers · 147 posts · Server med-mastodon.comFrom policy to practice: Why involving healthcare staff and patients is crucial for success
I believe it's important to partner with the people who will be directly impacted by the policies we are trying to implement.
Ariane Marie-Mitchell is a preventive medicine physician.
https://youtube.com/shorts/VJVlOF64W3o
Listen here: https://kevinmd.com/podcast
#healthcarepolicy #patientengagement #healthcareadvocacy #healthcarepartnership #healthcareproviders #patientrights
#healthcarepolicy #PatientEngagement #healthcareadvocacy #healthcarepartnership #healthcareproviders #patientrights
Yan Leyfman, MD · @yleyfman
91 followers · 75 posts · Server med-mastodon.com#cancer #oncology #sarscov2 #sars_cov_2 #sars2 #covid19 #covid19research #covidー19 #cancercovid #serineproteases #quantum #quantumcomputing #quantumtechnology #clinicaltrials #clinicaltrial #genonmics #moleculardiagnostics #raredisease #rarediseases #rarediseasetrials #rarediseaseawareness #rarediseaseday2022 #patients #patient #patientcenteredcare #patientsafety #patientsfirst #patientengagement #patientempowerment #patientadvocacy #patientadvocate #ash22 #ash2022
#cancer #oncology #SarsCoV2 #SARS_COV_2 #SARS2 #COVID19 #covid19research #covidー19 #cancercovid #serineproteases #quantum #quantumcomputing #quantumtechnology #clinicaltrials #clinicaltrial #genonmics #MolecularDiagnostics #RareDisease #rarediseases #rarediseasetrials #rarediseaseawareness #rarediseaseday2022 #patients #patient #patientcenteredcare #patientsafety #patientsfirst #PatientEngagement #patientempowerment #PatientAdvocacy #patientadvocate #ash22 #ash2022
Chicilee · @Chicilee
3 followers · 4 posts · Server mastodon.worldThis campaign from #MSF made me smile this morning. I think it also aligns well with #PatientEngagement and #PublicInvolvement ideas and values.
#MSF #PatientEngagement #publicinvolvement
Wayne Liang, MD MS FAMIA · @WayneLiangMD
307 followers · 201 posts · Server med-mastodon.com@thelizarmy patient-investigator extraordinaire publishes her #POV on awake #craniotomy for her #BrainTumor, provider-#patient #communication, #SharedDecisionMaking in #NEJM — check it out!
NEJM (paywall): https://www.nejm.org/doi/full/10.1056/NEJMp2210418
Birdsite: https://twitter.com/thelizarmy/status/1599873193439039488
#PatientEngagement #PatientEmpowerment #MedEd #MedMastodon #mediverse #PatientVoice
#pov #craniotomy #braintumor #patient #communication #shareddecisionmaking #nejm #PatientEngagement #patientempowerment #MedEd #MedMastodon #mediverse #patientvoice
Chicilee · @Chicilee
2 followers · 2 posts · Server mastodon.worldCalling for #PatientEngagement community to connect through Mastodon and drive positive change!
Hi Mastodon folks! I'm Chi, passionate about patient engagement & involvement as I do believe it's a must to improve health outcomes for all. Would love to create a network of like-minded people and groups!
In addition, I might post about my dog, DIY, knitting, cooking, nature and things and happenings around me.
#introduction #patientinvolvement #PatientEngagement