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Tom Kindlon · @tomkindlon
779 followers · 2097 posts · Server disabled.social
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#LongCovid #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2065 posts · Server disabled.social

8/

"It’s discouraging and isolating, especially when you feel that you can’t make plans simply because you do not know that you’ll be able to carry them out."

@chronicillness @spoonies @mecfs @longcovid


#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2060 posts · Server disabled.social

7/

"You may have to start cancelling plans, which can leave you feeling flaky and unreliable, especially when those plans were with someone that saw you on a good day recently."

@chronicillness @spoonies @mecfs @longcovid


#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2059 posts · Server disabled.social

6/

"Fluctuating conditions are also shockingly unpredictable, especially at first, when you don’t know what will trigger a flare or are not yet experienced enough to recognize the warning signs."



@chronicillness @spoonies @mecfs @longcovid

#chronicillness #chroniclife #chronicpain #spoonielife #ChronicIllnesses #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
777 followers · 2056 posts · Server disabled.social
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New:
Pre-pandemic activity on a / support forum is highly associated with later activity on a support forum for a variety of reasons: A mixed methods study

Free
journals.plos.org/plosone/arti

This is sympathetic

@mecfs
@longcovid

1/

#MyalgicEncephalomyelitis #chronicfatiguesyndrome #LongCovid #mecfs #cfs #pwme #myalgice #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
774 followers · 2033 posts · Server disabled.social
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Medscape have updated their free CDC-funded CPD course on

I never looked in detail at the previous course but this looks quite similar

It can be accessed with free registration.

medscape.org/viewarticle/99577

@mecfs @longcovid

#mecfs #MyalgicEncephalomyelitis #chronicfatiguesyndrome #MedEd #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #MedMastodon

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
774 followers · 2029 posts · Server disabled.social
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From: Bateman Horne Center
@BatemanHorne

Introducing video 6 of the Post-Exertional Malaise series, Neurobiological Changes

👉 View the entire PEM video series: bit.ly/3s4a3us

@mecfs
@longcovid

#PEM #pese #merc #medicaleducation #millionsmissing #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
773 followers · 2009 posts · Server disabled.social

The Emerge Australia Research Digest

Alongside a Swiss report detailing the experiences of individuals with ME/CFS, the digest presents research on the enduring cognitive effects of & a study demonstrating the advantages of adhering to pacing strategies to accelerate health recovery & improvement [in ].

emerge.org.au/researchdigest/r

@longcovid
@mecfs
@covid @covid19

#COVID19 #LongCovid #pwlc #PostCovid #PostCovid19 #lc #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #covid

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
763 followers · 1980 posts · Server disabled.social

2/

On the podcast, Ed Yong shared: ME/CFS " is a condition that has existed long before COVID. It is a debilitating, long-term chronic illness that has often been overlooked....People who have it might be bedbound. They might be housebound. They might be unable to perform very simple and normal activities of daily life.... (contd.)"

@mecfs

@longcovid

#MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice #LongCovid #pwlc #PostCovid #PostCovid19 #lc #LongHaulers

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
763 followers · 1968 posts · Server disabled.social

(US) The Hill:
"After the pandemic ends, long COVID still needs congressional attention"

shorturl.at/fnzE2

Opinion piece by senators Time Kaine (D-VA) and Todd Young (R-IN), and former senator Jim Inhofe (R-OK), urging the government to do more to "to help understand, prevent and treat ”

@longcovid @covid @covid19 @novid

#LongCovid #covid #COVID19 #PostCovid #PostCovid19 #novid

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
762 followers · 1967 posts · Server disabled.social
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New pre-print from @C_Scheibenbogen team in Germany

"Observational Study of Repeat Immunoadsorption (RIA) in Post-COVID ME/CFS Patients with Elevated Beta-2-Adrenergic Receptor Autoantibodies"

Free fulltext:
medrxiv.org/content/10.1101/20

Exciting to see a biomedical research randomised control trial planned

@longcovid
@mecfs

#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #MyalgicEncephalomyelitis #chronicfatiguesyndrome #mecfs #cfs #pwme #myalgice

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
756 followers · 1952 posts · Server disabled.social

3/

“Paul Hwang, MD, said “it would be interesting to investigate whether the protein has a role in the fatigue symptoms of patients with other exhaustion-related conditions such as . virus can endure in tissues and prompt a similar cellular reaction”

@mecfs @longcovid

#LongCovid #COVID19 #pwlc #mecfs #cfs #myalgice #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwme #PostCovid #PostCovid19

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
756 followers · 1948 posts · Server disabled.social

(From March)
Canada’s Minister of Health, announced a $20 million investment from the Canadian Institutes of Health Research (CIHR) to support a pan-Canadian Post COVID-19 Condition Research Network called Long COVID Web

canada.ca/en/public-health/new

@longcovid

@covid @covid19

#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #COVID_19 #sarscov2

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
755 followers · 1944 posts · Server disabled.social

3/

There are risks to the individual (the risk of death, but also the risk of long term health issues and even the risk of not being able to earn money or carry out other activities when ill). There also risks to people they are in contact with.

@covid @covid19
@longcovid

#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #COVID_19 #sarscov2

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
755 followers · 1943 posts · Server disabled.social

2/

Her message is that journalists are treating the pandemic as if Covid infections don’t matter any more and it’s time to move on. This, she says, shames people who remain cautious about Covid and it does not communicate the risks which still exist.

@covid @covid19 @longcovid

#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #COVID_19 #sarscov2 #mask

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
753 followers · 1930 posts · Server disabled.social

3/

Press release on German research:

The long-term course of severe

Charité study tracks patients with pronounced fatigue over 20 months

eurekalert.org/news-releases/9

Followed those with fatigue and exercise intolerance at 6 months

@mecfs @longcovid @covid @covid19

#LongCovid #mecfs #cfs #myalgice #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwlc #PostCovid #PostCovid19 #CovidLong

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
752 followers · 1922 posts · Server disabled.social
PolyBio Research Foundation - NASEM workshop features research from PolyBio-supported investigators - PolyBio Research Foundation

#LongCovid #PostCovid #PostCovid19 #postcovidsyndrome #mecfs #cfs #myalgice #MyalgicEncephalomyelitis #chronicfatiguesyndrome #pwme

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
751 followers · 1916 posts · Server disabled.social
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🧵
Postacute sequelae of COVID-19 at 2 years

Free fulltext:
nature.com/articles/s41591-023

"In sum, while risks of many sequelae declined 2 years after infection, the substantial cumulative burden of health loss due to PASC calls for attention to the care needs of people with long-term health effects due to SARS-CoV-2 infection."

@longcovid

@covid @covid19

1/

#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
751 followers · 1915 posts · Server disabled.social
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#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #covid1in20 #ApresJ20 #covidpersistente #mitcoronaleben

Last updated 1 year ago
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Tom Kindlon · @tomkindlon
751 followers · 1914 posts · Server disabled.social
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2/

"Epigenetic reprogramming of HSPC may underlie altered immune function following infection and be broadly relevant, especially for millions of COVID-19 survivors."

@longcovid

@covid @covid19

#LongCovid #pwlc #postcovidsyndrome #PostCovid #PostCovid19 #lc #covidlonghaulers #LongHaulers #covidー19 #COVID19 #covid #covid1in20 #ApresJ20 #covidpersistente #mitcoronaleben

Last updated 1 year ago
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