"Neurocognitive Profiles in Adolescents with #PosturalTachycardiaSyndrome and Perceived Brain Fog: A Preliminary Report"

https://www.sciencedirect.com/science/article/abs/pii/S0887899423002692

"Further research is needed to elucidate the basis for perceived “brain fog” and cognitive impairment in #POTS, such as better understanding of patient and parental perceptions of initial medical symptoms and diagnosis as well as symptom amplification due to biopsychosocial processes." 😠 🤢

@pots #PosturalOrthostaticTachycardiaSyndrome

Ivabradine effects on COVID-19-associated #PosturalOrthostaticTachycardiaSyndrome: a single center prospective study

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10352820/

"Ivabradine might be a useful option to relieve symptoms of tachycardia in COVID-19 #POTS."

@pots

From Germany:
'Cognitive functioning in postural orthostatic tachycardia syndrome among different body positions: a prospective pilot study (POTSKog study)'

https://link.springer.com/article/10.1007/s10286-023-00950-0

"Patients with #PoTS had impaired attention (TAP median reaction time) in the seated position and impaired executive functioning (Stroop) while standing compared with HC [healthy controls]"

#PosturalOrthostaticTachycardiaSyndrome @pots #OrthostaticIntolerance

New from New Zealand:
“High incidence of autonomic dysfunction & #PosturalOrthostaticTachycardiaSyndrome in patients with #longCOVID: Implications for management and healthcare planning”

https://www.amjmed.com/article/S0002-9343%2823%2900402-3/fulltext

“Study presents a detailed prospective evaluation of autonomic symptoms, function & [health-related quality of life] in those with #PASC with comparison to those with #POTS & healthy controls”
@longcovid #pwlc #PostCovid @pots

What is POTS, and how is it related to COVID?

#COVID19 #POTS #PosturalOrthostaticTachycardiaSyndrome

Source: https://www.smh.com.au/lifestyle/life-and-relationships/what-is-pots-and-how-is-it-related-to-covid-20230529-p5dc3v.html

New:
"Comparison of a 20 degree and 70 degree tilt test in adolescent myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) patients"

Free fulltext:
https://www.frontiersin.org/articles/10.3389/fped.2023.1169447/full

#MyalgicEncephalomyelitis #PosturalOrthostaticTachycardiaSyndrome #POTS #OI #MEcfs #CFS #PwME @pots @mecfs @cfs

Press release:
“Metrodora is the first integrated, multidisciplinary medical and research center dedicated to diagnosing and treating neuroimmune axis disorders, an under-researched disease space that impacts hundreds of millions of people”

https://prn.to/3N6wGHv

Is in Salt Lake City, Utah

Mentions “#longCOVID, #myalgicencephalomyelitis /#chronicfatiguesyndrome (ME/CFS), & #PosturalOrthostaticTachycardiaSyndrome (#POTS)”

#mecfs #cfs #pwme #PwMEs #CFIDS #cfsme

"A Shropshire couple, who provide devoted round-the-clock care for their bedridden 18-year-old daughter, have chosen to raise awareness of her condition through a fundraiser with The ME Association. Their daughter has a severe form of M.E. linked to #PosturalOrthostaticTachycardiaSyndrome (#PoTS)."

https://meassociation.org.uk/2023/03/tiegans-parents-join-our-hunt-for-treatments-and-a-cure

@severeme #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcfs #CFS #MyalgicE #PwME #MEeps #SevereME #SevereMECFS
#SevereCFS #VerySevereME

For the last year or two I've been becoming more and more certain that long covid was related to POTS. I was diagnosed with POTS about a decade ago (along with Ehlers Danlos Syndrome) after many years of me saying something was wrong with me and doctors saying they couldn't find anything. I know this struggle well and it's the same struggle I've seen those with long covid symptoms go through. The medical community has been drastically ignoring those of us with this because they said it was so uncommon -- it's not. Digging deeper I have felt, since my diagnosis, that research into EDS and POTS can possibly unlock so many clues about other people who have other conditions - simply, there's a lot to learn about the human body inside POTS.

https://www.yahoo.com/news/condition-called-pots-rose-covid-185615559.html

#POTS #PosturalOrthostaticTachycardiaSyndrome #EDS #EhlersDanlos #Covid #LongCovid #dysautonomia

2/n

Part 2 of the Scientific American article

“#LongCOVID Now Looks like a Neurological Disease,” discussing dysfunction of the #autonomic nervous system, #PosturalOrthostaticTachycardiaSyndrome (POTS), cognitive dysfunction, also known as “#BrainFog”, and other neurologic symptoms of Long COVID. The autonomic nervous system travels is responsible for unconscious functions such as the regulation of the heart beating, breathing, sweating and blood vessel dilation. "

Summary: Dr Ruth Crystal

Attached are the diagnostic criteria for #PosturalOrthostaticTachycardiaSyndrome (#POTS). Discussed at https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8920526/

Notice how they require an absence of a (particular) blood pressure drop. I think some are unaware of this criterion

#OrthostaticIntolerance #OI #Dysautonomia @pots #orthostatichypotension

3/
“#MyalgicEncepahlomyelitis, #fibromyalgia, #Dysautonomia, #PosturalOrthostaticTachycardiaSyndrome & #LongCovid are just a few #ChronicIllnesses that present with complex ambiguities. As a part of human nature, we don’t like ambiguity. We prefer concrete evidence and proof. However, not every chronic illness allows for this. So, when you and your loved one are confronted with such a journey, start at a place of compassion and validation. Next, cultivate a sense of understanding and acceptance”

#cardiology #LongCovid #Posturalorthostatictachycardiasyndrome and #orthostatichypotension in post-acute sequelae of #COVID19 during pregnancy: a #CaseReports
https://academic.oup.com/ehjcr/article/6/12/ytac453/6853023

#introduction

I have #MECFS #ehlersdanlos #posturalorthostatictachycardiasyndrome #MCAS #immunodeficiency etc..

I spend a lot of time reading research trying to find something to help me be more functional. MCAS was a big cause of pain, but the fatigue portion I haven't made much progress.

Now I'm just trying to not get covid-I don't need new problems. Sadly vaccines don't work on me & reactivated my EBV.

Otherwise I make art, and have kitties, and foster kittens.

#MastCellActivationDisease #MCAD
#MastCellActivationSyndrome #MCAS
#PosturalOrthostaticTachycardiaSyndrome #POTS #Dysautonomia
#ChronicIllness #ComplexIllness
#Intersectionality
#ADHD #Autism
#MentalIllness
#Neurodivergence
#PleasureGardening
#DystopianLit #DystopianSciFi #DystopianFantasy
#FibreArt #FibreArts

pinned toots will be added to and/or changed over time

more interests & what I stand for:
#Decolonialism #Anticolonialism
#AntiRacism
#Creating #Crafting #Building #Making
#Dogs #DogsDogsDogs! #RescueDogs
#MastCellActivationDisease #MCAD
#MastCellActivationSyndrome #MCAS
#PosturalOrthostaticTachycardiaSyndrome #POTS #Dysautonomia
#ChronicIllness #ComplexIllness
#Intersectionality