@mindfog @alex there's this comment, but I still don't trust we'll get a positive outcome

"Janet Sylvester #MEAction UK said about today's NICE roundtable.

“I felt this was a positive meeting. There were large areas of agreement from all attendees, ..... I'm optimistic for a swift decision from NICE to publish the guideline."

#pwME #PublishThatGuideline https://t.co/rZWEXoD8uw

Some good news. It shouldn't have to come to this, but I think this is a good step.

"I have today sent @NICEComms a letter before claim under the judicial review pre-action protocol regarding its decision of 17th August 2021 to pause publication of its updated guidelines on the diagnosis and management of mE/CFS

The letter before claims seeks agreement by NICE to revert to follow its procedures as set out in its manual no later than noon on Wednesday 6th October 2021, in default of which we intend to issue proceedings asking the High Court to intervene.

Any roundtable must be held after publication of the guidelines #publishthatguideline"

Via https://twitter.com/PeterTodd_/status/1443887167055581188

@MECFS @ChronicIllness #MECFS

Just thinking about how the BPS* lot say that #pwME have 'false illness beliefs'. Actually, we have 'false wellness beliefs' - we always do way more than we should, hence #PEM being such a strong marker of #MECFS.

#PublishThatGuideline

*Biopsychosocial model - the 'it's all in your head' psych lobby view of MECFS.

@MECFS

The ME Association have created a template letter to contact your MP about the #MECFS NICE guidelines delay.

The letter asks your MP to contact NICE on your behalf, and to sign the letter being created by Caroline Monaghan MP, from the APPG (All Party Parliamentary Group on ME) which is being released Thurs 26th August, 5pm.

You can write as someone with ME, or as someone who is a carer for someone with ME.

The template letter is here: https://meassociation.org.uk/2021/08/contact-your-mp-about-the-nice-guideline-delay/

#MECFS #ChronicIllness #PublishThatGuideline

@MECFS @ChronicIllness