Lily Rose by the Beach · @Persephone
94 followers · 161 posts · Server mastodon.me.uk

Tonight's random symptom:
Pain between my ribs.
Cheers, body. You certainly can't be accused of being boring.




#costochondritis #fibromyalgia #pwme #mecfs #symptomroulette #RCCX #connectivetissue

Last updated 3 years ago

Lily Rose by the Beach · @Persephone
70 followers · 132 posts · Server mastodon.me.uk

Today's : very loud and uncomfortable .
I've had it for as long as I've been ill (since 2003) but I'm sure it has got worse recently. ☹
Not the worst symptom by far, but decidedly not fun.
(maybe linked to )

#symptomroulette #tinnitus #pwme #mecfs #eds #RCCX

Last updated 3 years ago

Lily Rose by the Beach · @Persephone
70 followers · 132 posts · Server mastodon.me.uk

I saw a suggestion earlier that and, by extension, can damage connective tissue. Anybody know if there is research confirming this?

#LongCovid #mecfs #eds #Chiari #RCCX #CSFleak

Last updated 3 years ago

Lily Rose by the Beach · @Persephone
70 followers · 132 posts · Server mastodon.me.uk

I haven't talked much about my health here for a while, because I mostly use social media for escapism.
I became unwell in 2003. It took 10 years to get a diagnosis.
I was diagnosed with in 2013 the in 2015.
It is a very complicated health puzzle. The gene cluster theory by Dr Sharon Meglathery provides some clues, connection with
Additionally I had a head injury back in 1983 which I believe may be relevant. Plus Mono/ glandular fever in 1991.

#mecfs #fibromyalgia #RCCX #eds

Last updated 3 years ago