Another topic I've been thinking about in that regard is how I am asked on many appointments with my son if some students can join us - we're never asked in beforehand, but only during the appointment - because my son's condition is so super rare. It was good to learn what other people's thoughts on that are, because I'm a bit caught between "it's good that students learn more about rare conditions" and "but I need to protect my kid's privacy". Before the next appointment, I'll talk about it with my son, and maybe we'll then demand something like that they can only come in when he's fully dressed or so. #Doctors #RareConditions

Anyone one in the #Sarcoidosis community on here 🙋🏾‍♀️ would love to connect

#Repost @sarcoidosisuk
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We are delighted to welcome Kemi Sulola as our #Charity #Ambassador
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Looking forward to taking on my new role where I can share the #Stories of other,

If you are interested in #sharing your story with sarcoidosis UK please #reach out to me on kemi@sarcoidosisuk.org.

#health #Journey #Community #Conditions #RareConditions #Warriors #Hope #Healing #Artist