It’s #RareDiseaseWeek and I was delighted to meet with amazing 🇮🇪 patient advocates from @eurordis this week in Brussels.

Managing rare diseases requires a pan-EU approach. A #EuropeanHealthUnion will be an important part of supporting patients and their families.

🐦🔗: https://n.respublicae.eu/BillyKelleherEU/status/1623278118713675778

Great to meet with Irish patient advocates at the beginning of #RareDiseaseWeek 🇮🇪

I am looking forward to discussing the Orphan Medicinal Product Regulation tomorrow with @eurordis 📣 More must be done to address the unmet needs of rare disease patients.

🐦🔗: https://n.respublicae.eu/DeirdreCluneMEP/status/1622998797742665729