"Du siehst ja gar nicht krank aus!“ Einen Satz den wir oft hören.
Urteile nicht nach dem äußeren Schein, wie jemand wirkt.
Denn man weiß nie, ob diese Person nicht vielleicht gegen eine schwere oder seltene #Krankheit kämpft, wie wir #Sarkoidose Patienten. #sarcoidosis #rare

Random #sarcoidosis shit: the swelling.
This week me left leg is doing the most 😐

Morgen bieten wir für alle Menschen mit #Sarkoidose einen ungezwungenen und gleichberechtigten Austausch an. Unter https://meet.goto.com/648104397 ist ab 19:00 eine Einwahl möglich.
#sarcoidosis #rarediseaseday2023 #Awareness

Results are up to 15mo. post-index date.

The vasculitises include #Wegener's disease (2.51x risk), #Behcet's (2.42x), #sarcoidosis (2.14x), & #arteritis temporalis (1.63x).

Risk of AI disease also increased markedly amongst adolescents (but was not statistically significant).

#Sarkoidose ist eine Erkrankung, die den ganzen Körper betreffen kann. Auch im Bereich der Selbsthilfe muss es mehr Vernetzung geben. Dafür braucht es Offenheit, Selbstbewusstsein und ein wenig Mut. Wir sind bereit dazu!
#sarcoidosis #rare #Awareness

Am 28.02. ist Tag der Seltenen Erkrankungen. Die Sarkoidose Selbsthilfe Schleswig Holstein ist dabei mit einem online-Café von 19-21 Uhr.
Wir wollen #Sarkoidose sichtbarer machen. Unter info(ät)sarkoidose-sh(.)de bekommt ihr den link.
#sarcoidosis #rare #Awareness

Eye exam shows no signs of the #Sarcoidosis in my eyes, which means so far it’s lymphatic and pulmonary. Then I headed next door to get chest X-ray and EKG; got the first, waiting on the second. I haven’t heard from the lung function lab to schedule my test there so I will have to call them this week.

For the next few months… #illness #steroids #Sarcoidosis

Whatever. Laugh. Don't ask. 🙈🤦🏻‍♀️🥲 I do make a delicious Gunther anyway.
#Sarcoidosis

Anyone one in the #Sarcoidosis community on here 🙋🏾‍♀️ would love to connect

#Repost @sarcoidosisuk
• • • • • •
We are delighted to welcome Kemi Sulola as our #Charity #Ambassador
• • • • • •

Looking forward to taking on my new role where I can share the #Stories of other,

If you are interested in #sharing your story with sarcoidosis UK please #reach out to me on kemi@sarcoidosisuk.org.

#health #Journey #Community #Conditions #RareConditions #Warriors #Hope #Healing #Artist

The doctor who referred me for a biopsy basically just related to me the judgment of the test results I already read: consistent with #Sarcoidosis. Next week I go for a CT scan focused on the torso to check for any other affected organs beyond what's been spotted in my lymphatic system. And then I guess we go from there.

So, if I’m reading this right it mostly sounds like they didn’t find cancerous stuff, didn't find any obvious infections, and so nothing concrete, but consistent for #Sarcoidosis? Which now I will go read about.

#Sarcoidosis #chronicpain

Redone with shifting my server to disabled.social.

#Introduction 2.0: #MichiganState alum #EnglishMajor. #Neurosarcoidosis #Sarcoidosis patient, placed me in the #disability community. A #GenX nerd with far too many fandoms: #StarTrek, #StarWars, #Anime, #TwinPeaks, #Tolkien, Tolkien Society Member, #Playstation, #Music, #90s, #SherlockHolmes, #D&D, #biology, #gothic fiction, #history, #science, #scicomm, etc.

#Introductions
Hello!

I'm Melissa but I use my birdsite handle on Mastodon. I'm an #Iowan living in Eugene, #Oregon, USA. I've previously lived in London, Los Angeles, Florida, and South Carolina. I have a BA in #theatre, am a sci-fi nerd (#StarWars!), love photography, and am very political (#progressive #Democrat.) My life has been radically changed by #MyalgicEncephalomyelitis and #Sarcoidosis.

Thank you to Mastodon for being so welcoming. I look forward to building a new community here.