The Sickle Cell Reproductive Health Education Directive's (SCRED) mission is unique in that it specifically focuses on addressing the particular and extremely neglected sexual and #ReproductiveHealth care needs of people with #SickleCellDisease.
I'm thrilled to see the National Governors Association highlight my trailblazing colleague Teonna Woolford, co-founder and CEO of SCRED, in this blog post on improving #HealthEquity for #RareDiseases. https://www.nga.org/news/commentary/improving-health-equity-for-rare-diseases/
#rarediseases #HealthEquity #SickleCellDisease #reproductivehealth
RT @LydiaPecker@twitter.com
Children < 5-years with #sicklecelldisease take daily penicillin prevents life-threatening infection (Gaston et al, NEJM, 1986).
There is a national liquid penicillin shortage. This is an essential medicine!!
Can pharmacies compound?
@US_FDA@twitter.com @POTUS@twitter.com @KamalaHarris@twitter.com @DrGiroir@twitter.com
🐦🔗: https://twitter.com/LydiaPecker/status/1600945787533291520