Magic Cauldron · @Magic_Cauldron
520 followers · 3776 posts · Server treehouse.technopagans.de

Ich bin übrigens die, die heute am Morgen die Badewanne schrubbte und jetzt solche Schmerzen in Nacken/Hals hat, dass mir schlecht wird.*
Die letzten beiden Male landete ich mit sowas (Schiefhals, bedingt durch Muskelverhärtung/blockade) im Krankenhaus, weil ich nicht mehr in der Lage war den Kopf zu bewegen drehen.**
Hoffe wir haben es diesmal früh genug abgefangen.

* (Danke, bitte keine Hinweise zu Herzinfarkten bei Frauen.)

** War beim letzten Mal mit Kleinkind voll lustig. Die @1Atalante1 war damals großartigste Krankenhauskindersitterin. Was mir beim Schreiben gerade einfällt: Das war ziemlich exakt vor 5 Jahren, Tag nach der Rückfahrt von der Beerdigung meiner Mama... Und die Ärztin, die mich damals behandelte guckte in meine elektronische Akte und sagte: "Oh, wie lustig, ich habe sie vor fast genau 5 Jahren schon mal deswegen behandelt!" 😱 Aaaaaaahhhh!

#SpoonieLife #chronischKrank #Schmerzen

Last updated 1 year ago

Magic Cauldron · @Magic_Cauldron
479 followers · 3423 posts · Server treehouse.technopagans.de

Viel getan diese Woche, heute quasi die Rechnung dafür.

Kleiner Reminder an mich, dass ich heute dennoch nicht untätig war. Es ist okay, wenn ich mich gleich geschafft einrolle:

* Aufgerissene Nähte im Lieblingskleid von Hand genäht

* Diverse Sorten Eistee für die Familie gekocht und abgefüllt

* Füllung für die Frühlingsrollen vorgekocht.

* Erdnusssauce gekocht

* Mit Mediatorin wegen Schulscheiß telefoniert

* Kindermähne in Form gestriegelt und geflochten

* Kind bekuschelt und mit Spielzeit bedacht

* Noch nix gegessen... Ups.

#SpoonieLife

Last updated 1 year ago

Shermin Arif · @Magic_Cauldron
419 followers · 2461 posts · Server treehouse.technopagans.de

Heute nur Abendessen für mich. Todmüde, hungrig, will was Warmes. Griff in den Notvorrat: Päckchen Instantnudelsuppe, TK-Gemüse, Tahin, Creme Fraiche, Gewürze. (Swipe für Zutaten) Fühle mich nur minimal schlecht, weil Tütensuppe - aber hey, es ist lecker und warm, no Spoons left, und der Rest kann mich mal am Töffel tuten. Wer keine Ramen isst, werfe den ersten Stein. Außerdem: Nicht immer können wir alle tolle, selbstgekochte Gerichte aus dem Ärmel schütteln - und es ist perfekt für meine . 😅

Habt ihr auch so schnelle, warme Gerichte, die in 10 Minuten fertig sind?

#FürMehrRealitätAufDemTeller

@food

#vorratskammerchallenge #SpoonieLife #vorratshaltung #gunstigegerichte #suppe #ramen #dinner #abendessen #DerMagischeKessel #abendbrot #vorratskammer #edamame

Last updated 1 year ago

Hey everyone - it's a damp, cold & yucky day here in NE England. My joints are grumpy after two very busy days so this morning is a morning off! Got 1 class after lunch and a few emails that must be written. But that's for later; is calling my name right now

#stardewvalley #gaming #pacing #SpoonieLife

Last updated 2 years ago

Happy Friday everyone! I had a lovely walk out with a friend yesterday afternoon between a couple of classes - and we dodged the high winds & rain that swept in later. Today's a lighter day - just had 1 short class & have another just after lunch, then I get a break until tomorrow afternoon. Looks like my new timetable is working out - balancing earning enough 💰 and managing my .

#hypermobility #spoonie #SpoonieLife

Last updated 2 years ago

kellihazel · @kellihazel
65 followers · 141 posts · Server mastodon.world

@wickedmoonmouse most of us are just used to the isolation and lack of empathy, sadly. We may not like it, but is just that way.
I don’t want to sound defeated, because I’m not. I’m a Spoonie with a ‘tude, for sure. I just pick my battles, and sometimes ignorance isn’t worth losing spoons over.

#spoonies #SpoonieLife #chronicillness #chronicfatigue #ehlersdanlos #mcas #dysautonomia #fibromyalgia

Last updated 2 years ago

@sinituulia Oh yes, I know that feeling well! This very cold weather doesn't help either, does it 😞 Every time I have a temperature, aches or sweats, or sore throat I wonder if it's a virus or is it just body weirdness?! Just have to keep remembering to be kind to ourselves.

#SpoonieLife

Last updated 2 years ago

kellihazel · @kellihazel
20 followers · 93 posts · Server mastodon.world

Studies are now showing related micro clots & they may be a sign a person has or Covid-causing MCAS.

As someone with Mast Cell Activation Syndrome (to go along with my and ), I’m so sorry for everyone developing this. I wouldn’t wish my symptoms on anyone nor the apathy you’re about to experience from healthy people on you either.

covidcaregroup.org/blog/unders

#LongCovid #mcas #eds #dysautonomia #spoonie #SpoonieLife #chronicillness

Last updated 2 years ago

Lightning Duck · @LightningDuck
18 followers · 77 posts · Server spoonie.community

Measure twice, cut once

#SpoonieLife

Last updated 2 years ago

Denny Kozlov · @DennyKozlov
53 followers · 109 posts · Server mindly.social

I'm not above a little positive reinforcement for pushing through the morning stiffness to get out of my cave and take care of the groceries.

#mexicanfood #SpoonieLife

Last updated 2 years ago

Denny Kozlov · @DennyKozlov
53 followers · 107 posts · Server mindly.social

Still a few blossoms hanging on despite the colder weather.

#drivebyphotography #SpoonieLife

Last updated 2 years ago

Denny Kozlov · @DennyKozlov
53 followers · 106 posts · Server mindly.social

Coffee at my favorite riverside hang; the leaves have completely turned in the week since I was last here.

#drivebyphotography #SpoonieLife

Last updated 2 years ago

Denny Kozlov · @DennyKozlov
44 followers · 84 posts · Server mindly.social

This often runs out of energy while cooking, so my clean-as-you-go routine kind of falls by the wayside, resulting in a game of dish rack Jenga the following day. (Tiny-ass kitchen with no dishwasher save me does not help matters.) 🤣

#spoonie #SpoonieLife #spooniecooking

Last updated 2 years ago

Lightning Duck · @LightningDuck
13 followers · 38 posts · Server spoonie.community

"Some days I start with a drawer full of spoons...some days I just start with a plastic spork"-LightningDuck

#spoonie #SpoonieLife

Last updated 2 years ago

Denny Kozlov · @DennyKozlov
37 followers · 70 posts · Server mindly.social

Hokay, and now I need to take an energy-replenishment break from an afternoon of cooking, so this one will now turn into a Khajiit again to go tromping around the lovely land of Tamriel.

#elderscrollsonline #eso #spoonie #SpoonieLife

Last updated 2 years ago

Denny Kozlov · @DennyKozlov
37 followers · 70 posts · Server mindly.social

Decarbing my weed in my Instant Pot preparatory to making edibles. Yep, my whole process is this funky and McGyvered - but hey it works for me! :boomer_laugh:

#weed #edibles #SpoonieLife #spoonie #cannabis #medicalmarijuana

Last updated 2 years ago

Denny Kozlov · @DennyKozlov
35 followers · 62 posts · Server mindly.social

Meanwhile on the homefront: I'm planning for a solo Thanksgiving this year, and I'm actually okay about that. Especially since I hope to hang out online periodically throughout for that internet community flavor. (Like I do everyday, actually.)

#thanksgiving #spoonie #spooniecooking #SpoonieLife

Last updated 2 years ago

Lightning Duck · @LightningDuck
12 followers · 26 posts · Server spoonie.community
Silver Gorilla · @SilverGorilla2
127 followers · 242 posts · Server mastodon.world

Hello folks!

If you are following , and other hashtags.

I’d like to invite you to follow 👉🏼 and 👈🏼 if that’s your journey, or to say hi or to add your experience or research.

This “Common Ground Goblin” is the incarnation of my fatigue.

He sits on my back and weighs 500 pounds.

Help me name him!

❤️Anne

#chronicillness #fatigue #spoonies #spoonie #SpoonieLife #autoimmune #wheelchair #disabled #accessibility #Fediscience #neurology #ms #multiplesclerosis #MSChat

Last updated 2 years ago

Denny Kozlov · @DennyKozlov
33 followers · 54 posts · Server mindly.social

Cooking, round 2: turnips and onions roasted in the drippings from the chicken.

#cooking #omnivore #spooniecooking #SpoonieLife

Last updated 2 years ago