πŸ‘‹Basically what's in my in my name/bio covers most of it:-
Helping awareness of Ehlers-Danlos Syndrome & Hypermobility Spectrum ​
Multisystemic Connective Tissue disorders which can =
/IIH /TN & more
& a supporter
Backup to twitter @luvenice_h when gets impossible for us to use. Sad it has been ruined aft using as a tool for 10+yrs post hEDS dx.
Helps me to help others.

#introduction #eds #HSD #pots #oi #mcas #mecfs #CSFleak #SIH #BoneSpurs #Stenosis #CCI #TMJ #on #crps #sfn #NEISvoid #LongCovid

Last updated 2 years ago

I've signed the @NeuroAlliance petition, calling for UK governments to urgently establish a Neuro Taskforce. Add your name too! etc
campaigns.mssociety.org.uk/pag

#backthe1in6 #Dysautonomia #pots #pwME #mecfs #CSFleak #Stenosis

Last updated 2 years ago

@bennessb
πŸ‘‹What's in my name/bio covers it:-
Helping awareness of Ehlers-Danlos Syndrome & Hypermobility Spectrum
Multisystemic Connective Tissue disorders which can =
/IIH /TN & more
& a supporter
Backup to twitter @luvenice_h if/when gets impossible for us to use.
Sad Twitter has been ruined aft using as a tool for 10yrs post hEDS dx. Helps me to help others especially the undx

#eds #HSD #pots #oi #mcas #mecfs #CSFleak #SIH #BoneSpurs #Stenosis #CCI #TMJ #on #crps #sfn #NEISvoid #LongCovid

Last updated 2 years ago