Bendy~hEDS & Co 🥄👩🏻🦼😷 · @bendyhedsandcoawareness
47 followers · 53 posts · Server mastodonapp.uk#Introduction 👋Basically what's in my in my name/bio covers most of it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFLeak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISvoid & a #LongCovid supporter
Backup to twitter @luvenice_h when gets impossible for us to use. Sad it has been ruined aft using as a tool for 10+yrs post hEDS dx.
Helps me to help others.
#introduction #eds #HSD #pots #oi #mcas #mecfs #CSFleak #SIH #BoneSpurs #Stenosis #CCI #TMJ #on #crps #sfn #NEISvoid #LongCovid
Bendy~hEDS & Co 🥄👩🏻🦼😷 · @bendyhedsandcoawareness
49 followers · 57 posts · Server mastodonapp.uk
I've signed the @NeuroAlliance petition, calling for UK governments to urgently establish a Neuro Taskforce. Add your name too! #BackThe1in6 #Dysautonomia #POTS #pwME #MEcfs #CSFleak #Stenosis etc
https://campaigns.mssociety.org.uk/page/106592/petition/1
#backthe1in6 #Dysautonomia #pots #pwME #mecfs #CSFleak #Stenosis
Bendy~hEDS & Co 🥄👩🏻🦼😷 · @bendyhedsandcoawareness
49 followers · 57 posts · Server mastodonapp.uk@bennessb
👋What's in my name/bio covers it:-
Helping awareness of Ehlers-Danlos Syndrome #EDS & Hypermobility Spectrum #HSD
Multisystemic Connective Tissue disorders which can =
#POTS #OI #MCAS #MEcfs #CSFLeak #SIH/IIH #BoneSpurs #Stenosis #CCI #TMJ #ON/TN #CRPS #SFN & more
#NEISVoid & a #LongCovid supporter
Backup to twitter @luvenice_h if/when gets impossible for us to use.
Sad Twitter has been ruined aft using as a tool for 10yrs post hEDS dx. Helps me to help others especially the undx
#eds #HSD #pots #oi #mcas #mecfs #CSFleak #SIH #BoneSpurs #Stenosis #CCI #TMJ #on #crps #sfn #NEISvoid #LongCovid