Emily Johnson · @emily_rj
760 followers · 830 posts · Server disabled.social

I’ll keep updating as TT goes on

Waiting for labs to show further risk factors

Having these improvements that I honestly began to think were impossible just 2 weeks into TT has me thinking everyone with should test for and treat microclots 10/

#TeamClots #mecfs #pots #LongCovid

Last updated 2 years ago

Emily Johnson · @emily_rj
691 followers · 696 posts · Server disabled.social

This test should be widespread, every doctor off or on should know about it

Not enough patients know about or have money for tests (I’ll have to do a fundraiser to afford treatment)

This is serious, it impacts so much; keep looking

#medtwitter #TeamClots #mecfs #LongCovid #pwme

Last updated 2 years ago

Emily Johnson · @emily_rj
691 followers · 694 posts · Server disabled.social

I’ve been on Xarelto after a PE for 1.5 years, but felt very inflamed for 2 years

I said “I think I have microclots” then “is my daily anticoagulant enough?”

I was right: I have microclots and Xarelto wasn’t enough

Don’t give up on answers

#pwme #LongCovid #mecfs #TeamClots

Last updated 2 years ago

Corrosive Dream · @corrosivedream
298 followers · 1277 posts · Server troet.cafe

5/ What we do patients actually want? To get better with safe treatments that not only halt progression BUT improve our baselines. Even if incremental. That’s part of what makes the pt work from @doctorasadkhan , and @ales_frost & @chydorina @remissionbiome so special.

#TeamClots

Last updated 2 years ago

daniel · @travelhealthdoc
271 followers · 707 posts · Server med-mastodon.com

"Even after three years since the emergence of , much remains unknown about how it causes severe disease, including the widespread organ damage beyond just the lungs. Increasingly, scientists are learning that organ dysfunction results from damage to the blood vessels"

medicalxpress.com/news/2023-04

#COVID19 #TeamClots #LongCovid

Last updated 2 years ago

Hannah Strobel · @hope
120 followers · 714 posts · Server critcare.social

@CochraneD Videos of HCWs who are gleefully cheering on the removal of masking in health care settings are creepy & bleak as hell. Cuz not only will this harm patients, but it will harm them, too. No one wins.



⬇️
bird.makeup/users/sarahlerner/

😳


#keepmasksinhealthcare #keepmasksinca #COVIDisAirborne #TeamClots #CovidIsNotOver #medizinbrennt

Last updated 2 years ago

A literature review by Massimo Nunes, Doug Kell and Resia Pretorius highlighting the potential of studying cardiac functioning, the vasculature, and coagulation system in ME/CFS.


sciencedirect.com/science/arti

#mecfs #LongCovid #TeamClots

Last updated 2 years ago

NGrandvaux · @NGrandvaux
437 followers · 307 posts · Server mstdn.science

RT @doctorasadkhan
Our preprint about treatment of 91 patients with triple anticoagulant therapy is out! By Dr Jaco Laubscher, @resiapretorius @dbkell @JanPretorius98 & myself...





1/n twitter.com/RS_COVID19/status/

#LongCovid #researchlongcovid #treatlongcovid #mecfs #TeamClots #medtwitter #meded

Last updated 2 years ago

RT @doctorasadkhan
Our preprint about treatment of 91 patients with triple anticoagulant therapy is out! By Dr Jaco Laubscher, @resiapretorius @dbkell @JanPretorius98 & myself...





1/n twitter.com/RS_COVID19/status/

#LongCovid #researchlongcovid #TreatLongCovid #mecfs #TeamClots #medtwitter #MedEd

Last updated 2 years ago

Ian · @Ian_R_Howard
82 followers · 505 posts · Server mastodonapp.uk

RT @resiapretorius
Today is LongCOVID awareness day. Let us keep on advocating for better care, a focus on diagnosing patients and the urgency for research. @dbkell @doctorasadkhan @PutrinoLab @VirusesImmunity @ahandvanish @EricTopol @WHO

#TeamClots

Last updated 2 years ago

Vikram Jha :verified: · @invinciblejha
338 followers · 1650 posts · Server med-mastodon.com

RT @seeksboston26mi
Isn't it bad enough that people w/ become disabled, lose identity, jobs, careers, and endure financial peril; we have to take on LC hate, gaslighting and mean people like Dr. Seuss aka @Vprasadmdmph. My digital short. .

#LongCovid #meantweets #pwLC #TeamClots #FBLC #saunastalker

Last updated 2 years ago

Ultrogotha · @rlapotre
87 followers · 1800 posts · Server mamot.fr

RT @jannamoen@twitter.activitypub.actor

Thrilled to share my first "deep dive" research post for my newsletter on microclots in ! Please check it out to learn more about the science behind this really important topic and consider subscribing if you want more of these posts! lcbreakdown.substack.com/p/dee

🐦🔗: twitter.com/jannamoen/status/1

#LongCovid #TeamClots

Last updated 3 years ago

Vikram Jha :verified: · @invinciblejha
222 followers · 1258 posts · Server med-mastodon.com

RT @lessorfewer
Update on for

Almost 23 months into LC. Main symptoms: fatigue, headaches, tinnitus, brain fog, especially after cognitive activity. Just started week 7 of aspirin, apixaban, clopidogrel + also taking atorvastatin.

1/4

#tripletherapy #LongCovid #pwLC #mecfs #pwme #TeamClots

Last updated 3 years ago

Gary Robinson · @lessorfewer
540 followers · 405 posts · Server mstdn.social

Update on for

Almost 23 months into LC. Main symptoms: fatigue, headaches, tinnitus, brain fog, especially after cognitive activity. Just started week 7 of aspirin, apixaban, clopidogrel + also taking atorvastatin.

Some small improvements:
* clearer thinking, focus
* on some days, increased SpO2 from generally 95 to 97-99
* haven’t woken up with extremely numb hands during the night

1/2

#TeamClots #pwme #mecfs #pwLC #LongCovid #tripletherapy

Last updated 3 years ago

Gary Robinson · @lessorfewer
569 followers · 497 posts · Server mstdn.social

Update on for

Almost 23 months into LC. Main symptoms: fatigue, headaches, tinnitus, brain fog, especially after cognitive activity. Just started week 7 of aspirin, apixaban, clopidogrel + also taking atorvastatin.

Some small improvements:
* clearer thinking, focus
* on some days, increased SpO2 from generally 95 to 97-99
* haven’t woken up with extremely numb hands during the night

1/2

#TeamClots #pwme #mecfs #pwLC #LongCovid #tripletherapy

Last updated 3 years ago

javichu · @javichu
47 followers · 1787 posts · Server techhub.social

RT @MikeWil15339637@twitter.com

I have found that could possibly be related to . This study shows clotting causes tinnitus and treatment with anticoagulant Lovenox improved it by 50%. tinnitusformula.com/library/so

🐦🔗: twitter.com/MikeWil15339637/st

#LongCovid #tinnitus #microclots #TeamClots

Last updated 3 years ago

Amazing news @resiapretorius!
---
RT @resiapretorius
Here's my @givewithkernls research update about our lab's exciting news! The flow cytometer arrived, training is complete and we're already analyzing samples for microclot concentrations. Thanks to everyone who supported @polybioRF to make this happen! go.kernls.com/405RTVU
twitter.com/resiapretorius/sta

#TeamClots #LongCovid

Last updated 3 years ago

Kd nerdychic · @kdelucca30
498 followers · 622 posts · Server mastodon.world

Here's the non-paywall version of the Nat Geo article about microclots. It is great to see this going mainstream. Nattokinase is the over-the-counter treatment available now.

‘Microclots’ could help solve the long COVID puzzle"

archive.is/2023.01.26-192413/h

#LongCovid #TeamClots

Last updated 3 years ago

aloa5 · @aloa5
733 followers · 974 posts · Server det.social

RT @resiapretorius@twitter.com

A refreshing Zoom with our 40+ clinician and research LC group tonight:Take-home:1) COVID is not a typical flu 2) Microclots=the result of LC not the cause 3) Platelet hyperactivation = central 4) individualised care=key @dbkell@twitter.com @DrGrahamLJ@twitter.com @drclairetaylor@twitter.com @Sunny_Rae1@twitter.com

🐦🔗: twitter.com/resiapretorius/sta

#TeamClots

Last updated 3 years ago