🕯️🕯️🕯️Le 12 avril, #ApresJ20 fête ses 3 ans.
Il y a 3 ans, les malades atteints de #CovidLong ont trouvé ici :
🤝de l’entraide,
👂et de l’écoute grâce au hashtag #ApresJ20 puis à l’association @apresj20 qui travaille activement pour la #reconnaissance, les #soins, la #recherche et la #communication autour de cette maladie dont on ne parle pas assez.

#Apres3ans #ApresJ20 #LongCovid #CovidLong #LongCovidKids #CovidLongPediatrique #LongCovidWork #CountLongCovid #TreatLongCovid #LongCovidisFact

RT @doctorasadkhan
Our preprint about treatment of 91 #LongCovid patients with triple anticoagulant therapy is out! By Dr Jaco Laubscher, @resiapretorius @dbkell @JanPretorius98 & myself...
#ResearchLongCovid
#TreatLongCovid
#MECFS
#TeamClots
#MedTwitter
#MedEd 1/n https://twitter.com/RS_COVID19/status/1638217497424850945

RT @jennifer_minhas
@ErinSandersNP @POTUS Yes!! I never thought that shortness of breath after COVID march 2020 would progress into neurological and chronic pain issues. It’s not OK to leave post COVID healthcare workers behind. Let it not happen in vain….
#TreatLongCovid #CleanAir
@ashishkjha

RT @LongCOVIDEurope: LCE calls on EU to create €500 million emergency fund

At todays EU-US Conference on #LongCovid, LCE called on the @EU_Commission to allocated €500 mln for urgently needed biomedical research and clinical trials on Long COVID and associated health conditions.

#TreatLongCovid

🐦🔗: https://n.respublicae.eu/EU_Health/status/1602662244243972098

#LongCovid treatment or, more adequately, the lack of treatment

Today I saw my doctor for a renewal of sick-leave. My GP is nice and considerate, so I will have my sick-leave continued. My dream is to get back to being able to work ~1-2 hours/day with more regularity in spring.
There is no treatment for #LongCovid. Other than rest and pacing, there is nothing else.
I consider myself lucky to have the possibility to take it slow and attempt a recovery. But we need treatment.
#TreatLongCovid

RT @LongCovidCH@twitter.com

We are very happy that post-exertional malaise #PEM and #MECFS are mentioned by ⁦@mayssamnehme@twitter.com⁩ ⁦@Hopitaux_unige@twitter.com⁩ as criteria to assess #LongCovid patients. Thank you for the great presentation ⁦@gcevd@twitter.com⁩ symposium. #DiagnoseLongCovid #TreatLongCovid

🐦🔗: https://twitter.com/LongCovidCH/status/1601135715873595394

RT @LongDeutschland: EU-USA Konferenz zu #LongCovid

Die @EU_Commission überträgt am 13. Dezember 2022 eine kostenlose Online-Konferenz via Livestream. @LongCOVIDEurope wird zwischen 14:30 und 14:45 Uhr eine 5-minütige Ansprache halten. #TreatLongCovid

Agenda & Registrierung: https://health.ec.europa.eu/events/online-eu-us-conference-long-covid-2022-12-13_en

🐦🔗: https://n.respublicae.eu/EU_Health/status/1600895389007126528

RT @RTHM_Health@twitter.com

#Microclots can limit oxygen transport in the blood of #LongCOVID patients causing severe long-term symptoms. While research is ongoing, there are promising treatment options ⬇️ @resiapretorius@twitter.com @doctorasadkhan@twitter.com

#teamclots #pwLC #MedTwitter #TreatLongCOVID
https://rthm.com/long-covid-coagulopathies-and-microclots/

🐦🔗: https://twitter.com/RTHM_Health/status/1598015564105990144

It’s taking us a while 🐌
With #LongCovid #PhasedReturns #Work #Family #Resting #Pacing #Symptoms #Relapses #PEM

We are getting there
We are hoping to launch the website soon

Thank you again to all the #LongCovidCommunity for all your advocacy and support
#TeamLCNMUK 💙🌈

#longcovid #energylimitingconditions #mecfs #countlongcovid #treatlongcovid #nurse #midwife #healthprofessionals #nhs #chronicillness #longcovidwork #postcovid19 #postcovidsyndrome #postcovidrecovery #longcovidrecovery

Another day of barely doing anything and having to rely on toast and CupaSoup as chronic fatigue waves over me and I've no energy to do anything. A few days off my 2 year anniversary of this nightmare roller coaster and I feel I've aged 10 years at least. Life is so restricted now. Still no treatment. #TreatLongCovid #LongCovid #covidisntover

Did you know we co-drafted the #TreatLongCovid act with representative Ayanna Pressley? https://www.congress.gov/bill/117th-congress/house-bill/7482?s=1&r=1

This bill is still in need of a massive amount of support from lawmakers, especially R’s as 0 have signed on. There are two other bills needing the same support: the #careforlongcovid act and the #longhaulers act. As we talk to lawmakers, they are telling us they are not hearing from you! We are asking everyone to engage & help!
#LongCOVID

"Long Covid shrunk the workforce by about 1.6 million full-time equivalent workers at any given time in the first 20 months of the pandemic."

#LongCovid #TreatLongCovid

https://www.theguardian.com/society/2022/oct/12/long-covid-coronavirus-data-symptoms-causes-studies

#LongCovidAmbulanz in meiner Nähe hat Aufnahmestopp.

#Gesundheitsamt sagt, in meiner Stadt gäbe es keine Ärzte mit #LongCovid-Expertise. Eigentlich gäbe es in ganz Deutschland keine.

So ist die Lage. Wir sind total lost.

#TreatLongCovid

RT @Steineundbasalt@twitter.com

Bin heute sehr wehmütig. Hängen geblieben an Fotos vom letzten Jahr. Erinnert an all die Träume & Pläne, die man hatte.
Und dankbar für all das, was man gesehen hat. Die Bilder, die man nun im Herzen hat, die für wer weiß wie lang reichen müssen.
#notrecovered #treatlongcovid

🐦🔗: https://twitter.com/Steineundbasalt/status/1578718276062150658

Mit #LongCovid sind Momente in der #Sonne sehr selten geworden. Es ist wunderbar, wenn man sie doch erleben kann.

#NotRecovered #TreatLongCovid #MECFS

"We have enough data and research on the disease process to begin fast-tracking small-scale trials today. Multi-year observational studies are not going to cut it."

#LongCovid #TreatLongCovid #NotRevovered

https://www.theguardian.com/world/commentisfree/2022/mar/30/long-covid-coronavirus-covid-pandemic-health

Dear #notRecovered bubble, I wish you all at least one unworried happy moment today. Do not give up hope!

#MECFS #LongCovid #TreatLongCovid

RT @Steineundbasalt@twitter.com

@Karl_Lauterbach@twitter.com #treatlongcovid - wir brauchen dringend Forschung, die die Zeit läuft, während immer mehr Menschen erkranken. Mit #BC007 steht ein vielversprechendes Medikament in den Startlöchern und doch unerreichbar. #longcovid Patienten brauchen Behandlung!

🐦🔗: https://twitter.com/Steineundbasalt/status/1575088484561276928

#LongCovid ist so long, dass du überlegst, wie die Chancen stehen, dass zu deinen Lebzeiten auch nur eine einzige Therapie gefunden werden könnte.

#MECFS #NotRevovered #TreatLongCovid #BC007

RT @elleW902@twitter.com

Today is my 1 year Covid anniversary. Twelve months ago I had a *breakthrough* SARS-CoV-2 infection. My acute SARS2 infection went right into #LongCovid @POTUS@twitter.com @CDCgov@twitter.com
Still #NotRecovered #POTS #Dysautonomia #LCME #TreatLongCovid #TreatLCME #SeeME

🐦🔗: https://twitter.com/elleW902/status/1574323529851478017